Improving Patient-Centered Outcomes Research in Pediatric Subspecialities

改善儿科亚专业以患者为中心的结果研究

• 批准号: 8737876
• 负责人: AARON E. CARROLL
• 金额: $ 97.94万
• 依托单位: INDIANA UNIV-PURDUE UNIV AT INDIANAPOLIS
• 依托单位国家: 美国
• 财政年份: 2013
• 资助国家: 美国
• 起止时间: 2013-09-30 至 2015-09-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8737876
• 关键词: Improving; Patient; Centered; Outcomes; Research

DESCRIPTION (provided by applicant): Comparative effectiveness research (CER) particularly that which focuses on patient-centered outcomes research (PCOR), has the potential to provide patients and providers with valuable information on what treatments and interventions best address specific clinical situations and priorities. While our institution has a great deal of experience in health services research, this work has tended to focus on traditional measures, such as presence or absence of a particular clinical event, physiological measures, and test results. While some investigators at the Indiana University School of Medicine (lUSM) and Indiana University Health (Lu Health) have included patient-centered outcomes in their research, patients' experiences and evaluations of their own outcomes are not a priority in most of our research. Additionally, our pediatric health services research has been targeted at the general pediatric population, ignoring the great need for work in subspecialty areas. Therefore, the specific aims of this proposal are to: (1) Build infrastructure o expand our research capacity into pediatric subspecialties, (2) Establish a rigorous research program that is focused on patient-centered outcomes and CER, (3) Build capacity and training for faculty who will engage in CER/PCOR in pediatric subspecialties, and (4) Develop methods for incorporating findings into the larger health care system. In order to achieve these specific aims, we will establish the Center for Pediatric Comparative Effectiveness Research at lUSM and lU Health. This Center will be comprised of four "Cores" (i.e., Faculty Mentorship/Development, Patient Engagement, Informatics, and Implementation Sciences) that will function together in a collaborative, integrated fashion for the development and conduct of CER/PCOR as well as the implementation and dissemination of effective, evidence-based practices. Our vision is that CER/PCOR in the center will be conducted across all pediatric subspecialty disciplines at lU Health. The environment in which we will establish the Center is ideally suited for achieving our specific aims, and active collaborations with existing organizations, resources, and leaders within lUSM and lUH will significantly increase the likelihood of success and sustainability for our efforts in the Center.

描述（由申请人提供）：比较有效性研究（CER），特别是专注于以患者为中心的结果研究（PCOR）的研究，有可能为患者和提供者提供有关哪些治疗和干预措施最能解决特定临床情况和优先事项的宝贵信息。虽然我们机构有一个 由于在卫生服务研究方面拥有丰富的经验，这项工作往往侧重于传统的衡量标准，例如是否存在特定的临床事件、生理测量和测试结果。虽然印第安纳大学医学院 (lUSM) 和印第安纳大学健康中心 (Lu Health) 的一些研究人员在他们的研究中纳入了以患者为中心的结果，但患者的经历和对自身结果的评估并不是我们大多数研究的优先事项。此外，我们的儿科健康服务 研究针对的是一般儿科人群，忽视了在以下领域开展工作的巨大需求： 亚专业领域。因此，本提案的具体目标是：(1) 建设基础设施或扩大我们在儿科亚专科的研究能力，(2) 建立一个严格的研究计划，重点关注以患者为中心的结果和 CER，(3) 为将在儿科亚专科从事 CER/PCOR 的教师进行能力建设和培训，以及 (4) 开发将研究结果纳入更大的医疗保健系统的方法。为了实现这些具体目标，我们将在 lUSM 和 lU Health 建立儿科比较有效性研究中心。该中心将由四个“核心”（即教师指导/发展、患者参与、信息学和实施科学）组成，它们将以协作、综合的方式共同发挥作用，以开发和开展 CER/PCOR 以及实施和传播有效的循证实践。我们的愿景是，该中心的 CER/PCOR 将在 lU Health 的所有儿科亚专业学科中进行。我们建立该中心的环境非常适合实现我们的具体目标，与 lUSM 和 lUH 内现有组织、资源和领导者的积极合作将大大增加我们在该中心的努力取得成功和可持续性的可能性。