Patient-Reported Outcomes Measurement Core

摘要 患者报告的结果测量核心(测量核心) 将支持西北(NU)OAIC的教育和研究任务 通过以初级保健为基础的、患者报告的结果的创新 (PROS)评估患有MCC的老年人，使护理与患者保持一致 优先事项，监控功能和生活质量。 测量核心，由我们建议的NU Pepper中心 寻求加强初级保健的基本概念框架 通过可扩展的机会提供符合患者优先顺序的护理服务 1)为患有MCC的老年人和照顾者分享他们的价值观和 与他们的护理团队进行偏好；以及2)对专业人员进行及时、常规的评估。 我们将通过使用我们广泛的、国际公认的专业知识来实现这一点， 结果和护理体验措施。测量核心的具体目标是： 目标1为西北辣椒中心提供测量专业知识，并作为资源 为寻求测量技能的初级教员提供研究教育部分。 目标2实施发展项目(DP)，以构建个性化的、以患者为中心的初级保健系统 护理环境以监测患有MCC的老年人的患者报告的结果。 目标3通过利用现有的外部项目，为初级保健环境中的MCC患者研究提供信息 (EP)关于癌症和慢性肾脏病患者的生活质量和多发病。 我们将支持胡椒学者试点/探索性研究，与其他资源核心合作(设计、 分析)关于特定老龄化的DPS和持续的EP，促进信息传播，并更普遍地服务 作为芝加哥和全国OAIC社区的老龄化研究方法支持资源(目标1)。 测量和设计核心将在很大程度上交互作用，以设计以初级保健为基础、以患者为中心的 在患有MCC的老年人中利用基于EHR的PROS测量的系统(目标2)。年龄较大的患者会 能够选择对他们来说最重要的优点(例如，疼痛、疲劳、恶心)，允许主要 护理临床医生，以便更有效地优先处理患者关切的问题(目标3)。最后，将利用两个正在进行的EP 探讨症状监测和快速症状管理如何更好地为初级保健管理提供信息 医学上复杂的患有MCC的老年人。我们的核心非常适合提供持续的指导、研究 支持，广泛的科学贡献，同时为整个国家OAIC网络提供测量专业知识。

ABSTRACT The Patient Reported Outcomes Measurement Core (Measurement Core) will support the Northwestern (NU) OAIC's education and research mission through innovations in primary care-based, patient-reported outcomes (PROs) assessment of older adults with MCC to align care with patient priorities, monitor function and quality of life. The Measurement Core, guided by our proposed NU Pepper Center's underlying conceptual framework that seeks enhancements to primary care services to deliver patient priorities-aligned care through scalable opportunities 1) for older adults with MCC and caregivers to share their values and preferences with their care team; and 2) the timely, routine assessment of PROs. We will do so by using our extensive, internationally-recognized expertise on PROs measurement, functional outcomes and experience-of-care measures. The specific aims for the Measurement Core are to: Aim 1 Provide measurement expertise for the Northwestern Pepper Center and serve as a resource to the Research Education Component for junior faculty seeking skills in measurement. Aim 2 Conduct a developmental project (DP) to build an individualized, patient-centered system for primary care settings to monitor patient-reported outcomes among older adults with MCC. Aim 3 Inform patient-based studies of MCC in primary care settings by leveraging an existing External Project (EP) on quality of life and multimorbidity in cancer and CKD patients. We will support Pepper Scholar Pilot/Exploratory Studies, collaborate with other Resource Cores (Design, Analytics) on aging-specific DPs and ongoing EPs, facilitate Information Dissemination and more generally serve as an aging research methodological support resource for Chicago and the national OAIC community (Aim 1). The Measurement and Design Cores will heavily interface to design a primary care-based, patient-centered system to leverage EHR-based PROs measurement among older adults with MCC (Aim 2). Older patients will be able to choose the PROs (e.g., pain, fatigue, nausea) that are the most important to them, allowing primary care clinicians to more effectively prioritize patients' concerns (Aim 3). Finally, two ongoing EPs will be leveraged to probe how symptom monitoring and rapid symptom management can better inform primary care management of medically complex, older adults with MCC. Our Core is well suited to provide ongoing mentorship, research support, broad scientific contributions, while offering measurement expertise to the entire national OAIC Network.