Demographic Data Sharing and Archiving

人口统计数据共享和存档

• 批准号: 8532003
• 负责人: MARY C MCENIRY
• 金额: $ 58.55万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-09-10 至 2014-09-24
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8532003
• 关键词: Adolescent; Agreement; Architecture; Archives; Area; Behavioral Sciences; Biological Preservation; Child Welfare; Cities; Collaborations; Collection; Community Outreach; Complement; Complex; Computer Assisted; Confidential Information; Consultations; Contract Services; Contracts; Coupled; Data; Data Collection; Databases; Demographer; Deposition; Development; Differential Mortality; Disclosure; Documentation; Evaluation; Family; Fertility; Foundations; Funding; Goals; Harvest; Health; Health behavior; Housing; Imagery; Information Systems; Informed Consent; Institutional Review Boards; International; Interview; Legal; Longitudinal Studies; Los Angeles; Metadata; Methods; Michigan; Minnesota; Modeling; Monitor; Mortality Determinants; National Institute of Child Health and Human Development; Neighborhoods; Output; Paper; Phase; Policies; Population; Population Research; Population Sciences; Population Study; Preparation; Process; Production; Research; Research Infrastructure; Research Personnel; Resources; Risk; Science; Scientist; Secondary to; Secure; Series; Services; Source; Source Code; Standardization; Structure; System; Technology; U-Series Cooperative Agreements; United States National Institutes of Health; Universities; Work; base; data acquisition; data sharing; digital; health disparity; health science research; improved; innovation; interest; knowledge base; new technology; open source; outreach; programs; prototype; public health relevance; repository; research study; response; social; tool; tool development

DESCRIPTION (provided by applicant): Beginning in 2003, the National Institutes of Health developed an explicit data sharing policy which encouraged scientists whose research is funded by NIH to develop ways to share their research data with the public and, more specifically, their fellow scientists. This policy coupled with other federal data sharing requirements and the explicit recognition of the synergistic value to science of broad based data sharing among scientists with similar substantive interests has led to a substantial and important expansion of structured and unstructured data archives and repositories. The first cycle of funding for this project established the basis for data infrastructure to support demographers housed at population centers and those researchers whose data collections have particular relevance to demographic research. The project proposed here is a continuation of a five year cooperative agreement that provides data archiving, preservation and dissemination and other data infrastructure services. The specific aims of this project complement the original agreement's goals which included (1) data acquisition, curation, dissemination, and preservation (2) restricted use data sharing (3) user support and outreach, and (4) improvements in the science of data sharing including disclosure risk evaluation, complex data conceptualization and shared frameworks for data sharing (the legal framework) and data documentation (the Data Documentation Initiative). In this phase of the project, we bring new technologies and data architecture to help reengineer how we provide these services and to expand the integrated infrastructure support that will help improve the delivery of the parts of the demographic data collection that reside at ICPSR and those that reside in affiliated population centers. The goal is to work toward a legal, technical, and substantive framework in which to share research data in the population sciences. Specifically, with partners at the Carolina Population Center, Minnesota Population Center, Hopkins Population Center, Rand Population Research Center and the Michigan Population Studies Center, we will add new technologies to provide open source methods of data curation and dissemination.

描述（由申请人提供）：从2003年开始，美国国立卫生研究院制定了一项明确的数据共享政策，该政策鼓励了科学家，其研究由NIH资助，以开发与公众，更具体地说，更具体地说，是他们的研究数据的方法。该政策加上其他联邦数据共享要求，以及对具有相似实质性实质性的科学家之间对基于广泛的数据共享科学的协同价值的明确认可，这导致了结构化和非结构化的数据档案和存储库的大量而重要的扩展。该项目的第一个资金周期为支持人口中心所容纳的人口统计学家以及数据收集与人口统计学研究特别相关的研究人员建立了基础。此处提出的项目是一项为期五年合作协议的延续，该协议提供数据归档，保存和传播以及其他数据基础架构服务。该项目的具体目的补充了原始协议的目标，包括（1）数据获取，策划，传播和保存（2）限制使用数据共享（3）用户支持和外联，以及（4）数据共享科学的改进，包括披露风险评估，复杂的数据概念化，复杂的数据概念化和共享数据共享（法律框架）和数据文档（该数据文档）和数据文档（该数据文档和数据文档（该数据文档）（该数据文档）（该数据文档（该数据文档）（该数据文档）（该数据文档（该数据文档）（该数据文档）（该数据文档（该数据文档）（该数据文档（该数据）（该数据文档）（该数据文档（该数据文档）（该数据文档）（该数据文档（该数据文档）（该数据文档（该数据）（该数据文档）（该数据文档（该数据）（该数据共享）（数据共享）（该数据共享（该数据共享）。在项目的这个阶段，我们携带新的技术和数据体系结构，以帮助重新设计我们如何提供这些服务并扩大集成的基础架构支持，这将有助于改善位于ICPSR的人口数据收集部分以及居住在附属人群中心的人口数据收集的部分。目的是朝着一个法律，技术和实质性的框架上，在该框架中共享人口科学的研究数据。具体来说，在卡罗来纳州人口中心，明尼苏达州人口中心，霍普金斯人口中心，兰德人口研究中心和密歇根人口研究中心的合作伙伴中，我们将添加新技术，以提供开源的数据策划和传播方法。