International Lewy Body Dementia Conference

国际路易体痴呆症会议

• 批准号: 9763238
• 负责人: JAMES Bruce LEVERENZ
• 金额: $ 2万
• 依托单位: CLEVELAND CLINIC LERNER COM-CWRU
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-04-01 至 2020-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9763238
• 关键词: Advocacy; Alzheimer' s Disease; Area; Award; Caregivers; Caring; Clinic; Cognitive; Collaborations; Communities; Complex; Consensus Development; Dementia; Diagnosis; Discipline; Economic Burden; Emotional; Exposure to; Faculty; Family; Family member; Financial Support; Funding; Funding Agency; Goals; Health Professional; Industry; International; Knowledge; Learning; Lewy Body Dementia; Minor; Motor; Nevada; North America; Parkinson Disease; Parkinson' s Dementia; Patient Care; Patients; Policy Maker; Quality of life; Research; Research Methodology; Research Personnel; Scientist; Sleep; Societies; Travel; Underserved Population; Update; Work; brain health; continuing medical education; cost; design; improved; insight; interest; knowledge translation; neuropsychiatry; posters; programs; symposium; training opportunity

ABSTRACT Lewy body dementia (LBD), including dementia with Lewy bodies (DLB) and Parkinson's disease dementia (PDD) is the second most common type of degenerative dementia, and the complex array of cognitive, neuropsychiatric, motor, sleep and autonomic features results in significant emotional and economic burden for patients, families and society in North America and worldwide. While LBD is a minor focus in other international conferences more devoted to Alzheimer's disease and Parkinson's disease, the International DLB Conferences (IDLBC) have been the only conferences have focused on LBD. The previous four DLB focused conferences have had a focus on the developing and updating the DLB criteria, with limited focus on PDD. These conferences have been important opportunities for clinicians, researchers, trainees, caregivers and policy makers from around the world to share knowledge with the goal of improving care for patients, a broader focus for all LBD and for research (versus criteria discussion) is needed. From early 2018 to the present, the Cleveland Clinic Lou Ruvo Center for Brain Health and the Continuing Medical Education office have been planning a June 2019 International Lewy Body Dementia Conference to be held in Las Vegas Nevada. The conference will be organized by LBD clinicians and researchers including Drs. Brad Boeve, Kejal Kantarci, James Leverenz, Ian McKeith, Zoltan Mari, Marwan Sabbagh, and Debby Tsuang, with guidance and support from the Lewy Body Dementia Association. A Patient and Carepartner Program Committee has also been established. The conference programs are being designed to offer attendees an opportunity to learn about a broad spectrum of topics related to LBD and to expand opportunities for investigators and clinicians to share their LBD focused work. Two tracks have been developed: 1) the Scientific Track to transpire over days 1-3, 2) the Patient and Carepartner Track to transpire over days 1 and 2 concurrent with participation in the Scientific Track LBD overview on day 1 and day 3 program. Consistent with theme of increased scientific content, sessions will be focused, except for Day 1 morning, on new research and there will be two days of poster sessions. The patient/care partner track will include opportunities for guided tours of the posters on both Days 1 and 2. The scientific presentations will allow experts from diverse backgrounds to share recent discoveries, insights and opinions; thereby promoting research collaboration, consensuses development, training opportunities, and knowledge translation across disciplines. The concurrent Patient and Care partner Track will provide patients, family members, care partners, clinicians, interested laypersons and representatives from advocacy groups an update on many practical issues relating to diagnosis, management and optimization of quality of life, as well as review the latest research advances and provide opportunities to interact directly with the scientific community. A major point of emphasis for this conference is the inclusion of junior investigators and promoting the participation of under-served populations. Harmonization of DLB research methodology across continents will also be emphasized in a consortium session. It is anticipated that the 2019 conference will attract more than 300 national and international scientific delegates, more than 100 patients and care partners, and representatives from advocacy groups, industry and funding agencies. Although the majority of the necessary funding will come from conference registration, additional external financial support is being sought in order to keep costs reasonable. The specific use of the funds requested in this application is to support registration and travel expenses for i) faculty who have been invited to speak at the Scientific Sessions, and ii) junior researchers (trainees).

摘要 路易体痴呆（Lewy body dementia，LBD），包括路易体痴呆（Dementia with Lewy bodies，DLB）和帕金森病痴呆（Parkinson's disease dementia） (PDD)是第二种最常见的退行性痴呆，以及认知， 神经精神，运动，睡眠和自主神经功能导致严重的情绪和经济负担， 北美和世界各地的患者、家庭和社会。虽然LBD是其他领域的次要焦点， 更多致力于阿尔茨海默病和帕金森病的国际会议，国际DLB IDLBC会议是唯一关注LBD的会议。前四届DLB专注于 会议的重点是制定和更新DLB标准，对项目设计书的关注有限。 这些会议为临床医生、研究人员、受训人员、护理人员和 来自世界各地的政策制定者分享知识，以改善对患者的护理， 需要关注所有LBD和研究（相对于标准讨论）。从2018年初到现在， 克利夫兰诊所卢鲁沃脑健康中心和继续医学教育办公室已经 计划于2019年6月在拉斯维加斯内华达州举行国际路易体痴呆症会议。的 会议将由LBD临床医生和研究人员组织，包括布拉德博士Boeve，Kejal Kantarci， James Leverenz、Ian McKeith、Zoltan Mari、Marwan Sabbagh和Debby Tsuang，在指导和支持下 路易体痴呆症协会一个病人和护理伙伴计划委员会也已 确立了习会议计划旨在为与会者提供一个了解 与LBD相关的广泛主题，并扩大研究者和临床医生分享的机会 LBD专注于工作。已经开发了两条轨道：1）科学轨道在第1-3天蒸发，2） 患者和护理伙伴跟踪将在第1天和第2天进行，同时参与科学研究 跟踪第1天和第3天计划的LBD概述。根据增加科学内容的主题， 除了第一天上午，将集中在新的研究上，并将有两天的海报会议。的 患者/护理合作伙伴轨道将包括在第1天和第2天进行海报引导图尔斯参观的机会。 科学报告将使来自不同背景的专家分享最近的发现，见解， 和意见;从而促进研究合作，共识发展，培训机会， 跨学科的知识翻译。并行的患者和护理合作伙伴跟踪将为患者， 家庭成员、护理伙伴、临床医生、感兴趣的非专业人员和倡导团体的代表， 关于诊断、管理和优化生活质量的许多实际问题的最新情况，以及 作为审查最新的研究进展，并提供机会，直接与科学 社区本次会议的一个重点是纳入初级研究人员和促进 服务不足人口的参与。协调各大洲的DLB研究方法 还将在联合会会议上强调。预计2019年会议将吸引更多 300多名国家和国际科学代表，100多名患者和护理合作伙伴，以及 来自倡导团体、行业和供资机构的代表。虽然大多数必要的 资金将来自会议登记，正在寻求额外的外部财政支持， 保持成本合理。本申请所要求的资金的具体用途是支持登记和 差旅费为i）教师谁已被邀请在科学会议发言，和ii）初级 研究人员（受训人员）。