CAMPBELL Administrative Core: Muscular Dystrophy Cooperative Research Center

坎贝尔行政核心：肌营养不良症合作研究中心

• 批准号: 9108456
• 负责人: KEVIN P. CAMPBELL
• 金额: $ 14.85万
• 依托单位: UNIVERSITY OF IOWA
• 依托单位国家: 美国
• 财政年份: 2005
• 资助国家: 美国
• 起止时间: 2005-06-08 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/9108456
• 关键词: Administrator; Advisory Committees; Area; Budgets; Collaborations; Communication; Community Outreach; Consultations; Development; Enrollment; Environment; Event; Family; Future; Housing; Human Resources; International; Internships; Iowa; Laboratories; Limb-Girdle Muscular Dystrophies; Medical Students; Muscular Dystrophies; Natural History; Neuromuscular Diseases; Patients; Postdoctoral Fellow; Preparation; Productivity; Recruitment Activity; Research; Research Personnel; Research Project Grants; Resources; Schedule; United States; Universities; dystroglycanopathy; meetings; member; symposium; undergraduate research; user-friendly; web site

PROJECT SUMMARY The Administrative Core of the Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center will coordinate the activities within and outside the Center, as well as promote an interactive and collaborative research environment. The administrative responsibilities of Core A include the following: organization of the flow of project information; distribution of research effort; allocation of budgetary and other resources; preparation of annual budgets and projections; scheduling and facilitation of monthly Neuromuscular Disease Conference meetings; promotion and coordination of community outreach projects (including the annual Patient and Family Conference); and consultation with the Dean regarding progress, scientific direction, administrative issues and concerns, and future plans. The scientific responsibilities of Core A include the following: integration, coordination, and direction of research projects as needed; consultation with advisors and consultants concerning the importance and progress of Center research relative to other developments in the area of muscular dystrophy; identification of seminar speakers and coordination of their participation and contributions to the Center; and hosting of an annual family conference for patients and their families. This core will also facilitate expansion of our collaboration with national and international leaders in the field of congenital/limb-girdle muscular dystrophy, particularly researchers and clinicians at other Wellstone Centers throughout the United States. The Core A Administrator will coordinate an annual open house for the Muscular Dystrophy Association branch in Cedar Rapids, Iowa, at which seminars are held for approximately 100 patients/families; these describe current and planned research, as well as advancements in understanding and treating muscular dystrophy. The Administrator is also responsible for coordinating the Wellstone Steering Committee Face-to-Face Meeting when this is hosted by the University of Iowa, coordinating both the patient and family tours and the meetings among Core Directors and Project Leaders that take place during this event.

项目总结 参议员保罗·D·威尔斯通的行政核心--肌营养不良症合作研究 中心将协调中心内外的活动，并促进互动和 协作研究环境。核心A的行政职责包括： 项目信息流的组织；研究成果的分配；预算和资金的分配 其他资源；编制年度预算和预测；安排和促进每月 神经肌肉疾病会议；促进和协调社区外展项目 (包括一年一度的病人和家庭会议)；与院长协商进展情况， 科学方向、行政问题和关注事项以及未来计划。人类的科学责任 核心A包括：根据需要整合、协调和指导研究项目； 就中心研究的重要性和进展与顾问和顾问进行磋商 关于肌营养不良领域的其他发展；确定研讨会发言者和 协调他们的参与和对中心的贡献；并主办一年一度的家庭 为患者及其家属召开的会议。这一核心还将促进我们与 在先天性/四肢带状肌营养不良领域的国内和国际领导者，特别是 美国其他韦尔斯通中心的研究人员和临床医生。核心A 管理员将协调雪松肌肉营养不良协会分会的年度开放参观活动 爱荷华州拉皮兹，在那里为大约100名患者/家庭举办研讨会；这些描述了目前 以及有计划的研究，以及在理解和治疗肌肉营养不良方面的进展。这个 管理员还负责协调Wellstone指导委员会面对面的会议 当这是由爱荷华大学主办的，协调患者和家人的旅行以及 在本次活动期间举行的核心董事和项目负责人之间的会议。