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Improving Decision Making in Patients with Rheumatic Disease

改善风湿病患者的决策

基本信息

批准号：
9023696
负责人：
Liana Fraenkel
金额：
$ 18.35万
依托单位：
YALE UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2011
资助国家：
美国
起止时间：
2011-07-01 至 2021-06-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/9023696
关键词：
Accelerometer Advisory Committees Award Benefits and Risks Biometry Clinical Clinical Practice Guideline Clinical Research Communication Data Decision Making Development Development Plans Doctor of Philosophy Educational process of instructing Ensure Epidemiology Evaluation Faculty Fellowship Foundations Funding Future Goals Grant Health Sciences Healthcare Heterogeneity Hospitals Individual Institution Master&apos s Degree Measures Medical Medicine Mentors Methods Mid-Career Clinical Scientist Award (K24)Modeling NCI Scholars Program Occupations Outcomes Research Paper Patient Preferences Patient-Focused Outcomes Patients Persons Pharmaceutical Preparations Phase Physicians Policies Positioning Attribute Process Publishing Randomized Controlled Trials Reporting Research Research Activity Research Methodology Research Personnel Research Project Grants Research Training Resources Rewards Rheumatism Rheumatology Risk Role SECTM1 gene Time Training Training Programs United States Agency for Healthcare Research and Quality Work abstracting base career career development clinical practice comparative effectiveness design effectiveness research experience improved interest mathematical ability novel novel strategies patient oriented research peer point of care preference programs public health relevance risk perception skills support tools theories

项目摘要

DESCRIPTION (provided by applicant): The goals of the proposed research activities are 3-fold: 1) to support my continued impact as a mentor, 2) to further grow the clinical research training program in the Section of Rheumatology at my institution, and 3) to continue to advance my own patient-oriented research (POR) program in medical decision making. My commitment to mentoring is the primary reason I am applying for a renewal of the K24 Award. Requests for mentoring continue to increase, and a renewal of this award would ensure that I have the protected time to be able to continue to encourage, support, teach, and advise trainees from various backgrounds interested in a future career involving POR. While my primary interest is in the field of decision making, my training and has allowed me to be an effective mentor for trainees interested in other aspects of rheumatologic research. The K24 award has been critical in the establishment a clinical research training program in the Section of Rheumatology. We now have a systematic approach to help trainees at various levels develop an individualized development plan, engage in the appropriate didactic and experiential research activities and monitor their progression towards their specific goals. Trainees who have already undergone basic training have the opportunity to take more advanced courses and to obtain a Masters' degree in Health Sciences or PhD in Investigative Medicine. Newly acquired resources include The Yale Patient-Centered Outcomes Research Scholars Program interdisciplinary mentored K12 career development program funded by AHRQ, which focuses on developing investigators with an interest in comparative effectiveness research methods. The Rheumatology POR training program includes formal processes for evaluation of both trainees and mentors. Based on our experience over the past four years, we will initiate several important changes to improve the program including advancing didactic training to the first year of fellowship, decreasing fellows' clinical responsibilities during their second year of fellowship, and adding two activitie: 1) peer led review of essential skills (e.g., development of specific aims, abstract presentations) and 2) formal grant mock reviews. In addition to mentoring young investigators, one of my important long-term goals is to advance my own research agenda so that I can continue to conduct scientifically rigorous and meaningful POR. Over the past four years, I have published papers which highlight the consequences of poor decision making in clinical practice, describe the differences in how patients and physicians approach critical decisions, and demonstrate the efficacy of a theory-based decision support tool in a randomized controlled trial. My recent work has also demonstrated the limitations associated with reporting preferences in the aggregate and the impact of low numeracy on risk perceptions. My goals during the next phase of my career are to develop better methods to 1) measure and report heterogeneity in patient preferences, and 2) develop novel approaches to effectively communicate risk-benefit information to patients by obtaining further training and conducting novel research.