Improving Decision Making in Patients with Rheumatic Disease

改善风湿病患者的决策

• 批准号: 8698168
• 负责人: Liana Fraenkel
• 金额: $ 16.92万
• 依托单位: YALE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2011
• 资助国家: 美国
• 起止时间: 2011-07-01 至 2016-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8698168
• 关键词: Age; Alabama; Area; Award; Basic Science; Behavioral; Biometry; Clinical Research; Clinical Trials; Collaborations; Commit; Communication; Critiques; Decision Aid; Decision Making; Development; Educational Curriculum; Educational process of instructing; Effectiveness; Ensure; Epidemiology; Evaluation; Faculty; Funding; Future; Geriatrics; Goals; Grant; Healthcare; Institution; Internal Medicine; Knee; Measures; Medical; Medicine; Mentors; Methods; Mid-Career Clinical Scientist Award (K24); Occupations; Ohio; Outcome; Patients; Persons; Principal Investigator; Process; Public Health; Quality of Care; Randomized Controlled Trials; Research; Research Methodology; Research Personnel; Research Project Grants; Research Training; Resources; Rewards; Rheumatism; Rheumatoid Arthritis; Rheumatology; Role; Schools; Staging; Structure; Texas; Time; Training; Training Programs; Universities; Work; career; clinical practice; college; design; efficacy testing; experience; improved; interest; medical schools; meetings; patient oriented research; programs; risk perception; success; tool

DESCRIPTION (provided by applicant): The goals of the proposed projects are to support my continued development and impact as a mentor, to establish a research training program for patient oriented research (POR) in the Section of Rheumatology at my institution, and to expand my current POR program. Regarding the former, I am strongly committed to devoting a significant percent of my career to mentoring. Among the trainees I am currently working with, I am the primary mentor for 2 junior faculty (1 who is a K awardee), 2 rheumatology fellows interested in pursing a career in POR, and 3 residents planning a career in rheumatology. While my primary interest is in the field of decision making, my training and previous practical experience in epidemiology allow me to be an effective mentor for trainees interested in other aspects of POR related to rheumatic disease. Given my commitment to mentoring, Yale's rich resources dedicated to POR, and strong institutional support to create this program, the K24 Award provides an invaluable opportunity to expand my mentoring efforts and to establish a specialized structured POR curriculum. The program will ensure that fellows interested in becoming independent investigators will be supported by an interdisciplinary team of mentors and will acquire training in clinical research methods and biostatistics. In addition, I will establish a biweekly Research in Progress meeting during which trainees and faculty will be expected to present materials at all stages of development and offer constructive critiques during each session. The training program will include formal mentoring sessions which will adhere to a process for moving research forward. The POR training program will also include formal evaluation of trainees and mentors. In addition to mentoring young investigators, one of my important long-term goals is to advance my own research agenda so that I can continue to conduct scientifically rigorous and meaningful POR. I have established a defined area of expertise and a strong network of collaborators with complementary proficiencies that will support and enhance my research program. Current examples include collaborations with Dr. Curtis (UAB) with whom I have recently submitted a grant to develop individualized outcome estimates in rheumatoid arthritis, Drs. Reyna (Cornell) and Peters (Ohio State) who are basic science experts in decision making and are current collaborators on a project to develop a decision aid in rheumatoid arthritis, Dr. Almazor (MD Anderson) with whom I am working on 2 projects examining the value of conjoint analysis in patients with knee OA, and Dr. Street (Baylor College of Medicine) an internationally renowned expert on communication, who is a collaborator on a new research project: Measuring Patients' Risk Perceptions in Real Time. New planned studies will continue to focus on understanding the reasons underlying poor quality decision making in clinical practice and I will expand my current projects to include randomized controlled trials to test the efficacy/effectiveness of the tools developed.

描述（由申请人提供）：拟议项目的目标是支持我作为导师的持续发展和影响力，在我所在机构的风湿病科建立面向患者的研究 (POR) 研究培训计划，并扩展我当前的 POR 计划。对于前者，我坚定地致力于将我职业生涯的很大一部分时间投入到指导中。在目前与我一起工作的学员中，我是 2 名初级教师（1 名 K 获奖者）、2 名有兴趣从事 POR 职业的风湿病研究员和 3 名计划从事风湿病职业的住院医生的主要导师。虽然我的主要兴趣是决策领域，但我在流行病学方面的培训和之前的实践经验使我能够成为对与风湿病相关的 POR 其他方面感兴趣的学员的有效导师。鉴于我对指导的承诺、耶鲁大学致力于 POR 的丰富资源以及创建该项目的强大机构支持，K24 奖为我扩大指导工作并建立专门的结构化 POR 课程提供了宝贵的机会。该计划将确保有兴趣成为独立研究者的研究员得到跨学科导师团队的支持，并获得临床研究方法和生物统计学方面的培训。此外，我将召开每两周一次的研究进展会议，在会议期间，学员和教师将被要求展示各个发展阶段的材料，并在每次会议期间提出建设性的批评。培训计划将包括正式的指导课程，该课程将遵循推动研究前进的流程。 POR 培训计划还将包括对学员和导师的正式评估。除了指导年轻的研究人员之外，我重要的长期目标之一是推进我自己的研究议程，以便我能够继续进行科学严谨且有意义的 POR。我已经建立了明确的专业领域和强大的合作者网络，这些合作者具有互补的能力，这将支持和加强我的研究计划。当前的例子包括与 Curtis 博士 (UAB) 的合作，我最近与他一起提交了一笔赠款，用于开发类风湿性关节炎的个体化结果估计，Drs. Reyna（康奈尔大学）和 Peters（俄亥俄州立大学）是决策方面的基础科学专家，目前是开发类风湿性关节炎决策辅助项目的合作者；Almazor 博士（MD 安德森）与我合作开展了两个项目，研究联合分析对膝骨关节炎患者的价值；Street 博士（贝勒医学院）是国际知名的沟通专家，他是一个新研究项目的合作者： 实时测量患者的风险认知。新计划的研究将继续侧重于了解临床实践中决策质量差的原因，我将扩大我当前的项目，包括随机对照试验，以测试所开发工具的功效/效果。