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Patient Oriented Research in Vulnerable Populations with Skin Disease

针对皮肤病弱势群体的以患者为导向的研究

基本信息

批准号：
10624207
负责人：
Eleni Linos
金额：
$ 19.16万
依托单位：
STANFORD UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2019
资助国家：
美国
起止时间：
2019-05-01 至 2025-02-28
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10624207
关键词：
Address Affect African American Antihistamines Award Awareness Behavioral Research Behavioral Sciences Biological Biomedical Research Caring Chronic Clinical Collaborations Communities Data Data Analyses Data Collection Data Set Dermatologic Dermatology Disease Elderly Ensure Epidemiology Ethnic Origin Facebook Female Focus Groups Future Gender Geriatrics Goals Grant Group Interviews Health Health Sciences Healthcare Hidradenitis Suppurativa Information Dissemination Interview Knowledge Link Medicare Medicine Mentors Mentorship Methodology Methods Minority Groups Mission National Ambulatory Medical Care Survey National Institute of Arthritis, and Musculoskeletal, and Skin Diseases Not Hispanic or Latino Pain Patient Care Patients Pattern Patterns of Care Pharmaceutical Preparations Physicians Public Health Qualitative Methods Quality of life Race Reduce health disparities Research Research Personnel Research Support Research Training Retirement Science Scientist Sedation procedure Skin Care Structure Support Groups Surveys Technology Time Training Training Support Variant Vulnerable Populations Woman Work career career development cognitive interview digital technology ethnic minority experience hands on research health disparity improved interdisciplinary collaboration interest minority patient multiple data sources next generation older patient outreach patient oriented patient oriented research racial minority recruit skills skin disorder social media treatment pattern

项目摘要

Project Summary/Abstract The overarching goal of this proposal is to improve the care of vulnerable populations with skin disease, including: a) the elderly, and b) racial and ethnic minorities. For elderly patients with skin disease, we will focus on patterns of medication use, to identify unexplained variations that might highlight opportunities for optimal prescribing practices. For racial and ethnic minority patients, we will focus specifically on care patterns and unmet needs of patients with Hidradenitis Suppurativa (HS). This K24 proposal adds to my current research portfolio by expanding my research focus on the care of vulnerable populations. The mentorship goals of this proposal are aligned with the research aims. The proposed studies provide hands-on research training experiences in quantitative and qualitative data collection and analysis for mentees, and will produce preliminary data for mentees' K, T, and R applications. This application proposes three incremental studies in my long-term research objective to improve the health of vulnerable populations with skin disease through my own research and through training a diverse group of patient-oriented researchers. The project builds directly on my previous research and leverages existing networks, collaborations and access to leaders in behavioral science and geriatrics, social media and technology. The specific aims of the proposed research are: 1) to determine patterns of care and medication use among elderly patients with skin disease, 2) to better understand patterns of care and medication use by race, ethnicity and gender among patients with Hidradenitis Suppurativa, and 3) to understand the unmet needs of patients with HS in order to identify opportunities for improving their quality of life (QoL). This research will employ a mixed-methods approach. Aims 1 and 2 will be achieved by analyzing the data from large national datasets, including the Health and Retirement Survey (HRS) linked to Medicare and the National Ambulatory Medical Care Survey (NAMCS). For Aim 3, we will utilize a qualitative approach, conducting focus groups and cognitive interviews with leaders in the HS community. This award will ensure that I have sufficient protected time to fully support my mentees, particularly those from backgrounds traditionally underrepresented in medicine. I am dually trained in epidemiology and dermatology and have extensive experience with patient-oriented research in dermatology, enabling me to be a successful mentor for trainees interested in a variety of topics in dermatologic research. The long-term goal of this research is to expand our knowledge on the care of vulnerable populations with skin disease, so that we can improve the quality of life and optimize dermatologic care of these patients. This K24 will give me the opportunity to expand my mentoring and research on these topics and allow me to train the next generation of dermatologic researchers passionate about improving the lives of vulnerable populations.

项目总结/文摘

项目成果

期刊论文数量（19）

专著数量（0）

科研奖励数量（0）

会议论文数量（0）

专利数量（0）

Sexual harassment and suicide.

性骚扰和自杀。

DOI：
10.1136/bmj.m3330
发表时间：
2020
期刊：
BMJ (Clinical research ed.)
影响因子：
0
作者：
Sarkar,Urmimala;Hemmat,Shirin;Linos,Eleni
通讯作者：
Linos,Eleni

American Board of Medical Specialties Board Examination Lactation Accommodation Policies.

美国医学专业委员会考试哺乳住宿政策。

DOI：
10.1001/jamainternmed.2021.2536
发表时间：
2021
期刊：
JAMA internal medicine
影响因子：
39
作者：
Nead,KevinT;Hinkston,CandiceL;Linos,Eleni;Giordano,SharonH;Wehner,MackenzieR
通讯作者：
Wehner,MackenzieR

Barriers and facilitators to mobile health and active surveillance use among older adults with skin disease.

DOI：
10.1111/hex.13229
发表时间：
2021-10
期刊：
Health expectations : an international journal of public participation in health care and health policy
影响因子：
0
作者：
Johnson A;Shukla N;Halley M;Nava V;Budaraju J;Zhang L;Linos E
通讯作者：
Linos E

Longitudinal remote monitoring of hidradenitis suppurativa: a pilot study.

化脓性汗腺炎的纵向远程监测：一项试点研究。

DOI：
10.1093/bjd/ljad385
发表时间：
2024
期刊：
The British journal of dermatology
影响因子：
0
作者：
Fonjungo,FonetteE;Barnes,LeandraA;Cai,ZhuoRan;Naik,HaleyB;Eid,EdwardS;Aleshin,MariaA;Nava,Vanessa;Johnson,Tiffani;Chren,Mary-Margaret;Linos,Eleni
通讯作者：
Linos,Eleni

Financial burden of epidermolysis bullosa on patients in the United States.

表皮溶解对美国患者的经济负担。