"Old" Children of Very Old Parents With Dementia: Distinctive Challenges and Support Needs

患有痴呆症的高龄父母的“年老”孩子：独特的挑战和支持需求

• 批准号: 9714516
• 负责人: Kathrin Boerner
• 金额: $ 11.01万
• 依托单位: UNIVERSITY OF MASSACHUSETTS BOSTON
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-07-01 至 2021-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9714516
• 关键词: Accounting; Address; Administrative Supplement; Adult; Age; Aging; Alzheimer' s Disease; Attention; Behavioral Model; Caregivers; Caring; Characteristics; Child; Child Care; Code; Cognitive; Data; Data Collection; Dementia; Deterioration; Disadvantaged; Eligibility Determination; Emotional; Face; Funding; Goals; Health; Impaired cognition; Individual; Intervention; Interview; Knowledge; Lead; Life; Location; Longevity; Mental Health; Methodology; Methods; Mission; Modeling; Nature; Outcome; Parent-Child Relations; Parents; Participant; Patient Self-Report; Pattern; Personal Satisfaction; Persons; Population; Portraits; Quality of Care; Reporting; Research; Rewards; Risk; Risk Assessment; Sampling; Services; Standardization; Structure; Subgroup; Testing; Time; United States National Institutes of Health; World Health Organization; age group; base; care giving burden; caregiver interventions; caregiving; dementia caregiving; evidence base; experience; functional disability; high risk; insight; knowledge base; member; parent grant; physical conditioning; primary caregiver; programs; public health priorities; recruit; therapy development

Project Summary This Alzheimer's Disease and its related Dementias (AD/ADRD) – focused administrative supplement will build on the aims of the NIA funded parent study, Aging Together: Relationship Dynamics Between the Very Old and Their Old Children (R21 AG054668). The goal of this parent study is to explore the nature and consequences of the very old parent-child relationship and to offer insight into person/dyad-specific characteristics that may be associated with greater risk for poor well-being and care-related outcomes in these dyads. Parent study recruitment focuses on very old parents (age 90+) who are cognitively intact, and their “old” children (age 65+). Preliminary data from this study suggest that the “old” children in our target dyads, even in cases of a very positive relationship, feel challenged in significant ways due to the prolonged caregiving tasks associated with their parents' exceptional longevity. Yet, many of them also express enjoying notable “benefits” of their parents' longevity. These include receiving surprising extents of “downstream” support from their parents, and the extra “life” time together sometimes allows coming to terms with long-standing relationship difficulties. However, “old” children caring for very old parents with dementia may have the disadvantage of missing out on these “benefits of longevity.” Moreover, dementia caregiving is known to be among the most stressful of all caregiving scenarios to begin with. Our central research question thus is how “old” children caring for very old parents with moderate to severe dementia, compared to those with cognitively intact parents, experience support exchanges and challenges/rewards within the parent-child relationship, and how these experiences are associated with their mental and physical health. To pursue this research question, we will add a “booster” sample of 100 children (65+) of very old parents (90+) with moderate to severe dementia. We will conduct an in-depth, semi-structured interview with them that includes both open-ended and standardized self-report assessments of mental and physical health, parent-child relationship quality, support exchanges, and challenges/rewards experienced in this relationship. Our research question will be addressed with the following specific aims: 1) To compare support exchanges and perceived challenges/rewards in very old parent-old child dyads, as reported by “old” children of parents with moderate to severe dementia versus children with cognitively intact parents. 2) To compare how support exchanges and perceived challenges/rewards are associated with the mental and physical health of “old” children with parents who have moderate to severe dementia versus those with cognitively intact parents (accounting for parent functional disability and child caregiving burden). Analysis of mixed-method data will involve qualitative (thematic coding) and quantitative (multivariate; multi- group analyses) methodologies. Supplement study results will have a significant impact because they will allow us to capture a fuller range of experiences and realities that “old” children of very old parents are likely to face.

项目摘要 这种阿尔茨海默病及其相关痴呆症（AD/ADRD）的重点管理补充将 建立在NIA资助的家长研究的目标上，共同衰老：非常老的人之间的关系动态 和他们的老年子女（R21 AG054668）。这项家长研究的目的是探讨 非常古老的亲子关系，并提供深入了解人/二元体的具体特点，可能是 在这些二人组中，与不良健康和护理相关结果的风险更大相关。母研究 招募的重点是认知能力完好的年迈父母（90岁以上）及其"年老"子女（65岁以上）。 这项研究的初步数据表明，在我们的目标二人组中，即使是在非常年轻的情况下， 积极的关系，由于与之相关的长期护理任务而感到受到重大挑战 他们父母的长寿然而，他们中的许多人也表示享受父母的显着“好处” 中心blog这些包括从父母那里获得令人惊讶的"下游"支持，以及额外的 在一起的"生活"时间有时会让我们接受长期存在的关系困难。然而，"老" 照顾患有痴呆症的年迈父母的孩子可能会错过这些"好处"。 长寿”。此外，痴呆症是众所周知的最紧张的所有治疗方案之一 开始。因此，我们的中心研究问题是，"老"孩子如何照顾年迈的父母， 与那些父母认知功能完好的人相比，严重痴呆症患者经历了支持交流， 父母与子女关系中的挑战/奖励，以及这些经历如何与他们的 心理和身体健康。 为了继续这个研究问题，我们将增加一个100名父母年龄很大的孩子（65岁以上）的“助推器”样本 (90+）中度至重度痴呆。我们将对他们进行深入的半结构化访谈， 包括开放式和标准化的自我报告评估的心理和身体健康，父母-孩子 关系质量、支持交换以及在此关系中经历的挑战/奖励。 我们的研究问题将解决以下具体目标：1）比较支持交换 和感知的挑战/奖励，在非常老的父母-老孩子的二人组，由"老"的孩子的父母 中度至重度痴呆的儿童与父母认知功能完好的儿童相比。2)要比较如何支持 交流和感知的挑战/奖励与"老年人"的身心健康有关。 父母患有中度至重度痴呆的儿童与父母认知功能完好的儿童 （考虑到父母功能残疾和子女抚养负担）。 混合方法数据的分析将涉及定性（主题编码）和定量（多变量;多变量）。 组分析）方法。补充研究结果将产生重大影响，因为它们将允许 我们要捕捉更全面的经验和现实，"老"的孩子很老的父母可能会面对。

项目成果

"I'm Getting Older Too": Challenges and Benefits Experienced by Very Old Parents and Their Children.

• DOI: 10.1177/07334648211016113
• 发表时间: 2022-03
• 期刊: Journal of applied gerontology : the official journal of the Southern Gerontological Society
• 作者: Boerner K;Kim YK;Gallagher EA;Kim K;Jopp DS
• 通讯作者: Jopp DS