Improving Patient-Centered Outcomes Research in Pediatric Subspecialities

改善儿科亚专业以患者为中心的结果研究

• 批准号: 8737876
• 负责人: AARON E. CARROLL
• 金额: $ 97.94万
• 依托单位: INDIANA UNIV-PURDUE UNIV AT INDIANAPOLIS
• 依托单位国家: 美国
• 财政年份: 2013
• 资助国家: 美国
• 起止时间: 2013-09-30 至 2015-09-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8737876
• 关键词: Improving; Patient; Centered; Outcomes; Research

DESCRIPTION (provided by applicant): Comparative effectiveness research (CER) particularly that which focuses on patient-centered outcomes research (PCOR), has the potential to provide patients and providers with valuable information on what treatments and interventions best address specific clinical situations and priorities. While our institution has a great deal of experience in health services research, this work has tended to focus on traditional measures, such as presence or absence of a particular clinical event, physiological measures, and test results. While some investigators at the Indiana University School of Medicine (lUSM) and Indiana University Health (Lu Health) have included patient-centered outcomes in their research, patients' experiences and evaluations of their own outcomes are not a priority in most of our research. Additionally, our pediatric health services research has been targeted at the general pediatric population, ignoring the great need for work in subspecialty areas. Therefore, the specific aims of this proposal are to: (1) Build infrastructure o expand our research capacity into pediatric subspecialties, (2) Establish a rigorous research program that is focused on patient-centered outcomes and CER, (3) Build capacity and training for faculty who will engage in CER/PCOR in pediatric subspecialties, and (4) Develop methods for incorporating findings into the larger health care system. In order to achieve these specific aims, we will establish the Center for Pediatric Comparative Effectiveness Research at lUSM and lU Health. This Center will be comprised of four "Cores" (i.e., Faculty Mentorship/Development, Patient Engagement, Informatics, and Implementation Sciences) that will function together in a collaborative, integrated fashion for the development and conduct of CER/PCOR as well as the implementation and dissemination of effective, evidence-based practices. Our vision is that CER/PCOR in the center will be conducted across all pediatric subspecialty disciplines at lU Health. The environment in which we will establish the Center is ideally suited for achieving our specific aims, and active collaborations with existing organizations, resources, and leaders within lUSM and lUH will significantly increase the likelihood of success and sustainability for our efforts in the Center.

描述（由申请人提供）：比较有效性研究（CER），尤其是以患者为中心的结果研究（PCOR），有可能为患者和提供者提供有关哪些治疗方法和干预措施最佳解决特定临床情况和优先事项的宝贵信息。虽然我们的机构有一个 在卫生服务研究方面，这项工作很丰富，倾向于专注于传统措施，例如存在或不存在特定的临床事件，生理指标和测试结果。尽管印第安纳大学医学院（LUSM）和印第安纳大学健康（LU Health）的一些研究人员在其研究中包括以患者为中心的结果，但在我们的大多数研究中，患者的经验和评估并不是当务之急。此外，我们的小儿保健服务 研究已针对普通小儿人群，忽略了对工作的巨大需求 亚专业领域。因此，该提案的具体目的是：（1）建立基础架构o将我们的研究能力扩展到小儿的子药物中，（2）建立一个严格的研究计划，专注于以患者为中心的结果和CER，（3）为培养基/PCOR的建立能力和培训，这些研究能够从事CER/PCOR从事较大的培养基，并将其用于较大的卫生培养基，并（4）将（4）组合成4）。为了实现这些特定目标，我们将在LUSM和LU Health建立小儿比较有效性研究中心。该中心将由四个“核心”（即教师指导/发展，患者参与，信息学和实施科学）组成，它们将以协作，综合的方式共同运行，以开发和行为，以及对有效的，证据，基于证据实践的实施和实施和实施和实施和传播。我们的愿景是，该中心的CER/PCOR将在Lu Health的所有儿科专业学科中进行。我们将建立该中心的环境非常适合实现我们的特定目标，并与LUSM和LUH中现有组织，资源和领导者的积极合作将大大提高成功和可持续性的可能性，以实现我们在该中心的努力。