Patient-Reported Outcomes Measurement Core

摘要 患者报告结局测量核心（测量核心） 将支持西北大学OAIC的教育和研究使命 通过基于初级保健的创新， （PRO）评估患有MCC的老年人，以使护理与患者保持一致 优先事项，监测功能和生活质量。 测量核心，由我们建议的NU Pepper中心的 寻求加强基层医疗的基本概念框架 通过可扩展的机会提供与患者优先级一致的护理的服务 1)让患有MCC的老年人和照顾者分享他们的价值观， 与他们的护理团队的偏好;和2）PRO的及时，常规评估。 我们将利用我们广泛的、国际公认的专业知识， 结果和护理经验的措施。衡量核心的具体目标是： 目标1为西北胡椒中心提供测量专业知识，并作为 研究教育组件的初级教师寻求技能的测量。 目标2：开展一个发展项目（DP），建立一个个性化的，以患者为中心的系统， 护理环境，以监测老年MCC患者报告的结局。 目标3通过利用现有的外部项目，为初级保健环境中基于患者的MCC研究提供信息 (EP)癌症和CKD患者的生活质量和多发病率。 我们将支持胡椒学者试点/探索性研究，与其他资源核心（设计， 分析），促进信息传播，更普遍地服务于 作为芝加哥和国家OAIC社区（目标1）的老龄化研究方法支持资源。 测量和设计核心将大量对接，以设计一个基于初级保健、以患者为中心的 系统，以利用EHR为基础的PRO测量与MCC的老年人（目标2）。老年患者将 能够选择PRO（例如，疼痛、疲劳、恶心），这些对他们来说是最重要的， 护理临床医生更有效地优先考虑病人的关注（目标3）。最后，将利用两个正在进行的EP 探讨症状监测和快速症状管理如何更好地告知初级保健管理 医学上复杂的老年MCC患者我们的核心是非常适合提供持续的指导，研究 支持，广泛的科学贡献，同时为整个国家OAIC网络提供测量专业知识。

ABSTRACT The Patient Reported Outcomes Measurement Core (Measurement Core) will support the Northwestern (NU) OAIC's education and research mission through innovations in primary care-based, patient-reported outcomes (PROs) assessment of older adults with MCC to align care with patient priorities, monitor function and quality of life. The Measurement Core, guided by our proposed NU Pepper Center's underlying conceptual framework that seeks enhancements to primary care services to deliver patient priorities-aligned care through scalable opportunities 1) for older adults with MCC and caregivers to share their values and preferences with their care team; and 2) the timely, routine assessment of PROs. We will do so by using our extensive, internationally-recognized expertise on PROs measurement, functional outcomes and experience-of-care measures. The specific aims for the Measurement Core are to: Aim 1 Provide measurement expertise for the Northwestern Pepper Center and serve as a resource to the Research Education Component for junior faculty seeking skills in measurement. Aim 2 Conduct a developmental project (DP) to build an individualized, patient-centered system for primary care settings to monitor patient-reported outcomes among older adults with MCC. Aim 3 Inform patient-based studies of MCC in primary care settings by leveraging an existing External Project (EP) on quality of life and multimorbidity in cancer and CKD patients. We will support Pepper Scholar Pilot/Exploratory Studies, collaborate with other Resource Cores (Design, Analytics) on aging-specific DPs and ongoing EPs, facilitate Information Dissemination and more generally serve as an aging research methodological support resource for Chicago and the national OAIC community (Aim 1). The Measurement and Design Cores will heavily interface to design a primary care-based, patient-centered system to leverage EHR-based PROs measurement among older adults with MCC (Aim 2). Older patients will be able to choose the PROs (e.g., pain, fatigue, nausea) that are the most important to them, allowing primary care clinicians to more effectively prioritize patients' concerns (Aim 3). Finally, two ongoing EPs will be leveraged to probe how symptom monitoring and rapid symptom management can better inform primary care management of medically complex, older adults with MCC. Our Core is well suited to provide ongoing mentorship, research support, broad scientific contributions, while offering measurement expertise to the entire national OAIC Network.