Patient Oriented Research in Vulnerable Populations with Skin Disease

针对皮肤病弱势群体的以患者为导向的研究

• 批准号: 9923535
• 负责人: Eleni Linos
• 金额: $ 19.16万
• 依托单位: STANFORD UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-05-01 至 2024-02-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9923535
• 关键词: Address; Affect; African American; Antihistamines; Applications Grants; Award; Awareness; Behavioral Research; Behavioral Sciences; Biological; Biomedical Research; Caring; Chronic; Clinical; Collaborations; Communities; Data; Data Analyses; Data Collection; Data Set; Dermatologic; Dermatology; Disease; Elderly; Ensure; Epidemiology; Ethnic Origin; Facebook; Female; Focus Groups; Future; Gender; Geriatrics; Goals; Grant; Group Interviews; Health; Health Sciences; Healthcare; Hidradenitis Suppurativa; Information Dissemination; Interview; Knowledge; Link; Medicare; Medicine; Mentors; Mentorship; Methodology; Methods; Minority; Mission; National Ambulatory Medical Care Survey; National Institute of Arthritis and Musculoskeletal and Skin Diseases; Not Hispanic or Latino; Pain; Patient Care; Patients; Pattern; Patterns of Care; Pharmaceutical Preparations; Physicians; Population; Public Health; Qualitative Methods; Quality of life; Race; Research; Research Personnel; Research Support; Research Training; Retirement; Science; Scientist; Skin Care; Structure; Support Groups; Surveys; Technology; Time; Training; Training Support; Variant; Vulnerable Populations; Woman; Work; career; career development; cognitive interview; digital; ethnic minority population; experience; hands on research; health disparity; improved; interdisciplinary collaboration; interest; multiple data sources; next generation; older patient; outreach; patient oriented; patient oriented research; racial minority; recruit; skin disorder; social media

Project Summary/Abstract The overarching goal of this proposal is to improve the care of vulnerable populations with skin disease, including: a) the elderly, and b) racial and ethnic minorities. For elderly patients with skin disease, we will focus on patterns of medication use, to identify unexplained variations that might highlight opportunities for optimal prescribing practices. For racial and ethnic minority patients, we will focus specifically on care patterns and unmet needs of patients with Hidradenitis Suppurativa (HS). This K24 proposal adds to my current research portfolio by expanding my research focus on the care of vulnerable populations. The mentorship goals of this proposal are aligned with the research aims. The proposed studies provide hands-on research training experiences in quantitative and qualitative data collection and analysis for mentees, and will produce preliminary data for mentees' K, T, and R applications. This application proposes three incremental studies in my long-term research objective to improve the health of vulnerable populations with skin disease through my own research and through training a diverse group of patient-oriented researchers. The project builds directly on my previous research and leverages existing networks, collaborations and access to leaders in behavioral science and geriatrics, social media and technology. The specific aims of the proposed research are: 1) to determine patterns of care and medication use among elderly patients with skin disease, 2) to better understand patterns of care and medication use by race, ethnicity and gender among patients with Hidradenitis Suppurativa, and 3) to understand the unmet needs of patients with HS in order to identify opportunities for improving their quality of life (QoL). This research will employ a mixed-methods approach. Aims 1 and 2 will be achieved by analyzing the data from large national datasets, including the Health and Retirement Survey (HRS) linked to Medicare and the National Ambulatory Medical Care Survey (NAMCS). For Aim 3, we will utilize a qualitative approach, conducting focus groups and cognitive interviews with leaders in the HS community. This award will ensure that I have sufficient protected time to fully support my mentees, particularly those from backgrounds traditionally underrepresented in medicine. I am dually trained in epidemiology and dermatology and have extensive experience with patient-oriented research in dermatology, enabling me to be a successful mentor for trainees interested in a variety of topics in dermatologic research. The long-term goal of this research is to expand our knowledge on the care of vulnerable populations with skin disease, so that we can improve the quality of life and optimize dermatologic care of these patients. This K24 will give me the opportunity to expand my mentoring and research on these topics and allow me to train the next generation of dermatologic researchers passionate about improving the lives of vulnerable populations.

项目概要/摘要 该提案的总体目标是改善对患有皮肤病的弱势群体的护理， 包括：a) 老年人，以及 b) 少数种族和族裔。对于老年皮肤病患者，我们会重点关注 关于药物使用模式，以确定可能突出最佳机会的无法解释的变化 规定做法。对于少数族裔患者，我们将特别关注护理模式和 化脓性汗腺炎 (HS) 患者的未满足需求。这个 K24 提案丰富了我当前的研究 通过将我的研究重点扩大到照顾弱势群体来扩大我的投资组合。 该提案的指导目标与研究目标一致。拟议的研究提供了 为学员提供定量和定性数据收集和分析的实践研究培训经验， 并将为学员的 K、T 和 R 申请提供初步数据。本申请提出了三项 我的长期研究目标是通过增量研究来改善弱势群体的健康 通过我自己的研究和培训不同的以患者为中心的研究人员群体，皮肤病得到了解决。 该项目直接建立在我之前的研究基础上，并利用现有的网络、合作和 接触行为科学和老年病学、社交媒体和技术领域的领导者。 拟议研究的具体目标是：1）确定患者的护理和药物使用模式 患有皮肤病的老年患者，2) 更好地了解不同种族的护理和药物使用模式， 化脓性汗腺炎患者的种族和性别，以及 3) 了解未满足的需求 HS 患者，以确定改善其生活质量 (QoL) 的机会。这项研究将 采用混合方法。目标 1 和 2 将通过分析来自大型国家的数据来实现 数据集，包括与医疗保险和国家门诊相关的健康和退休调查 (HRS) 医疗保健调查 (NAMCS)。对于目标 3，我们将采用定性方法，开展焦点小组讨论并 对 HS 社区领导者的认知访谈。 该奖项将确保我有足够的受保护时间来全力支持我的学员，特别是来自 传统上医学领域代表性不足的背景。我接受过流行病学和皮肤病学双重培训 并在以患者为中心的皮肤病学研究方面拥有丰富的经验，使我能够成为一名成功的 对皮肤病学研究各种主题感兴趣的学员的导师。本次活动的长远目标 研究的目的是扩大我们对患有皮肤病的弱势群体的护理知识，以便我们能够 改善这些患者的生活质量并优化皮肤科护理。这台 K24 会给我 有机会扩大我对这些主题的指导和研究，并让我能够培训下一代 皮肤病学研究人员热衷于改善弱势群体的生活。