The Engaging Communities of Hispanics for Aging Research (ECHAR) Network

摘要 西班牙裔/拉丁美洲（H/L）人口目前占美国人口的18%以上。 预计到2030年，这一数字将增加到近29%。随着H/L人口的继续 ADRD迅速增长，正成为一个主要的公共卫生问题。研究表明，H/L是1.5- 2倍 可能发展为ADRD，并且与其他种族群体相比，AD诊断的比例最高 在美国然而，H/L不太可能参与研究，因为与参与有关的 污名化、健康素养和不信任。此外，对这些招聘障碍的研究主要是 仅限于老年人和非西班牙裔白人，因为这些群体直接受到ADRD的影响。总的来说， 迫切需要在ADRD研究中纳入不同的样本，以识别和更好地理解 可改变的风险因素、复原力方法和有效的招募方法。 H/L年轻人在翻译时经常充当家庭成员的联络人或“健康经纪人” 重要文件、信件和医疗信息。此外，他们往往生活在代际之间， 注重家庭单位福利而不是个人福利的家庭：这一概念经常被提及， 作为家庭主义。除了把重点放在家庭，这导致家庭为中心的决定 重要的是要认识到，H/L年轻人更有可能参与研究， 更愿意与研究人员合作。因此，H/L年轻人可能作为中介，以减轻许多 可能阻止老年人参与ADRD研究的关键招募障碍。 在努力增加H/L在ADRD研究中的代表性，我们建议招募年轻的大学生- 老年H/L个人参加靴子营翻译（BCT）：一个经过验证的，社区- 这是一个旨在使科学健康知识具有文化相关性的参与程序。最终，年轻人 成人BCT将：（1）建立一个经过培训的ADRD社区咨询委员会，（2）在文化上产生 ADRD研究的相关和敏感的招募材料和策略;（3）授权H/L家庭 在该地区继续与调查人员和各种卫生信息系统合作。总的来说， 拟议中的研究将利用文化特征来增强H/L社区成员的能力，并促进 参与ADRD研究。

Abstract Hispanic/Latin American (H/L) populations currently comprise over 18% of the population in the United States and this number is expected to increase to nearly 29% by 2030. As the H/L population continues to grow rapidly, ADRDs are becoming a major public health concern. Research suggests H/Ls are 1.5-2x more likely to develop ADRD and have the highest proportion of AD diagnoses as compared to other ethnic groups in the United States. Yet, H/Ls are less likely to participate in research due to participation related stigma, health literacy, and mistrust. Furthermore, research on these recruitment barriers have been primarily limited to older adults and non-Hispanic Whites since these groups are directly affected by ADRD. Overall, there is a critical need to include diverse samples in ADRD research to identify and better understand modifiable risk factors, methods of resilience, and effective methods of recruitment. H/L young adults often act as liaisons, or “health brokers,” for their family members as they translate important documents, correspondence, and medical information. Moreover, they often live in intergenerational households that focus on the well-being of the family unit rather than on the individual: a concept often referred to as familismo. In addition to placing a strong emphasis on families, which leads to family centered decision making, it is important to recognize that H/L young adults are more likely to participate in research studies and are more open to working with researchers. Thus, H/L young adults may serve as mediators to mitigate many of the key recruitment barriers that may prevent older adults from participating in ADRD research. In an effort to increase H/L representation in ADRD research, we propose to recruit young, college- aged H/L individuals to participate in a Boot Camp Translation (BCT): a validated, community- engaged procedure that aims to make scientific health knowledge culturally relevant. Ultimately, the young adult BCT will have: (1) established a trained community advisory board on ADRD, (2) yielded culturally relevant and sensitive recruitment material and strategies for ADRD research; and (3) empowered H/L families in the area to continue their collaboration with investigators and various health information systems. Overall, the proposed study will capitalize on cultural characteristics to empower H/L community members and promote their engagement in ADRD research.