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Mapping Breast Cancer Survivorship and the Survivor Institutional Interface

绘制乳腺癌幸存者和幸存者机构界面

基本信息

批准号：
8834800
负责人：
Deborah Lefkowitz
金额：
$ 3.5万
依托单位：
UNIVERSITY OF CALIFORNIA-IRVINE
依托单位国家：
美国
项目类别：
财政年份：
2016
资助国家：
美国
起止时间：
2016-01-01 至 2018-12-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8834800
关键词：
Address Affect Aftercare Age Area Authorization documentation Breast Cancer Detection Breast Cancer survivor Breast Cancer survivorship California Cancer Control Cancer Patient Cancer Survivorship Caring Case Study Categories Collaborations Communication Research Communities Community Health Complex Comprehensive Cancer Center County Data Data Collection Data Sources Databases Diagnosis Dimensions Disease Disease model Early Diagnosis Ecology Environment Event Faculty Familiarity Family Geographic Distribution Goals Grant Group Meetings Health Policy Health Promotion Health care facility Healthcare Human Individual Institution Institutional Practice Institutional Review Boards Interdisciplinary Study Internet Intervention Interview Investigation Knowledge Late Effects Legal Life Life Expectancy Life Experience Long Term Survivorship Malignant Neoplasms Maps Measures Medical Mentors Methods Modeling Nature Newsletter Outcome Pamphlets Participant Patient Self-Report Patients Perception Physicians Pilot Projects Process Public Health Qualitative Research Reading Recording of previous events Records Relative (related person)Research Research Infrastructure Research Methodology Research Personnel Research Support Resources Risk Role Sampling Scientific Advances and Accomplishments Selection Criteria Services Shipping Ships Source Specialist Staging Structure Students Subjects Selections Surveys Survival Rate Survivors Telephone Textiles Time Training Training Programs Translations Transportation Undifferentiated Variant Visual Woman Work Workplace aging population base bilingualism breast cancer diagnosis cancer care cancer therapy comorbidity contextual factors design experience health disparity interest lens longitudinal design malignant breast neoplasm medically underserved medically underserved population meetings member parity programs prosthesis fitting psychosocial public health relevance remediation skills training social survivorship symposium volunteer web site

项目摘要

DESCRIPTION (provided by applicant): There are currently over 2.5 million breast cancer survivors in the US. Dominant paradigms for cancer survivorship focus either on biomedical models of disease (institutional perspective) or psychosocial measures (individual perspective) but ignore the complex interactions between individuals and institutions (e.g., health care facilities, workplaces) that jointly contribute to survivorship outcomes. New models of survivorship care are urgently required to accommodate the changing healthcare needs of an aging population, anticipated in- creases in both the number of breast cancer survivors and their life expectancies, as well as healthcare dis- parities in medically underserved regions that are disproportionately affected by physician and specialist short- ages. The proposed interdisciplinary research combines the theoretical framework of social ecology with qualitative research methods to investigate breast cancer survivorship as an interactional process between embodied experience and institutional practices in California's Inland Empire, a region comprising Riverside and San Bernardino counties. This research will have significant implications for the design of healthcare and policy interventions that target change at the individual, institutional, and community levels. Aim 1: Investigate individual experiences of breast cancer survivorship. Using a longitudinal de- sign, in-depth semi-structured open-ended interviews will be conducted with Inland Empire breast cancer survivors at yearly intervals. Recruitment will be facilitated by collaborations with Inland Empire breast cancer organizations: The Pink Ribbon Place, Michelle's Place, and the Southern California Witness Project. Aim 2: Investigate institutional resources and their role in defining survivorship care. Survivor- ship resources comprising a broad range of services (i.e., transportation assistance, prosthesis fitting) extend beyond-but are integral to-survivorship medical care. Institutional resources in th Inland Empire will be surveyed, with an in-depth case study of one particular survivorship program and its institutional records. Aim 3: Map the survivor-institutional interface. Employing both visual and textual data collected in aims 1 and 2, mapping allows qualitative analysis of confluences and divergences between Inland Empire survivor and institutional perspectives regarding needs, resources, and resource use. Training program: The applicant aspires to become an independent cancer survivorship researcher. Mentoring by an interdisciplinary team in cancer survivorship, social ecology, and organizational studies con- tributes to accomplishment of this goal. The individualized training plan includes formal coursework; applied skills training; individual meetings with sponsors and advisers; monthly group mentoring, faculty-student reading group meetings, and Women's Cancer Cure ConneXion Disease Oriented Team meetings; participation in the Center for Organizational Research events and the annual Chao Family Comprehensive Cancer Center scientific retreat, as well as national conferences such as the NCI biennial survivorship research conference.