Core A: Administrative Core

核心A项目摘要 参议员保罗·D. Wellstone肌营养不良专科 研究中心（MDSRC）将协调中心内外的活动，以及 促进互动和协作的研究环境。行政 核心A的职责包括：组织项目信息流; 研究工作的分配;预算和其他资源的分配;年度报告的编制 预算和预测;安排和促进每月Wellstone神经肌肉 会议;促进和协调社区外联项目（包括 年度病人和家属会议）;和咨询的大学院长 爱荷华州卡弗医学院关于进展，科学方向，行政问题 以及未来的计划。核心A的科学责任包括： 根据需要整合、协调和指导研究项目;与 关于中心研究相对于其他研究的重要性和进展的顾问 肌肉萎缩症领域的发展;确定研讨会发言人， 协调它们对中心的参与和贡献;以及主办一次年度会议， 为患者及其家属举行的会议。这一核心也将促进我们的 与先天性和肢带领域的国家和国际领导人合作 肌营养不良，特别是其他Wellstone中心的研究人员和临床医生 遍布美国。中心管理员还负责协调 井石指导委员会面对面会议时，这是由大学主办的 爱荷华州，协调患者和家属的图尔斯之旅以及核心主管之间的会议 和项目领导人在此期间发生。

Core A Project Summary The Administrative Core of the Senator Paul D. Wellstone Muscular Dystrophy Specialized Research Center (MDSRC) will coordinate the activities within and outside the Center, as well as promote an interactive and collaborative research environment. The administrative responsibilities of Core A include the following: organization of the flow of project information; distribution of research effort; allocation of budgetary and other resources; preparation of annual budgets and projections; scheduling and facilitation of monthly Wellstone Neuromuscular Conference meetings; promotion and coordination of community outreach projects (including the annual Patient and Family Conference); and consultation with the Dean of the University of Iowa Carver College of Medicine regarding progress, scientific direction, administrative issues and concerns, and future plans. The scientific responsibilities of Core A include the following: integration, coordination, and direction of research projects as needed; consultation with advisors concerning the importance and progress of Center research relative to other developments in the area of muscular dystrophy; identification of seminar speakers and coordination of their participation and contributions to the Center; and hosting of an annual conference for patients and their families. This Core will also facilitate expansion of our collaboration with national and international leaders in the field of congenital and limb-girdle muscular dystrophies, particularly researchers and clinicians at other Wellstone Centers throughout the United States. The Center Administrator is also responsible for coordinating the Wellstone Steering Committee Face-to-Face Meeting when this is hosted by the University of Iowa, coordinating both the patient and family tours and the meetings among Core Directors and Project Leaders that take place during this event.