Mobile Device Support for Sickle Cell Disease Care in Nigeria

尼日利亚镰状细胞病护理的移动设备支持

• 批准号: 9341740
• 负责人: Stephen Obaro
• 金额: $ 17.64万
• 依托单位: UNIVERSITY OF NEBRASKA MEDICAL CENTER
• 依托单位国家: 美国
• 财政年份: 2017
• 资助国家: 美国
• 起止时间: 2017-09-15 至 2019-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9341740
• 关键词: 5 year old; Address; Adolescence; Adult; Affect; Africa; Africa South of the Sahara; African; Applications Grants; Bacteremia; Bacteria; Bacterial Infections; Bedside Testings; Biomedical Engineering; Blood Transfusion; Car Phone; Caring; Categories; Child; Childhood; Chronic Disease; Cities; Clinic; Communicable Diseases; Communities; Country; Data; Databases; Development; Devices; Diagnosis; Early Diagnosis; Epidemiologic Monitoring; Epidemiology; Erythrocytes; Europe; Frequencies; Genes; Goals; Gold; Healthcare; Hematology; Hereditary Disease; High Pressure Liquid Chromatography; Home environment; Improve Access; Income; Incubators; Individual; Infant; Infection; Inherited; International; Internet; Life; Location; Morbidity - disease rate; Neonatal Screening; Newborn Infant; Nigeria; Outcome; Parents; Patient Care; Patients; Performance; Persons; Phase; Phonation; Population; Prevalence; Prevention; Preventive care; Quality of Care; Quality of life; Reporting; Resources; Risk; Sampling; Services; Sickle Cell Anemia; Specialist; State Government; Structure; Surveillance Program; Technology; Telephone; Testing; Time; Transact; United States; Vaccines; base; burden of illness; digital; disease diagnosis; evidence base; handheld mobile device; hydroxyurea; improved; mHealth; mortality; national surveillance; novel; point of care; point-of-care diagnostics; programs; scale up; screening; statistics; tool; transmission process

ABSTRACT Nigeria is the most populous country in sub Saharan Africa and provides the largest telecommunication market in Africa, with over 100 million phone lines and over 85% of urban dwellers having at least one personal phone. These phone lines are widely deployed for making financial transactions, browsing the internet and recording daily activities. There remains, however, a huge gap in harnessing this technology for improving health care of the population. With an estimated annual delivery of over 150, 000 newborn babies with Sickle Cell Disease (SCD), Nigeria is home to the largest number of children affected by this condition, globally. In this application, we propose the use of mobile electronic platforms to improve diagnosis and tracking of children with SCD at a location with the highest disease burden in the country. From our established platform for surveillance for serious bacterial infections in young children, we have confirmed the contribution of SCD to morbidity and mortality at this location. Using this platform we will evaluate a new point-of-care diagnostic with digital transmission of results to a central database and cellphones for subject tracking to improve the turnaround time for diagnosis, specialist clinic registration and subject tracking with the ultimate goal of providing a platform that can be scaled up for a robust national surveillance program for SCD care.

抽象的 尼日利亚是撒哈拉以南非洲人口最多的国家，提供最大的电信服务 非洲市场​​拥有超过 1 亿条电话线，超过 85% 的城市居民至少拥有一条 个人电话。这些电话线广泛用于进行金融交易、浏览 上网并记录日常活动。然而，利用这项技术仍然存在巨大差距 以改善人民的医疗保健。 估计每年有超过 150, 000 名患有镰状细胞病 (SCD) 的新生儿出生， 尼日利亚是全球受这种疾病影响的儿童数量最多的国家。在这个应用程序中， 我们建议使用移动电子平台来改善对患有此类疾病的儿童的诊断和跟踪 SCD 位于该国疾病负担最高的地区。 从我们建立的幼儿严重细菌感染监测平台中，我们已经 证实了 SCD 对该地区发病率和死亡率的影响。利用这个平台我们将 通过将结果数字传输到中央数据库来评估新的护理点诊断，以及 用于受试者跟踪的手机，以缩短诊断、专科诊所注册的周转时间 和主题跟踪，最终目标是提供一个可以扩展的平台，以实现强大的 国家 SCD 护理监测计划。