Health System Integration of Tools to Improve Primary Care for Autistic Adults
卫生系统整合工具以改善自闭症成人的初级保健
基本信息
- 批准号:9214259
- 负责人:
- 金额:$ 35.11万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2017
- 资助国家:美国
- 起止时间:2017-01-01 至 2018-12-31
- 项目状态:已结题
- 来源:
- 关键词:Accident and Emergency departmentAdministratorAdultAdvocacyAffectAttentionAutistic DisorderAwarenessCaringClinicCluster randomized trialCommunicationComplexComputerized Medical RecordDataData CollectionDevelopmental DisabilitiesEducationEffectivenessEvaluationFundingFutureHealthHealth PersonnelHealth systemHealthcareHealthcare SystemsHeterogeneityHybridsInterpersonal RelationsInterventionMeasuresMethodsModelingNational Institute of Mental HealthNavigation SystemOutcomePatientsPilot ProjectsPopulationPreparationPreventive servicePrimary Health CareProcessProtocols documentationProviderPsychometricsRandomizedReadinessRecommendationRecruitment ActivityReportingResearchResourcesSelf EfficacySeriesServicesSystemSystems IntegrationTestingTrainingVisitWorkautistic childrencommunity based participatory researchcommunity partnershipdesignexecutive functionexperienceflexibilityhealth care disparityhealth care qualityhealth care servicehealth care service utilizationimplementation trialimprovedinstrumentlow socioeconomic statuspost interventionprogramssatisfactionskillsstemsuccesstooltrial design
项目摘要
Abstract:
The health system is ill-equipped to meet the needs of autistic adults. Our prior work has identified significant
healthcare disparities experienced by autistic adults, including greater unmet healthcare needs, lower use of
preventive services, and greater use of the Emergency Department (ED). A majority of primary care providers
(PCPs) lack the skills needed to care for autistic adults, yet competing priorities make it unlikely they will attend
trainings on autism. The heterogeneity of the autism spectrum may also make it challenging for PCPs to
understand specific patients’ needs. The Academic Autism Spectrum Partnership in Research and Education
(AASPIRE), an academic-community partnership comprised of academics, autistic adults, healthcare
providers, and supporters, has used a community based participatory research (CBPR) approach to develop
and test an online healthcare toolkit aimed at improving primary care services for autistic adults. It was
specifically designed as a low-intensity, sustainable intervention that can realistically be used in busy primary
care practices that do not have a special focus on autism or other developmental disabilities. The toolkit
includes the Autism Healthcare Accommodations Tool (AHAT)--an automated tool which allows patients and/or
their supporters to create a personalized accommodations report for their PCP--and other targeted resources,
worksheets, checklists, and information. Our pilot work has demonstrated that the AHAT has strong construct
validity and test-retest stability, the toolkit is highly acceptable and accessible, and it has the potential to
decrease barriers to care and increase patient-provider communication. Our long-term plan is to conduct a
hybrid effectiveness-implementation trial, using a cluster randomized trial design, both to test the effectiveness
of the AASPIRE Healthcare Toolkit in improving healthcare quality and utilization and to assess the utility of
implementation strategies in diverse healthcare systems. The objective of this proposal is to use a CBPR
approach to understand how to integrate the toolkit into these health systems, collect more robust efficacy
data, and explore potential mechanisms of action. We will do so by conducting a 6-month pilot study with
patients assigned to intervention and control clinics in three diverse health systems. We will meet our
objectives by achieving the following specific aims: 1) to determine how to integrate use of the toolkit within
diverse health systems; 2) to test the effect of the toolkit on short-term healthcare outcomes; 3) to use a mixed-
methods approach to further explore the toolkit’s mechanisms of action; and 4) to refine our recruitment,
retention, data collection, and system integration strategies in preparation for the larger cluster-randomized
trial. Successful integration of this easily scalable and sustainable low-intensity intervention into primary care
practices within diverse health systems will empower patients and providers to work together to improve health
outcomes for a large, underserved, and understudied population with great barriers to care.
文摘:
项目成果
期刊论文数量(0)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
数据更新时间:{{ journalArticles.updateTime }}
{{
item.title }}
{{ item.translation_title }}
- DOI:
{{ item.doi }} - 发表时间:
{{ item.publish_year }} - 期刊:
- 影响因子:{{ item.factor }}
- 作者:
{{ item.authors }} - 通讯作者:
{{ item.author }}
数据更新时间:{{ journalArticles.updateTime }}
{{ item.title }}
- 作者:
{{ item.author }}
数据更新时间:{{ monograph.updateTime }}
{{ item.title }}
- 作者:
{{ item.author }}
数据更新时间:{{ sciAawards.updateTime }}
{{ item.title }}
- 作者:
{{ item.author }}
数据更新时间:{{ conferencePapers.updateTime }}
{{ item.title }}
- 作者:
{{ item.author }}
数据更新时间:{{ patent.updateTime }}
Christina M Nicolaidis其他文献
Christina M Nicolaidis的其他文献
{{
item.title }}
{{ item.translation_title }}
- DOI:
{{ item.doi }} - 发表时间:
{{ item.publish_year }} - 期刊:
- 影响因子:{{ item.factor }}
- 作者:
{{ item.authors }} - 通讯作者:
{{ item.author }}
{{ truncateString('Christina M Nicolaidis', 18)}}的其他基金
Measuring Health, Function, and Social Well-being in Adults on the Autism Spectrum
测量自闭症谱系成人的健康、功能和社会福祉
- 批准号:
10532190 - 财政年份:2020
- 资助金额:
$ 35.11万 - 项目类别:
Measuring Health, Function, and Social Well-being in Adults on the Autism Spectrum
测量自闭症谱系成人的健康、功能和社会福祉
- 批准号:
10454510 - 财政年份:2020
- 资助金额:
$ 35.11万 - 项目类别:
Measuring Health, Function, and Social Well-being in Adults on the Autism Spectrum
测量自闭症谱系成人的健康、功能和社会福祉
- 批准号:
10304167 - 财政年份:2020
- 资助金额:
$ 35.11万 - 项目类别:
Partnering with Autistic Adults to Develop Tools to Improve Primary Healthcare
与自闭症成人合作开发改善初级医疗保健的工具
- 批准号:
8191972 - 财政年份:2011
- 资助金额:
$ 35.11万 - 项目类别:
Partnering with Autistic Adults to Develop Tools to Improve Primary Healthcare
与自闭症成人合作开发改善初级医疗保健的工具
- 批准号:
8636624 - 财政年份:2011
- 资助金额:
$ 35.11万 - 项目类别:
Partnering with Autistic Adults to Develop Tools to Improve Primary Healthcare
与自闭症成人合作开发改善初级医疗保健的工具
- 批准号:
8268356 - 财政年份:2011
- 资助金额:
$ 35.11万 - 项目类别:
CBPR to Improve Depression Care for African-American Domestic Violence Survivors
CBPR 改善非裔美国家庭暴力幸存者的抑郁症护理
- 批准号:
7532384 - 财政年份:2008
- 资助金额:
$ 35.11万 - 项目类别:
CBPR to Improve Depression Care for African-American Domestic Violence Survivors
CBPR 改善非裔美国家庭暴力幸存者的抑郁症护理
- 批准号:
7635830 - 财政年份:2008
- 资助金额:
$ 35.11万 - 项目类别:
Developing an Abuse-Sensitive Depression Care Model
开发对虐待敏感的抑郁症护理模式
- 批准号:
7002316 - 财政年份:2005
- 资助金额:
$ 35.11万 - 项目类别:
Developing an Abuse-Sensitive Depression Care Model
开发对虐待敏感的抑郁症护理模式
- 批准号:
7538402 - 财政年份:2005
- 资助金额:
$ 35.11万 - 项目类别:
相似海外基金
EAGER: Toward a Decentralized Cross-administrator Zone Management System: Policy and Technology
EAGER:走向去中心化的跨管理员区域管理系统:政策和技术
- 批准号:
2331936 - 财政年份:2023
- 资助金额:
$ 35.11万 - 项目类别:
Standard Grant
COLLABORATIVE RESEARCH: Social Influence in Eyewitness Identification Procedures: Do Blind Administrator Behaviors Magnify the Effects of Suspect Bias?
合作研究:目击者识别程序中的社会影响:盲目的管理员行为是否会放大嫌疑人偏见的影响?
- 批准号:
2043230 - 财政年份:2021
- 资助金额:
$ 35.11万 - 项目类别:
Continuing Grant
COLLABORATIVE RESEARCH: Social Influence in Eyewitness Identification Procedures: Do Blind Administrator Behaviors Magnify the Effects of Suspect Bias?
合作研究:目击者识别程序中的社会影响:盲目的管理员行为是否会放大嫌疑人偏见的影响?
- 批准号:
2043334 - 财政年份:2021
- 资助金额:
$ 35.11万 - 项目类别:
Continuing Grant
Making of the base for patient safety management skill of visiting nurse administrator by the web conference system
利用网络会议系统构建出诊护士管理者患者安全管理技能基础
- 批准号:
19K10768 - 财政年份:2019
- 资助金额:
$ 35.11万 - 项目类别:
Grant-in-Aid for Scientific Research (C)
Development of the nursing administrator training program to improve leadership behavior focused on emotional intelligence
制定护理管理人员培训计划,以改善以情商为重点的领导行为
- 批准号:
18K17464 - 财政年份:2018
- 资助金额:
$ 35.11万 - 项目类别:
Grant-in-Aid for Early-Career Scientists
Automated Network Management that Dynamically Reflects Administrator Intent
动态反映管理员意图的自动化网络管理
- 批准号:
18K18038 - 财政年份:2018
- 资助金额:
$ 35.11万 - 项目类别:
Grant-in-Aid for Early-Career Scientists
Administrator support perceived as useful for professional growth by novice psychiatric home-visit nursing staff
新手精神科家访护理人员认为管理员支持对专业成长有用
- 批准号:
17H07005 - 财政年份:2017
- 资助金额:
$ 35.11万 - 项目类别:
Grant-in-Aid for Research Activity Start-up
The Facts and Problems on Management of Public Museums: Validation of Designated Administrator System
公共博物馆管理的事实与问题:指定管理员制度的验证
- 批准号:
17K01212 - 财政年份:2017
- 资助金额:
$ 35.11万 - 项目类别:
Grant-in-Aid for Scientific Research (C)
A Study on Transformation of the School Administrator Preparation and Evaluation System in the United States
美国学校管理人员培养与评价体系转型研究
- 批准号:
26780449 - 财政年份:2014
- 资助金额:
$ 35.11万 - 项目类别:
Grant-in-Aid for Young Scientists (B)
The Family Court's Supervision of Property Administrator
家庭法院对财产管理人的监督
- 批准号:
26380108 - 财政年份:2014
- 资助金额:
$ 35.11万 - 项目类别:
Grant-in-Aid for Scientific Research (C)














{{item.name}}会员




