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Creating a Faith-Based Toolbox for African Americans Living with Moderate and Severe Dementia

为患有中度和重度痴呆症的非裔美国人创建基于信仰的工具箱

基本信息

批准号：
10388096
负责人：
Fayron Recha Epps
金额：
$ 19.13万
依托单位：
EMORY UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2020
资助国家：
美国
起止时间：
2020-03-15 至 2024-02-29
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10388096
关键词：
Adult Advisory Committees Affect African American African American population Age Aging Alzheimer&apos s Disease Alzheimer&apos s disease related dementia Area Assisted Living Facilities Award Behavior Behavioral Symptoms Belief Biological Blood Pressure Cardiovascular system Caregiver well-being Caregivers Caring Christianity Chronic Disease Church Climacteric Clinical Clinical Trials Cognitive Collaborations Communities Data Dementia Dementia caregivers Diagnosis Discipline of Nursing Disease Distress Doctor of Philosophy Educational workshop Effectiveness Elderly Emotional Environment Exposure to Face Family Family Caregiver Family Practice Family member Feasibility Studies Fright Galvanic Skin Response Goals Health Home Individual Intervention Interview Knowledge Leadership Learning Life Literature Measures Medical Memory Mental Depression Mentored Patient-Oriented Research Career Development Award Mentors Outcome Patient Self-Report Personal Satisfaction Persons Physiological Plague Problem behavior Productivity Program Development Property Quality of life Readiness Religion Religion and Spirituality Religious Belief Reporting Research Research Methodology Research Personnel Research Project Grants Research Training Resources Role Sampling Self Care Social support Stress Structure Testing Time Training Transcend Uncertainty United States National Institutes of Health Universities Vertebral column Well in self Work associated symptom base biobehavior biological adaptation to stress career cognitive function design effectiveness outcome experience family caregiving feasibility testing feasibility trial health care disparity health disparity heart rate variability high risk implementation research improved interest meetings member metropolitan minority communities minority engagement pleasure positive emotional state primary caregiver professor programs prototype psychologic recruit research and development skills success therapy development

项目摘要

Project Summary/Abstract Fayron Epps, PhD, RN is an Assistant Professor of Nursing at Georgia State University. Her research focuses on promoting quality of life for older adults living with Alzheimer’s disease and related dementias (ADRD) and their family caregivers through improving self-care and promoting and developing meaningful engagement activities. She is particularly interested in working with and conducting research in faith communities to support African American (AA) families affected by ADRD. Her long-term career goal is to establish herself as a productive, independent gerontologist and leader with expertise in family caregiving and ADRD within the AA community. The candidate proposes a comprehensive training plan that incorporates didactic coursework, hands-on experiences, active participation in seminars and workshops, and dedicated meetings overseen by an interdisciplinary mentor team and advisory committee. Dr. Epps’ training plan immerses three goals: 1) to strengthen skills in biobehavioral research methods with a focus on measuring biological properties related to stress response; 2) to deepen understanding of the role of religiosity for families affected by ADRD; and 3) to continue to strengthen academic productivity and leadership skills. The proposed research includes three aims: 1) develop a prototype faith-based home activity toolkit (Faith-HAT) for AA families living with moderate and severe ADRD; 2) test the feasibility and explore preliminary effectiveness of employing Faith-HAT; and 3) construct a refined toolkit of meaningful faith-based home activities. Georgia State University offers an ideal research environment for the proposed research and training. Study recruitment, retention, and execution will be conducted in collaboration with Emory University Alzheimer’s Disease and Research Center Minority Engagement Core and an Atlanta-based Ministerial Alliance. The proposed research will advance ADRD support by providing AA families with a nonpharmacological intervention and meaningful activities to promote quality of life. This K23 award will give Dr. Epps essential practical experience in the conduct of program development and implementation research, as she will be mentored in developing and implementing a clinical feasibility trial to examine the effect of a home-based religious program on the well-being of AA families affected by ADRD. At the conclusion of this award, the candidate will have obtained the skills, knowledge, and preliminary data to successfully become a full-fledged independent investigator improving the health and well- being of persons with ADRD and their caregivers.

项目总结/文摘

项目成果

期刊论文数量（8）

专著数量（0）

科研奖励数量（0）

会议论文数量（0）

专利数量（0）

The Alter Program: A Nurse-Led, Dementia-Friendly Program for African American Faith Communities and Families Living With Dementia.

Alter计划：针对非裔美国人信仰社区和患有痴呆症的家庭的护士领导的，痴呆症的计划。

DOI：
10.1097/naq.0000000000000506
发表时间：
2022-01-01
期刊：
Nursing administration quarterly
影响因子：
0
作者：
Epps F;Moore M;Chester M;Gore J;Sainz M;Adkins A;Clevenger C;Aycock D
通讯作者：
Aycock D

A Framework for Mobilizing Health Care to Respond to the Community Within the COVID-19 Pandemic.

DOI：
10.5888/pcd18.200572
发表时间：
2021-04-01
期刊：
Preventing chronic disease
影响因子：
5.5
作者：
Epps F;Wiley Z;Teunis LJ;Johnson TM 2nd;Patzer RE;Ofotokun I;Franks N
通讯作者：
Franks N

A Mixed-Methods Formative Evaluation of a Dementia-Friendly Congregation Program for Black Churches.

DOI：
10.3390/ijerph19084498
发表时间：
2022-04-08
期刊：
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH
影响因子：
0
作者：
Gore, Janelle;Toliver, Jamilla;Moore, Miranda A.;Aycock, Dawn;Epps, Fayron
通讯作者：
Epps, Fayron

Experiences of Black American Dementia Caregivers During the COVID-19 Pandemic.

COVID-19 大流行期间美国黑人痴呆症护理人员的经历。

DOI：
10.1177/10748407221102465
发表时间：
2022
期刊：
Journal of family nursing
影响因子：
3.1
作者：
Oliver,Sloan;Alexander,Karah;Bennett,StephanieG;Hepburn,Kenneth;Henry,Jenyl;Clevenger,CarolynK;Epps,Fayron
通讯作者：
Epps,Fayron

"Falling between the cracks": Experiences of Black dementia caregivers navigating U.S. health systems.