NIAMS Information Clearinghouse

NIAMS 信息交换所

• 批准号: 10329697
• 负责人: MATT BOWEN
• 金额: $ 128.54万
• 依托单位: IQ SOLUTIONS, INC.
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-01-15 至 2022-01-14
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10329697
• 关键词: Affect; American; Arthritis; Awareness; Basic Science; Bone Diseases; Chronic; Clinical Research; Communication; Communities; Contracts; Databases; Development; Disease; Event; Exhibits; Goals; Health Care Costs; Health Personnel; Healthcare; Human; Information Dissemination; Institutes; Joints; Language; Learning; Life; Logistics; Medical Research; Mission; Muscle; Musculoskeletal Diseases; Musculoskeletal System; National Institute of Arthritis and Musculoskeletal and Skin Diseases; Nature; Oral; Osteoporosis; Pain; Patients; Population Heterogeneity; Press Releases; Productivity; Professional Organizations; Public Health; Publications; Research; Research Support; Research Training; Resources; Services; Skin; Structure; Translational Research; United States Dept. of Health and Human Services; United States National Institutes of Health; Visual Aid; Work; bone; cost; disability; improved; meetings; operation; outreach; programs; response; skin disorder

To provide support to the National Institute of Arthritis and Musculoskeletal and Skin Diseases' (NIAMS) comprehensive program of information dissemination to patients, their health care providers, the research community, and the media through the NIAMS Information Clearinghouse (NIC) and the NIH Osteoporosis and Related Bone Diseases~National Resource Center (NRC) and under the direction of the NIAMS Office of Communications and Public Liaison (OCPL). As a component of the National Institutes of Health (NIH), an agency of the U.S. Department of Health and Human Services (HHS), the NIAMS supports basic, translational, and clinical research; research training; and information programs on many of the more debilitating diseases affecting the American people. Most of these diseases are chronic and many cause life-long pain, disability, or disfigurement. They affect millions of Americans, cause tremendous human suffering, and cost the U.S. economy billions of dollars in health care costs and lost productivity. These diseases include the many different forms of arthritis and numerous disorders of the musculoskeletal system and the skin. The Institute also conducts and supports research on the normal structure and function of bones, joints, muscles, and skin. The NIAMS is committed to a comprehensive program of information dissemination. Research advances are of limited value if they never reach the arena of health care, therefore missing the goal of improving public health for all Americans. The NIC and the NRC help support the NIAMS effort of reaching patients, their health care providers, the research community, and the media with information about medical research advances, particulatly related to arthritis, musculoskeletal, and skin diseases. In addition, the NIAMS works closely with many voluntary and professional societies to learn their needs and disseminate NIAMS research findings to them. The NIAMS targets much of its information to certain high-need audiences, such as underrepresented and non-English-speaking communities, and it strives to make its information accessible to the vast and diverse populations affected by the diseases within its mandate. The NIAMS contracted with an organization to provide all management, technical, logistical, and administrative services for the continued operation of the NIC, a congressionally authorized national information clearinghouse. This contract included the operations of the NIC and the provision of related information dissemination services to the NIAMS OCPL. The nature of the support services included public inquiry response, materials development, materials management and dissemination, database development, meeting and exhibit support, and communications planning and outreach in support of the NIAMS' mission to disseminate information.

通过NIAMS信息交换中心(NIC)和NIH骨质疏松及相关骨病国家资源中心(NRC)，在NIAMS沟通和公共联络办公室(OCPL)的指导下，为NIAMS向患者、他们的医疗保健提供者、研究社区和媒体传播信息的综合计划提供支持。作为美国卫生与公众服务部(HHS)下属的国家卫生研究院(NIH)的一个组成部分，NIAMS支持基础、翻译和临床研究；研究培训；以及关于许多影响美国人民的更令人衰弱的疾病的信息计划。这些疾病大多是慢性的，许多会导致终生疼痛、残疾或毁容。它们影响着数以百万计的美国人，造成巨大的人类痛苦，并给美国经济造成数十亿美元的医疗费用和生产力损失。这些疾病包括许多不同形式的关节炎和许多肌肉骨骼系统和皮肤的疾病。该研究所还开展并支持对骨骼、关节、肌肉和皮肤的正常结构和功能的研究。NIAMS致力于一个全面的信息传播计划。如果研究进展永远不会进入医疗保健领域，从而达不到改善所有美国人公共健康的目标，那么它们的价值就会有限。NIC和NRC帮助支持NIAMS的努力，向患者、他们的医疗保健提供者、研究社区和媒体提供关于医学研究进展的信息，特别是与关节炎、肌肉骨骼和皮肤病相关的信息。此外，NIAMS与许多志愿和专业协会密切合作，了解他们的需求，并向他们传播NIAMS的研究成果。NIAMS将其大部分信息面向某些高需求的受众，如代表性不足和非英语社区，并努力使其职权范围内受疾病影响的广大和不同的人口能够获得其信息。NIAMS与一个组织签订了合同，为NIC的继续运作提供所有管理、技术、后勤和行政服务，NIC是国会授权的国家信息交换中心。该合同包括NIC的运作和向NIAMS OCPL提供相关的信息传播服务。支助服务的性质包括公共询问答复、材料开发、材料管理和传播、数据库开发、会议和展览支助、宣传规划和外联，以支持国家信息管理系统的信息传播任务。