Core A: Administrative Core

核心A项目总结 参议员 Paul D. Wellstone 肌肉营养不良症专业的行政核心 研究中心（MDSRC）将协调中心内外的活动，以及 促进互动和协作的研究环境。行政方面 核心 A 的职责包括： 组织项目信息流； 研究工作的分配；预算和其他资源的分配；年度准备 预算和预测；每月 Wellstone 神经肌肉的安排和促进 会议；促进和协调社区外展项目（包括 年度患者及家属会议）；并与大学院长协商 爱荷华卡弗医学院关于进展、科学方向、管理问题 和担忧以及未来的计划。核心 A 的科学职责包括以下内容： 根据需要整合、协调和指导研究项目；咨询 关于中心研究相对于其他研究的重要性和进展的顾问 肌营养不良症领域的进展；确定研讨会发言人以及 协调他们的参与和对中心的贡献；并举办一年一度的 患者及其家属的会议。该核心还将促进我们的扩展 与先天性和肢带领域的国家和国际领导人合作 肌营养不良症，特别是其他 Wellstone 中心的研究人员和临床医生 遍布美国。中心管理员还负责协调 Wellstone 指导委员会面对面会议，由大学主办 爱荷华州，协调患者和家属的旅行以及核心董事之间的会议 以及本次活动期间发生的项目负责人。

Core A Project Summary The Administrative Core of the Senator Paul D. Wellstone Muscular Dystrophy Specialized Research Center (MDSRC) will coordinate the activities within and outside the Center, as well as promote an interactive and collaborative research environment. The administrative responsibilities of Core A include the following: organization of the flow of project information; distribution of research effort; allocation of budgetary and other resources; preparation of annual budgets and projections; scheduling and facilitation of monthly Wellstone Neuromuscular Conference meetings; promotion and coordination of community outreach projects (including the annual Patient and Family Conference); and consultation with the Dean of the University of Iowa Carver College of Medicine regarding progress, scientific direction, administrative issues and concerns, and future plans. The scientific responsibilities of Core A include the following: integration, coordination, and direction of research projects as needed; consultation with advisors concerning the importance and progress of Center research relative to other developments in the area of muscular dystrophy; identification of seminar speakers and coordination of their participation and contributions to the Center; and hosting of an annual conference for patients and their families. This Core will also facilitate expansion of our collaboration with national and international leaders in the field of congenital and limb-girdle muscular dystrophies, particularly researchers and clinicians at other Wellstone Centers throughout the United States. The Center Administrator is also responsible for coordinating the Wellstone Steering Committee Face-to-Face Meeting when this is hosted by the University of Iowa, coordinating both the patient and family tours and the meetings among Core Directors and Project Leaders that take place during this event.