Patient-Centered Online Care Model for Follow-Up Management of Atopic Dermatitis

以患者为中心的特应性皮炎后续管理在线护理模式

• 批准号: 8507613
• 负责人: April W Armstrong
• 金额: $ 3.4万
• 依托单位: UNIVERSITY OF CALIFORNIA AT DAVIS
• 依托单位国家: 美国
• 财政年份: 2009
• 资助国家: 美国
• 起止时间: 2009-09-30 至 2013-10-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8507613
• 关键词: Patient; Centered; Online; Care; Model

DESCRIPTION (provided by the applicant): The long-term research goal is to improve patient access to specialist care. The immediate research goals are to design and evaluate technology-enabled models of delivering specialist care to patients with chronic dermatologic diseases. These goals are responsive and relevant to the overall mission of AHRQ because they aim to assess the quality, efficiency, and effectiveness of these technology-enabled models to improve specialist access for all Americans, especially those in rural and medically underserved communities. The research proposal is based on the finding that access to timely, high-quality dermatologic care poses a significant challenge in the U.S. health care system. As a result, many patients with chronic skin diseases lack access to or receive insufficient dermatologic care necessary to improve their overall health and quality of life. In this study, Dr. April Armstrong proposed a novel, online model of delivering direct, follow-up care to patients with atopic dermatitis, a chronic skin disease from which millions of Americans suffer. In this online model, the patients communicate directly with their dermatologists, capture and transmit digital skin images, and receive treatment recommendations and prescriptions from their dermatologists online. This online model could improve patient access to timely medical care and save patients time away from school or work. To evaluate the effectiveness of this online model, Dr. Armstrong designed a randomized controlled trial to compare clinical, quality of life, and satisfaction outcomes of this novel, online model with those of the traditional in-office visits. Pediatric and adult patients with atopic dermatitis will be randomized to either the online group or the in-office group for follow-up management. All subjects will be assessed on their clinical improvement, changes in quality of life, patient satisfaction, and patient knowledge regarding their disease. The use of health information technology to deliver patient-centered care introduces a new model for improving access to specialists. Dr. Armstrong and her mentors expect to demonstrate that patients will be responsible, willing, and active participants in this care delivery system that is enabled by communication technology. This study is also expected to show that patient-directed online care is a practical and effective mechanism to manage skin diseases in follow-up clinical settings. Thus, the research proposed in this application is significant because it is expected to improve clinical outcomes for patients with skin diseases, raise quality of life, and increase patient satisfaction and their knowledge about their skin disease. This model has the potential to be adapted for patients suffering from other types of chronic medical conditions requiring regular follow-up visits to specialists. This research proposal resonates with the AHRQ's mission to use health information technology to support patient-centered care in the management of their health and illness.

描述（由申请人提供）：长期研究目标是改善患者获得专业护理的机会。直接的研究目标是设计和评估支持技术的模型，以向慢性皮肤病患者提供专业护理。这些目标是响应良好的，并且与AHRQ的整体使命相关，因为它们旨在评估这些支持技术模型的质量，效率和有效性，以改善所有美国人的专业访问权限，尤其是在农村和医疗服务不足的社区中。该研究建议基于以下发现：及时，高质量的皮肤病护理在美国医疗保健系统中构成了重大挑战。结果，许多慢性皮肤疾病患者无法获得或获得不足的皮肤病学护理，以改善其整体健康和生活质量。在这项研究中，April Armstrong博士提出了一种新颖的在线模型，该模型向特应性皮炎的患者提供直接的后续护理，这是一种慢性皮肤疾病，数百万美国人受到了痛苦。在这种在线模型中，患者直接与皮肤科医生进行沟通，捕获和传输数字皮肤图像，并从其皮肤科医生在线收到治疗建议和处方。这种在线模型可以改善患者获得及时的医疗服务，并节省患者的时间或工作。为了评估这种在线模型的有效性，阿姆斯特朗博士设计了一项随机对照试验，以比较这种小说的在线模型与传统的办公室访问的临床，生活质量和满意度。儿科和成年患有特应性皮炎的患者将随机分为在线组或办公室组以进行后续管理。所有受试者将根据其临床改善，生活质量的变化，患者满意度以及患者对疾病的了解进行评估。使用健康信息技术提供以患者为中心的护理引入了一种新的模型，以改善与专家的访问。阿姆斯特朗（Armstrong）博士和她的导师希望证明患者将负责，愿意和积极的参与者，这是通过通信技术启用的这种护理服务系统的。这项研究还预计将表明，以患者为导向的在线护理是在后续临床环境中管理皮肤病的实用有效机制。因此，本应用中提出的研究很重要，因为预计它将改善皮肤病患者的临床结局，提高生活质量，并提高患者满意度以及对皮肤病的了解。该模型有可能针对患有其他类型的慢性医疗状况的患者进行调整，需要定期对专家进行随访。这项研究提案与AHRQ的使命共鸣，是使用健康信息技术来支持以患者为中心的护理在其健康和疾病中。