Making Numbers Meaningful: Promoting evidence-based communication of numbers in health

让数字变得有意义：促进健康领域数字的循证沟通

• 批准号: 9926310
• 负责人: Jessica S. Ancker
• 金额: $ 36.57万
• 依托单位: WEILL MEDICAL COLL OF CORNELL UNIV
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-09-11 至 2020-12-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9926310
• 关键词: Affect; Behavioral Research; Blinded; Centers for Disease Control and Prevention (U.S.); Clinical; Communication; Custom; Data; Decision Making; Decision Support Systems; Development; Disease; Education; Educational Status; Effectiveness; Engineering; Evaluation; Failure; Future; Goals; Graph; Guidelines; Health; Health Communication; Health Educators; Health Professional; Healthcare; Hour; Impairment; Individual; Information Centers; Information Resources; Information Services; Information Specialists; Information Technology; Instruction; International; Intervention; Knowledge; Label; Laboratories; Medical; Methodology; Mission; Online Systems; Ontology; Patients; Pharmaceutical Preparations; Population; Public Health; Quality Control; Readability; Research; Resources; Risk; Sampling; Self Management; Specific qualifier value; Standardization; Support System; System; Technology; Training; Translating; United States Agency for Healthcare Research and Quality; United States Dept. of Health and Human Services; Visualization; base; computer based Semantic Analysis; design; evidence base; experience; formative assessment; genomic data; health data; health disparity; health literacy; improved; indexing; instrument; mathematical ability; multidisciplinary; novel; patient engagement; patient oriented; public health priorities; social; systematic review; tool; usability; web site; working group

1 Much of the health and medical information patients need for decision-making and disease self-management is 2 quantitative. Patients encounter numbers in lab results, medical risk information, genomic data, drug labels, 3 and medication instructions. Unfortunately, many patients, especially those with low health numeracy, have 4 difficulty understanding and using this information. Low health numeracy disproportionately affects health 5 disparities populations, yet is also prevalent among those with high health literacy. A large body of evidence 6 has identified information visualization and presentation approaches that improve patients' ability to understand 7 numbers. This evidence shows that patients' ability to interpret numbers is strongly influenced by presentation 8 (or format), such as whether a risk is described as 5% or 5 in 100, and whether laboratory data are listed in a 9 table or visualized as a graph with action thresholds. This research, if applied, could narrow disparities 10 between patients with high and low educational levels in their ability to understand and use their own health 11 data. However, evidence about numeracy has not been effectively translated from research settings to 12 healthcare. This failure impairs the effectiveness of information resources and information technology 13 interventions with patients with low numeracy. We will develop an interactive Communicating Numbers Clearly 14 guide to support professional decisions about presenting and visualizing numbers in health. This will require 15 conducting a systematic review to collate and evaluate current evidence; constructing a free online decision 16 support system for health educators, information technology developers, health information specialists, or 17 health professionals who create information resources for patients; and conducting an evaluation of the guide. 18 Our long-term goal is to establish Communicating Numbers Clearly as a training resource for individuals and 19 organizations that prepare health data for patients, and its application as a standard quality control step before 20 health numbers are released. Communicating Numbers Clearly will advance NLM's mission of supporting 21 consumer and patient engagement in understanding, accessing, and using their health data and other health 22 information resources. This project will produce: an evidence-based resource that integrates knowledge about 23 patient understanding of numbers in health; a freely available, interactive web-based system to help 24 information specialists make patient-centered decisions about information visualization and representation; and 25 a shareable ontology of numerical communication concepts available to support future development of 26 additional information resources and services to support patients, educators, and clinicians.

1.病人需要的许多健康和医疗信息，用于决策和疾病自我管理， 2定量。患者在实验室结果、医疗风险信息、基因组数据、药物标签中遇到数字， 3、用药指导。不幸的是，许多患者，特别是那些健康计算能力低的患者， 4.难以理解和使用这些信息。健康计算能力低不成比例地影响健康 5差距的人口，但也普遍存在于那些高健康素养。大量证据 6已经确定了提高患者理解能力的信息可视化和呈现方法 七个数字。这一证据表明，患者对数字的解读能力受到呈现方式的强烈影响 8（或格式），例如风险是否被描述为5%或100分之5，以及实验室数据是否被列在 9表格或可视化为具有动作阈值的图表。这项研究如果得到应用， 10高和低教育水平的患者在了解和利用自身健康的能力之间 11个数据。然而，关于计算能力的证据还没有从研究环境中有效地转化为 12健康这种失败损害了信息资源和信息技术的有效性 13例低计算能力患者的干预措施。我们将开发一个交互式的数字清楚地沟通 14指南，以支持有关呈现和可视化健康数字的专业决策。这将需要 15进行系统性审查，以整理和评估现有证据;构建免费的在线决策 16健康教育者、信息技术开发人员、健康信息专家的支持系统，或 17名卫生专业人员为患者创建信息资源;并对指南进行评估。 18我们的长期目标是将数字清晰地传达作为个人的培训资源， 为患者准备健康数据的19个组织，及其作为标准质量控制步骤的应用， 20篇健康数据公布清晰地传达数字将推进NLM的使命， 21消费者和患者参与了解，访问和使用他们的健康数据和其他健康信息 22信息资源该项目将产生：一个以证据为基础的资源， 23耐心理解健康数字;一个免费提供的交互式网络系统，以帮助 24名信息专家以患者为中心，就信息可视化和表示做出决策; 25数字通信概念的可共享本体，可用于支持未来的开发。 26个额外的信息资源和服务，以支持患者，教育工作者和临床医生。