Improving healthcare quality with user-centric patient portals

通过以用户为中心的患者门户提高医疗保健质量

• 批准号: 8352831
• 负责人: Jessica S. Ancker
• 金额: $ 15.15万
• 依托单位: WEILL MEDICAL COLL OF CORNELL UNIV
• 依托单位国家: 美国
• 财政年份: 2013
• 资助国家: 美国
• 起止时间: 2013-09-01 至 2018-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8352831
• 关键词: Improving; healthcare; quality; user; centric

Summary/abstract Patient-centered care involves respect for patients' values and preferences, coordination across care settings, cultural competency, effective communication, and patient education. To achieve patient-centered care, patients need personalized, timely, and understandable medical information. These needs could potentially be supported by technologies such as electronic patient portals and personal health records, which are likely to become more common in light of the Department of Health and Human Services' 2010 rule to encourage "meaningful use" of health information technology (IT). Consumer health IT has demonstrated efficacy for a number of outcomes, but has not yet demonstrated broad impact on healthcare quality in practice. Models of technology impact suggest that this is because the technologies have not diffused broadly and users are not using them optimally. Barriers to adoption and use include such factors as computer literacy, Internet access, usability,health literacy and numeracy, and sometimes a technology focus on meeting organizational goals rather than patient goals.We propose that potentially beneficial consumer technologies will improve healthcare quality only after they are widely adopted and used, and that adoption will rise only when the technologies match both patient abilities and their needs. We additionally propose that successfully matching technologies to patient needs requires a deeper understanding of patient needs for health information and information management. This proposal describes a research agenda to develop and validate a model of patient information needs, apply it to improve adoption of patient portals, and assess the effect of use of these portals on healthcare quality. The long-term goal of this research is to empower patients to assume a central role in the management of their health and health care, and quantitatively evaluate the effect. The first study described in this proposal uses qualitative methods to develop a patient information management needs framework. The second study validates this framework with quantitative usage data from patient portals. The third study employs human factors methods to improve the portals' usability and ability to meet patient information management needs. The final study will compare quality of care experienced by portal users and nonusers over time. This work, along with the training goals outlined in this proposal, will advance the field of consumer health information technology and position Dr. Jessica Ancker as an independent researcher at the intersection of informatics and health services research.

摘要/摘要 以患者为中心的护理包括尊重患者的价值观和偏好，跨护理环境的协调， 文化能力、有效沟通和耐心教育。为了实现以患者为中心的护理， 患者需要个性化、及时、可理解的医疗信息。这些需求可能是 由电子患者门户和个人健康记录等技术支持，这些技术可能会 根据卫生与公众服务部2010年的规定，鼓励 “有意义地使用”卫生信息技术(IT)。消费者健康IT已经证明了它对 许多结果，但尚未在实践中显示对医疗质量的广泛影响。模型 技术影响表明，这是因为技术没有广泛传播，用户也没有 以最佳方式使用它们。采用和使用的障碍包括计算机素养、互联网接入、 可用性、健康素养和计算能力，有时还注重技术以满足组织目标 而不是患者的目标。我们认为潜在有益的消费技术将改善医疗保健 只有在它们被广泛采用和使用之后，才能提高质量，只有当技术被广泛采用和使用时，采用才会上升 匹配患者的能力和他们的需求。此外，我们还提出，成功匹配技术 满足患者需求需要更深入地了解患者对健康信息和信息的需求 管理层。该提案描述了开发和验证患者模型的研究议程 信息需求，应用它来改进患者门户的采用，并评估使用这些门户的效果 关于医疗质量。这项研究的长期目标是使患者在治疗中发挥核心作用 对他们的健康和保健进行管理，并定量评价效果。第一项研究 在此方案中描述了采用定性方法来开发患者的信息管理需求 框架。第二项研究用患者门户网站的量化使用数据验证了这一框架。这个 第三项研究采用人的因素方法来提高门户网站的可用性和满足患者的能力 信息管理需求。最终研究将比较门户用户和门户网站用户体验的护理质量 随着时间的推移不使用。这项工作与本提案中概述的培训目标一起，将推动 消费者健康信息技术，并将Jessica Ancker博士定位为 信息学和卫生服务研究的交叉。