Technology Enhanced Self-Management Interventions for Fatigue and Pain: The Symptoms Self Management Center

技术增强疲劳和疼痛的自我管理干预措施：症状自我管理中心

• 批准号: 9321923
• 负责人: Teresa J Kelechi
• 金额: $ 37.29万
• 依托单位: MEDICAL UNIVERSITY OF SOUTH CAROLINA
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-07-27 至 2021-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9321923
• 关键词: Area; Award; Chronic Disease; Clinical Sciences; Collaborations; Communities; Development; Discipline of Nursing; Disease; Early identification; Enhancement Technology; Evaluation; Fatigue; Funding; Goals; Health; Health Technology; Interdisciplinary Study; Internet; Intervention; Laboratories; Letters; Life Style; Long-Term Survivors; Longevity; Medical; Mentorship; Nurses; Nursing Faculty; Outcome Measure; Pain; Patient Recruitments; Patients; Pilot Projects; Predictive Analytics; Process; Research; Research Infrastructure; Research Personnel; Resources; Risk; Scientist; Self Management; South Carolina; Symptoms; Technology; Time; Translational Research; United States National Institutes of Health; Universities; base; behavior influence; biomedical informatics; college; community partnership; community setting; cost effective; design; eHealth; experience; family management; improved; iterative design; mHealth; novel; pain symptom; patient oriented; personalized intervention; programs; symptom self management; therapy design; therapy development

PROJECT SUMMARY/ABSTRACT – OVERALL COMPONENT The primary goal of the Symptoms Self Management Center (SSMC) is to provide the infrastructure and context for nurse scientists who will: identify groups of patients, who are at risk for chronic disease symptom exacerbation in the areas of fatigue and pain through cutting edge biomedical informatics; develop scalable and sustainable technology-enhanced self management interventions that are accessible to these patients through iterative, patient-centered design approaches; and evaluate these interventions in real world community settings through established community engaged research partnerships. To achieve these goals, the Medical University of South Carolina (MUSC) College of Nursing (CON) will leverage our developed expertise and collaborative partnerships in three areas: Biomedical Informatics Technology-Enhanced Self- Management Interventions, and Community-Engaged Research. Importantly, MUSC is the recipient of an NIH Clinical and Translational Science Award through which Cores in each of these three areas are funded. The Directors of 2 of these 3 Cores are CON faculty. Our CTSA Director, Dr. Kathleen Brady (see letter of support) has made these Cores and additional research infrastructure available to MUSC Center Awards such as the P20 proposed here. Thus, we will leverage these resources to achieve the following specific aims: AIM 1: To strengthen the infrastructure within which emerging investigators in self management interventions can collaborate with biomedical informaticists to use predictive analytic strategies to target and recruit patients suffering from symptoms of fatigue and pain, across a variety of disorders in the early stages of symptom development. AIM 2: To provide instrumental support for junior and experienced investigators to collaborate with ehealth, mhealth, and web health design experts from the MUSC Technology Applications for Healthful Lifestyles (TACHL) health-technology center to iteratively design patient centered, technology enhanced self and self/family management interventions. AIM 3: To build upon the existing community based infrastructure that facilitates enhanced access to, and relationships with community partners to develop ecologically valid, natural community laboratories that would otherwise not be feasible to create in the typically short time frame afforded pilot projects.

项目概要/摘要 – 总体组成部分 症状自我管理中心 (SSMC) 的主要目标是提供基础设施 以及护士科学家的背景，他们将：识别有慢性病风险的患者群体 通过尖端的生物医学信息学，缓解疲劳和疼痛方面的症状恶化；发展 这些人可以利用可扩展且可持续的技术增强自我管理干预措施 通过迭代、以患者为中心的设计方法来照顾患者；并在现实世界中评估这些干预措施 通过建立社区参与的研究伙伴关系来进行社区设置。为了实现这些目标， 南卡罗来纳医科大学 (MUSC) 护理学院 (CON) 将利用我们开发的 三个领域的专业知识和合作伙伴关系：生物医学信息学技术增强的自我 管理干预和社区参与的研究。重要的是，MUSC 是 NIH 的接受者 临床和转化科学奖通过该奖资助这三个领域的核心项目。这 这 3 个核心课程中有 2 个课程的主任是 CON 教员。我们的 CTSA 主任 Kathleen Brady 博士（参见支持信） 已将这些核心和其他研究基础设施提供给 MUSC 中心奖项，例如 这里提出了P20。因此，我们将利用这些资源来实现以下具体目标： 目标 1：加强新兴研究者自我管理的基础设施 干预措施可以与生物医学信息学家合作，使用预测分析策略来瞄准和 招募患有疲劳和疼痛症状的患者，这些患者患有多种疾病的早期阶段 症状的发展。 目标 2：为初级和经验丰富的研究人员合作提供工具支持 来自 MUSC 健康技术应用的电子健康、移动健康和网络健康设计专家 Lifestyles (TACHL) 健康技术中心迭代设计以患者为中心，技术增强自我 以及自我/家庭管理干预措施。 目标 3：以现有社区为基础的基础设施为基础，促进增强访问、 以及与社区合作伙伴的关系，以开发生态有效的自然社区实验室 否则，在通常较短的时间内创建试点项目是不可行的。