Aligning PCPs and Patients with Alzheimer's Research Efforts: MyAlliance for Cognitive Health

协调 PCP 和患者参与阿尔茨海默病的研究工作：MyAlliance for Cognitive Health

• 批准号: 10406998
• 负责人: JEFFREY Murray BURNS
• 金额: $ 137.41万
• 依托单位: UNIVERSITY OF KANSAS MEDICAL CENTER
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-06-01 至 2024-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10406998
• 关键词: Advocacy; Advocate; African American; African American population; Alzheimer' s Disease; Alzheimer’s disease biomarker; Award; Caring; Chronic Care; Cities; Clinical; Cognitive; Communication; Communities; Community Health Aides; Community Networks; Community Outreach; Community Practice; Counseling; Data Management Resources; Dementia; Diagnosis; Education; Education and Outreach; Educational Curriculum; Ensure; Family; Future; Genetic; Genetic Variation; Health; Infrastructure; Investments; Kansas; Knowledge; Latino; Latino Population; Link; Marketing; Medicare; Minority; Mission; Modeling; Monoclonal Antibody R24; Observational Study; Participant; Patients; Persons; Population Heterogeneity; Prevention; Process; Registries; Reproducibility; Research; Risk Factors; Rural; Rural Health; Sampling; Services; Site; Social Work; Speed; Talents; Therapeutic Studies; Time; Training; Trust; Underrepresented Populations; Universities; Wichita; Work; clinical care; cohort; cost; data management; dementia care; ethnic difference; ethnic diversity; falls; improved; informatics infrastructure; innovation; novel strategies; operation; outreach; portability; prevent; programs; racial and ethnic; racial difference; racial diversity; recruit; rural area; rural dwellers; skills; social; socioeconomic diversity; study population; tool; treatment response

Abstract New models for recruiting research participants are required to support current and future trials. Recruiting adequately diverse samples of research participants is among the biggest challenges slowing research efforts to treat and prevent Alzheimer's disease (AD). Study populations often fall short in representing the genetic, ethnic, racial, and socioeconomic diversity necessary to generalize trial results while the speed of recruitment into trials directly impacts the cost and time to complete studies. These issues are only worsening as the number and size of current and planned trials have dramatically expanded. The University of Kansas Alzheimer's Disease Center (KU ADC; P30AG035982) created MyAlliance for Cognitive Health (MyAlliance) to accelerate participation in research and emphasize reaching under- represented groups (URG: predominantly African Americans, Latinos, and rural residents). The Kansas City region and the state of Kansas are increasingly diverse (>20% minority). MyAlliance is a sustainable and reproducible strategy for engaging a diverse population through 1) a PCP Network to improve dementia care through a financially-sustainable Chronic Care Management program, 2) a Patient Network (MyAlliance Research Registry, derived from patients in the PCP network), and 3) a Community Network of diverse stakeholders delivering robust outreach and education. The sustaining value of MyAlliance is its clinical mission to improve care for all patients and families dealing with dementia. MyAlliance will support PCPs in community practice – emphasizing practices serving a high proportion of URG – with social work Navigators to deliver Chronic Care Management services for their dementia patients. This clinical value is the engine to ensure consistent PCP engagement over time and sustain the network to create a permanent recruitment infrastructure in the community. This R24 award will result in new approaches, content, and tools that will be portable to the AD Center network and beyond to enhance national research recruitment efforts and work to change the culture of research recruitment in the community by linking, aligning, and engaging PCPs, patients, and community stakeholders with research efforts.

摘要

项目成果

Recruitment methods and yield rates for a multisite clinical trial exploring risk reduction for Alzheimer's disease (rrAD).

• DOI: 10.1002/trc2.12422
• 发表时间: 2023-10
• 期刊: ALZHEIMERS & DEMENTIA-TRANSLATIONAL RESEARCH & CLINICAL INTERVENTIONS
• 影响因子: 4.8
• 作者: Szabo-Reed, Amanda N;Hall, Tristyn;Vidoni, Eric D;Van Sciver, Angela;Sewell, Monica;Burns, Jeffrey M;Cullum, C Munro;Gahan, William P;Hynan, Linda S;Kerwin, Diana R;Rossetti, Heidi;Stowe, Ann M;Vongpatanasin, Wanpen;Zhu, David C;Zhang, Rong;Keller, Jeffrey N;Binder, Ellen F
• 通讯作者: Binder, Ellen F

Impact of the COVID-19 Pandemic on Latino Families With Alzheimer Disease and Related Dementias: Qualitative Interviews With Family Caregivers and Primary Care Providers.

COVID-19 大流行对患有阿尔茨海默病和相关痴呆症的拉丁裔家庭的影响：对家庭护理人员和初级保健提供者的定性访谈。

• DOI: 10.2196/42211
• 发表时间: 2024
• 期刊: JMIRx med
• 作者: Perales-Puchalt,Jaime;Peltzer,Jill;Fracachan-Cabrera,Monica;Perez,GAdriana;Ramírez,Mariana;Greiner,KAllen;Burns,JeffreyMurray
• 通讯作者: Burns,JeffreyMurray

A Collaborative Approach to Dementia Inclusion in Social Work Education: The Dementia Intensive.

将痴呆症纳入社会工作教育的协作方法：痴呆症强化。

• DOI: 10.1080/10437797.2022.2039820
• 发表时间: 2023
• 期刊: Journal of social work education
• 影响因子: 1.3
• 作者: Niedens,Michelle;Yeager,Amy;Vidoni,EricD;Barton,Kelli;Perales-Puchalt,Jaime;Dealey,RhondaPeterson;Quinn,Dory;Gage,LAshley
• 通讯作者: Gage,LAshley

Acceptability and Preliminary Effectiveness of a Remote Dementia Educational Training Among Primary Care Providers and Health Navigators.

• DOI: 10.3233/jad-220235
• 发表时间: 2022
• 期刊: JOURNAL OF ALZHEIMERS DISEASE
• 影响因子: 4
• 作者: Perales-Puchalt, Jaime;Townley, Ryan;Niedens, Michelle;Vidoni, Eric D.;Greiner, K. Allen;Zufer, Tahira;Schwasinger-Schmidt, Tiffany;McGee, Jerrihlyn L.;Arreaza, Hector;Burns, Jeffrey M.
• 通讯作者: Burns, Jeffrey M.

Patient Polypharmacy use Following a Multi-Disciplinary Dementia Care Program in a Memory Clinic: A Retrospective Cohort Study.

• DOI: 10.17161/kjm.vol16.20976
• 发表时间: 2023
• 期刊: Kansas journal of medicine
• 作者: Perales-Puchalt, Jaime;Burkhardt, Crystal;Baker, Jordan;Cernik, Colin;Townley, Ryan;Niedens, Michelle;Burns, Jeffrey M;Mudaranthakam, Dinesh Pal
• 通讯作者: Mudaranthakam, Dinesh Pal