Technology Enhanced Self-Management Interventions for Fatigue and Pain: The Symptoms Self Management Center

技术增强疲劳和疼痛的自我管理干预措施：症状自我管理中心

• 批准号: 9187327
• 负责人: Teresa J Kelechi
• 金额: $ 37.29万
• 依托单位: MEDICAL UNIVERSITY OF SOUTH CAROLINA
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-07-27 至 2021-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9187327
• 关键词: Area; Award; Chronic Disease; Clinical Sciences; Collaborations; Communities; Development; Discipline of Nursing; Disease; Early identification; Evaluation; Fatigue; Funding; Goals; Health; Health Technology; Interdisciplinary Study; Internet; Intervention; Laboratories; Letters; Life Style; Long-Term Survivors; Longevity; Medical; Mentorship; Nurses; Nursing Faculty; Outcome Measure; Pain; Patients; Pilot Projects; Predictive Analytics; Process; Recruitment Activity; Research; Research Infrastructure; Research Personnel; Resources; Risk; Scientist; Self Management; South Carolina; Staging; Symptoms; Technology; Time; Translational Research; United States National Institutes of Health; Universities; abstracting; base; behavior influence; biomedical informatics; college; community intervention; community partnership; community setting; cost effective; design; eHealth; experience; family management; improved; mHealth; novel; patient oriented; personalized intervention; programs; symptom self management; therapy design; therapy development

PROJECT SUMMARY/ABSTRACT – OVERALL COMPONENT The primary goal of the Symptoms Self Management Center (SSMC) is to provide the infrastructure and context for nurse scientists who will: identify groups of patients, who are at risk for chronic disease symptom exacerbation in the areas of fatigue and pain through cutting edge biomedical informatics; develop scalable and sustainable technology-enhanced self management interventions that are accessible to these patients through iterative, patient-centered design approaches; and evaluate these interventions in real world community settings through established community engaged research partnerships. To achieve these goals, the Medical University of South Carolina (MUSC) College of Nursing (CON) will leverage our developed expertise and collaborative partnerships in three areas: Biomedical Informatics Technology-Enhanced Self- Management Interventions, and Community-Engaged Research. Importantly, MUSC is the recipient of an NIH Clinical and Translational Science Award through which Cores in each of these three areas are funded. The Directors of 2 of these 3 Cores are CON faculty. Our CTSA Director, Dr. Kathleen Brady (see letter of support) has made these Cores and additional research infrastructure available to MUSC Center Awards such as the P20 proposed here. Thus, we will leverage these resources to achieve the following specific aims: AIM 1: To strengthen the infrastructure within which emerging investigators in self management interventions can collaborate with biomedical informaticists to use predictive analytic strategies to target and recruit patients suffering from symptoms of fatigue and pain, across a variety of disorders in the early stages of symptom development. AIM 2: To provide instrumental support for junior and experienced investigators to collaborate with ehealth, mhealth, and web health design experts from the MUSC Technology Applications for Healthful Lifestyles (TACHL) health-technology center to iteratively design patient centered, technology enhanced self and self/family management interventions. AIM 3: To build upon the existing community based infrastructure that facilitates enhanced access to, and relationships with community partners to develop ecologically valid, natural community laboratories that would otherwise not be feasible to create in the typically short time frame afforded pilot projects.

项目摘要/摘要--总体构成部分 症状自我管理中心(SSMC)的主要目标是提供基础设施 以及护士科学家的背景：识别有慢性病风险的患者群体 通过尖端生物医学信息学在疲劳和疼痛领域的症状恶化；发展 可扩展和可持续的技术增强型自我管理干预措施，可供 通过迭代的、以患者为中心的设计方法；并在现实世界中评估这些干预措施 通过已建立的社区参与研究伙伴关系建立社区环境。为了实现这些目标， 南卡罗来纳医科大学(MUSC)护理学院(CON)将利用我们开发的 三个领域的专门知识和协作伙伴关系：生物医学信息学技术--自我增强 管理干预和社区参与研究。重要的是，MUSC是NIH的接受者 临床和转化科学奖，通过该奖项为这三个领域的核心提供资金。这个 这三个核心中有两个的董事是CON教职员工。我们的CTSA主任凯瑟琳·布雷迪博士(见支持信) 已将这些核心和额外的研究基础设施提供给MUSC中心奖，如 P20在这里提出。因此，我们将利用这些资源实现以下具体目标： 目标1：加强新调查员自我管理的基础设施 干预措施可以与生物医学信息学家合作，使用预测性分析策略来针对和 招募有疲劳和疼痛症状的患者，在早期阶段跨越各种障碍 症状发展。 目标2：为初级和有经验的调查人员提供工具支持，以便与之合作 来自MUSC技术应用程序的eHealth、mHealth和网络健康设计专家 Lifestyle(TACHL)健康技术中心，反复设计以患者为中心，技术增强的自我 和自我/家庭管理干预。 目标3：在现有社区基础设施的基础上，促进更好地获取、 并与社区合作伙伴建立关系，以开发生态有效的自然社区实验室 否则，在通常较短的时间框架内创建试点项目是不可行的。