NIH Osteoporosis and Related Bone Diseases~National Resource Center (NRC)

NIH 骨质疏松症和相关骨病~国家资源中心 (NRC)

• 批准号: 10551157
• 负责人: MATT BOWEN
• 金额: $ 210.5万
• 依托单位: IQ SOLUTIONS, INC.
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-01-15 至 2023-01-14
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10551157
• 关键词: Asian; Awareness; Bone Diseases; Early Diagnosis; Early treatment; Education; General Population; Health Professional; Hispanic; Hyperparathyroidism; Individual; Information Dissemination; Knowledge; Language; Link; Low Literacy Population; Metabolic Bone Diseases; Osteitis Deformans; Osteogenesis Imperfecta; Osteoporosis; Pamphlets; Patients; Physicians; Populations at Risk; Prevention; Resources; Underserved Population; United States Dept. of Health and Human Services; United States National Institutes of Health; Visual impairment; Woman; bone health; men; outreach; patient population; young man

The NIH Osteoporosis and Related Bone Diseases, The National Resource Center, a part of the U.S. Department of Health and Human Services' National Institutes of Health (NIH), provides patients, health professionals, and the public with an important link to resources and information on metabolic bone diseases, including osteoporosis, Paget's disease of the bone, osteogenesis imperfecta, and hyperparathyroidism. The National Resource Center is dedicated to increasing the awareness, knowledge and understanding of physicians, health professionals, patients, underserved and at-risk populations (such as Hispanic and Asian women, adolescents, and men) and the general public about the prevention, early detection and treatment of osteoporosis and related bone diseases. The National Resource Center provides a link between current resources and the individuals (e.g., health professionals, patients, and the public) who are trying to locate these resources. It develops new materials to fill important gaps in information, such as osteoporosis in men and patient information on other rare bone diseases. Materials in Spanish and Asian languages, for low literacy populations, and for individuals with visual impairment are also available or planned. It distributes information packets, pamphlets, fact sheets, and other materials related to metabolic bone diseases.

NIH 骨质疏松症和相关骨病国家资源中心是美国卫生与公众服务部国立卫生研究院 (NIH) 的一部分，为患者、卫生专业人员和公众提供有关代谢性骨病的资源和信息的重要链接，包括骨质疏松症、佩吉特骨病、成骨不全症和甲状旁腺功能亢进症。国家资源中心致力于提高医生、卫生专业人员、患者、服务不足和高危人群（例如西班牙裔和亚洲女性、青少年和男性）以及公众对预防、早期发现和治疗骨质疏松症及相关骨病的认识、知识和理解。国家资源中心在当前资源和试图查找这些资源的个人（例如卫生专业人员、患者和公众）之间提供了联系。它开发新材料来填补重要的信息空白，例如男性骨质疏松症和其他罕见骨病的患者信息。还提供或计划提供针对识字率低的人群和视力障碍人士的西班牙语和亚洲语言的材料。它分发与代谢性骨疾病相关的信息包、小册子、情况说明书和其他材料。