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Development of a wheelchair exercise training program for persons with multiple sclerosis using a community-engaged research approach

采用社区参与的研究方法为多发性硬化症患者制定轮椅运动训练计划

基本信息

批准号：
9909878
负责人：
Stephanie Silveira Gee
金额：
$ 6.2万
依托单位：
UNIVERSITY OF ALABAMA AT BIRMINGHAM
依托单位国家：
美国
项目类别：
财政年份：
2020
资助国家：
美国
起止时间：
2020-02-03 至 2021-01-08
项目状态：
已结题

项目摘要

Project Summary The objective of this postdoctoral fellowship application (F32) is to accelerate Dr. Silveira’s development as an independent scientist and advance the current knowledge and resources for health promotion through exercise training in persons with multiple sclerosis (MS) who use wheelchairs. Approximately 1 million Americans are currently living with MS. Physical activity research in persons with MS has overwhelmingly focused on persons who are ambulatory, though up to 32% of the MS population has a more progressed disease course that requires full or part-time use of a wheelchair. This segment of the MS population may require structured exercise training programs based on the presence of significant barriers associated with engaging in lifestyle physical activity, including community accessibility, cost, and weather. There are currently no widely available exercise training programs for this segment of the MS population. Exercise training programs are critical for promoting wellness and independence and have the potential for reducing long-term health-care costs (e.g., medications for CVD & diabetes) among persons living with MS. The proposed study leverages preliminary qualitative inquiry conducted by Dr. Silveira regarding preferences for an exercise training program among persons with MS living across the United States who use wheelchairs. Dr. Silveira is uniquely suited to lead the proposed research due to prior training in adapting health promotion curriculum and mentorship available in the training environment that promote successful completion of training goals and specific aims. Dr. Silveira will work with leading experts in adaptive exercise and create a novel exercise program that meets the needs of persons with MS who use wheelchairs (Aim 1). These products will be informed by preliminary data, current pragmatic clinical trial materials, and modified using community- engaged research approach by requesting critical feedback from community advisors with MS (Aim 2). This study serves several roles in exceling Dr. Silveira toward the ultimate goal of becoming an independent applied rehabilitation researcher by providing directed training and experience in curriculum development, project management, and clinical trials. The Sponsor (Prof. Robert Motl) is Professor of Physical Therapy and the Associate Director of Research at the UAB/Lakeshore Research Collaborative, and will provide the expertise necessary for guiding the successful completion of the proposed aims. The Sponsor further has an extensive record of training successful independent scientists in academic settings. The Co- Sponsor (Prof. James Rimmer) is an expert in exercise adaptations for persons with mobility impairments and has established a record of success in creating and implementing exercise programs. The proposed study includes a comprehensive training plan with regularly scheduled meetings, educational courses, direct experiences, and workshops on clinical trial methodology, behavior change theory, and exercise medicine.

项目摘要这个博士后奖学金申请（F32）的目的是加速博士。作为一个独立的科学家发展和推进目前的知识和资源，为健康通过对使用轮椅的多发性硬化症（MS）患者进行运动训练进行推广。目前约有100万美国人与MS生活在一起。与MS绝大多数集中在谁是流动的人，虽然高达32%的MS人口，病情进展更严重，需要全程或部分时间使用轮椅。这部分 MS人群可能需要基于存在显著障碍的结构化运动训练计划与参与生活方式体育活动相关的因素，包括社区可达性、成本和天气。目前还没有广泛适用于这部分MS人群的运动训练计划。运动训练计划对于促进健康和独立性至关重要，用于降低长期健康护理成本（例如，治疗心血管疾病和糖尿病的药物）。拟议的研究利用了Silveira博士进行的关于偏好的初步定性调查在美国各地使用轮椅的多发性硬化症患者中开展运动训练计划。博士Silveira是唯一适合领导拟议的研究，由于在适应健康促进之前的培训培训环境中提供的课程和指导，促进成功完成培训目标和具体目标。Silveira博士将与适应性运动领域的领先专家合作，满足使用轮椅的MS患者需求的锻炼计划（目标1）。这些产品将了解初步数据、当前实用的临床试验材料，并使用社区进行修改- 参与研究的方法，要求与MS社区顾问的关键反馈（目标2）。这项研究在超越Silveira博士的最终目标方面发挥了几个作用，独立的应用康复研究员，提供指导培训和经验的课程开发、项目管理和临床试验。申办者（Robert Motl教授）是物理学教授治疗和研究副主任在UAB/湖岸研究协作，并将提供指导成功实现拟议目标所需的专门知识。申办者在学术环境中培训成功的独立科学家方面有着广泛的记录。该公司- 赞助商（James Rimmer教授）是行动不便人士运动适应方面的专家，在创建和实施锻炼计划方面建立了成功的记录。拟定研究包括全面的培训计划，定期安排会议，教育课程，直接经验，并在临床试验方法，行为改变理论和运动医学讲习班。