CAMPBELL Administrative Core: Muscular Dystrophy Cooperative Research Center

坎贝尔行政核心：肌营养不良症合作研究中心

• 批准号: 9108456
• 负责人: KEVIN P. CAMPBELL
• 金额: $ 14.85万
• 依托单位: UNIVERSITY OF IOWA
• 依托单位国家: 美国
• 财政年份: 2005
• 资助国家: 美国
• 起止时间: 2005-06-08 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/9108456
• 关键词: Administrator; Advisory Committees; Area; Budgets; Collaborations; Communication; Community Outreach; Consultations; Development; Enrollment; Environment; Event; Family; Future; Housing; Human Resources; International; Internships; Iowa; Laboratories; Limb-Girdle Muscular Dystrophies; Medical Students; Muscular Dystrophies; Natural History; Neuromuscular Diseases; Patients; Postdoctoral Fellow; Preparation; Productivity; Recruitment Activity; Research; Research Personnel; Research Project Grants; Resources; Schedule; United States; Universities; dystroglycanopathy; meetings; member; symposium; undergraduate research; user-friendly; web site

PROJECT SUMMARY The Administrative Core of the Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center will coordinate the activities within and outside the Center, as well as promote an interactive and collaborative research environment. The administrative responsibilities of Core A include the following: organization of the flow of project information; distribution of research effort; allocation of budgetary and other resources; preparation of annual budgets and projections; scheduling and facilitation of monthly Neuromuscular Disease Conference meetings; promotion and coordination of community outreach projects (including the annual Patient and Family Conference); and consultation with the Dean regarding progress, scientific direction, administrative issues and concerns, and future plans. The scientific responsibilities of Core A include the following: integration, coordination, and direction of research projects as needed; consultation with advisors and consultants concerning the importance and progress of Center research relative to other developments in the area of muscular dystrophy; identification of seminar speakers and coordination of their participation and contributions to the Center; and hosting of an annual family conference for patients and their families. This core will also facilitate expansion of our collaboration with national and international leaders in the field of congenital/limb-girdle muscular dystrophy, particularly researchers and clinicians at other Wellstone Centers throughout the United States. The Core A Administrator will coordinate an annual open house for the Muscular Dystrophy Association branch in Cedar Rapids, Iowa, at which seminars are held for approximately 100 patients/families; these describe current and planned research, as well as advancements in understanding and treating muscular dystrophy. The Administrator is also responsible for coordinating the Wellstone Steering Committee Face-to-Face Meeting when this is hosted by the University of Iowa, coordinating both the patient and family tours and the meetings among Core Directors and Project Leaders that take place during this event.

项目摘要 参议员保罗·D.威尔斯通肌肉营养不良合作研究 中心将协调中心内外的活动，并促进互动和 合作研究环境。核心A的行政职责包括： 项目信息流的组织;研究工作的分配;预算和 其他资源;编制年度预算和预测;安排和协助每月 神经肌肉疾病会议;促进和协调社区外展项目 （包括年度患者和家属会议）;并与院长就进展情况进行磋商， 科学方向、行政问题和关切以及未来计划。科学责任 核心A包括以下内容：根据需要整合、协调和指导研究项目; 就中心研究的重要性和进展与顾问和顾问进行磋商 相对于肌肉萎缩症领域的其他发展;确定研讨会发言人和 协调他们对中心的参与和贡献;并主办年度家庭会议 为患者及其家属举行的会议。这一核心还将促进我们与 先天性/肢带型肌营养不良症领域的国家和国际领导人，特别是 美国其他Wellstone中心的研究人员和临床医生。核A 管理员将协调在雪松肌肉营养不良协会分支的年度开放日 急流，爱荷华州，在那里为大约100名患者/家庭举办研讨会;这些研讨会描述了目前的 和计划的研究，以及在理解和治疗肌肉萎缩症的进展。的 管理员还负责协调Wellstone指导委员会面对面会议 当这是由爱荷华州大学主办，协调双方的病人和家庭图尔斯和 在此活动期间举行的核心董事和项目负责人会议。