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Investigating Informal Caregivers' Involvement in End-of-Life Care among Assisted Living Residents with Advanced Dementia and its Influence on Resident and Caregiver Outcomes

Investigating Informal Caregivers' Involvement in End-of-Life Care among Assisted Living Residents with Advanced Dementia and its Influence on Resident and Caregiver Outcomes
调查非正式护理人员参与患有晚期痴呆症的辅助生活居民的临终护理及其对居民和护理人员结果的影响
批准号:
10213932
负责人:
MOLLY M PERKINS
金额:
$222.49万
依托单位:
依托单位国家:
美国
项目类别:
财政年份:
2021
资助国家:
美国
项目状态:
已结题
起止时间:
2021-06-01 至 2024-05-31

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中文摘要
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英文摘要
PROJECT SUMMARY/ABSTRACT The public health burden of Alzheimer's disease and related dementias (AD/ADRD) continues to increase as the American population ages. We are becoming increasingly aware of myriad physical and emotional needs confronted by people with dementia and their informal caregivers (unpaid family and friends) particularly at end of life (EOL). Most persons with AD/ADRD in the U.S. die in long-term care (LTC) communities, and assisted living (AL), as the fastest growing LTC option in the U.S., is a primary provider of this care. AL is a social model of care and in most states does not provide 24-hour skilled nursing care; most care is provided by unlicensed direct care workers with little or no healthcare training. Therefore, residents' informal caregivers play a critical role in supplementing this care. Their involvement ranges from social visits to more intensive types of informal care provision, including hands-on-care and monitoring and managing care that AL staff and other formal care providers (e.g., hospice) provide. What effect such involvement has on the health of informal caregivers and their care recipients over time is unknown. Limited empirical evidence from cross-sectional and retrospective research shows that greater informal caregiver involvement, particularly involvement that is more labor intensive and emotionally taxing, is associated with higher caregiver burden and suggests that this burden may be greater for informal caregivers in AL compared with other LTC settings, particularly in the context of caring for residents with advanced dementia at EOL. Some studies show that lower informal caregiver involvement is associated with lower resident quality of life of residents but these relationships have not been investigated in AL in depth or over time and the direction of these effects is unclear. To address these critical knowledge gaps, we propose a prospective longitudinal multilevel study that will follow 280 residents diagnosed with advanced AD/ADRD (6 or higher on the 7-stage dementia scale) for 12 months and assess the caregiving experiences of residents' primary informal caregivers (n=280). We will select residents and their informal caregivers from a stratified random sample of 45 assisted living communities in Georgia. The overall goal of this 5-year study is to improve understanding of the relationships between and among informal caregiver involvement, informal caregiver health (e.g., perceived physical and mental health, caregiver burden, and distress), and quality of life of assisted living residents with advanced dementia at EOL and to identify potentially modifiable factors at multiple socioecological levels (individual, AL, and wider community-level) associated with adverse outcomes. The proposed study supports the National Alzheimer's plan and its mission to improve care and support of persons with AD/ADRD and their caregivers. It will address significant knowledge gaps that will advance science and provide information vital to guide policy and practice, including recommendations for training and education for staff and families, and inform future intervention trials designed to improve EOL dementia care.
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DOI: 10.1177/14713012231162713
发表时间: 2023
期刊: Dementia (London, England)
影响因子: --
作者: [Kemp,CandaceL, Bender,AlexisA, Morgan,JenniferCraft, Burgess,ElisabethO, Epps,FayronR, Hill,AndreaMichelle, Perkins,MollyM]
通讯作者: Perkins,MollyM
End-of-Life in Assisted Living: Links between Structure, Process, and Outcomes
  • 批准号:
    9064050
  • 项目类别:
  • 资助金额:
    $36.72万
  • 财政年份:
    2015
  • 负责人:
    MOLLY M PERKINS
  • 依托单位:
End-of-Life in Assisted Living: Links between Structure, Process, and Outcomes
  • 批准号:
    9265373
  • 项目类别:
  • 资助金额:
    $37.25万
  • 财政年份:
    2015
  • 负责人:
    MOLLY M PERKINS
  • 依托单位:
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