Patient-Reported Outcomes Measurement Core

摘要 患者报告结果测量核心（测量核心） 将支持西北大学 (NU) OAIC 的教育和研究使命 通过基于初级保健的患者报告结果的创新 (PRO) 对患有 MCC 的老年人进行评估，以使护理与患者保持一致 优先事项、监测功能和生活质量。 测量核心，以我们提议的 NU Pepper 中心的指导 寻求加强初级保健的基本概念框架 通过可扩展的机会提供符合患者优先事项的护理服务 1) 让患有 MCC 的老年人和照顾者分享他们的价值观和 他们的护理团队的偏好； 2) 对 PRO 进行及时、例行的评估。 我们将利用我们在 PRO 测量、功能性方面广泛的、国际认可的专业知识来实现这一目标。 结果和护理体验措施。测量核心的具体目标是： 目标 1 为西北胡椒中心提供测量专业知识，并作为资源 针对寻求测量技能的初级教师的研究教育部分。 目标 2 开展发展项目 (DP)，为初级教育建立个性化、以患者为中心的系统 护理机构监测患有 MCC 的老年人患者报告的结果。 目标 3 通过利用现有的外部项目，为初级保健机构中基于患者的 MCC 研究提供信息 (EP) 对癌症和 CKD 患者的生活质量和多重发病率的影响。 我们将支持胡椒学者试点/探索性研究，与其他资源核心（设计、 分析）针对特定老龄化的 DP 和正在进行的 EP，促进信息传播并提供更广泛的服务 作为芝加哥和国家 OAIC 社区的老龄化研究方法支持资源（目标 1）。 测量和设计核心将紧密结合以设计基于初级保健、以患者为中心的 系统利用基于 EHR 的 MCC 老年人 PRO 测量（目标 2）。老年患者会 能够选择对他们来说最重要的 PRO（例如疼痛、疲劳、恶心），从而允许主要 护理临床医生更有效地优先考虑患者的担忧（目标 3）。最后，将利用两个正在进行的 EP 探讨症状监测和快速症状管理如何更好地为初级保健管理提供信息 患有 MCC 的病情复杂的老年人。我们的核心非常适合提供持续的指导、研究 的支持、广泛的科学贡献，同时为整个国家 OAIC 网络提供测量专业知识。

ABSTRACT The Patient Reported Outcomes Measurement Core (Measurement Core) will support the Northwestern (NU) OAIC's education and research mission through innovations in primary care-based, patient-reported outcomes (PROs) assessment of older adults with MCC to align care with patient priorities, monitor function and quality of life. The Measurement Core, guided by our proposed NU Pepper Center's underlying conceptual framework that seeks enhancements to primary care services to deliver patient priorities-aligned care through scalable opportunities 1) for older adults with MCC and caregivers to share their values and preferences with their care team; and 2) the timely, routine assessment of PROs. We will do so by using our extensive, internationally-recognized expertise on PROs measurement, functional outcomes and experience-of-care measures. The specific aims for the Measurement Core are to: Aim 1 Provide measurement expertise for the Northwestern Pepper Center and serve as a resource to the Research Education Component for junior faculty seeking skills in measurement. Aim 2 Conduct a developmental project (DP) to build an individualized, patient-centered system for primary care settings to monitor patient-reported outcomes among older adults with MCC. Aim 3 Inform patient-based studies of MCC in primary care settings by leveraging an existing External Project (EP) on quality of life and multimorbidity in cancer and CKD patients. We will support Pepper Scholar Pilot/Exploratory Studies, collaborate with other Resource Cores (Design, Analytics) on aging-specific DPs and ongoing EPs, facilitate Information Dissemination and more generally serve as an aging research methodological support resource for Chicago and the national OAIC community (Aim 1). The Measurement and Design Cores will heavily interface to design a primary care-based, patient-centered system to leverage EHR-based PROs measurement among older adults with MCC (Aim 2). Older patients will be able to choose the PROs (e.g., pain, fatigue, nausea) that are the most important to them, allowing primary care clinicians to more effectively prioritize patients' concerns (Aim 3). Finally, two ongoing EPs will be leveraged to probe how symptom monitoring and rapid symptom management can better inform primary care management of medically complex, older adults with MCC. Our Core is well suited to provide ongoing mentorship, research support, broad scientific contributions, while offering measurement expertise to the entire national OAIC Network.