NIH Osteoporosis and Related Bone Diseases~National Resource Center (NRC)

NIH 骨质疏松症和相关骨病~国家资源中心 (NRC)

• 批准号: 9915746
• 负责人: MATT BOWEN
• 金额: $ 56.72万
• 依托单位: IQ SOLUTIONS, INC.
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-01-15 至 2020-01-14
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9915746
• 关键词: Asians; Awareness; Bone Diseases; Early Diagnosis; Early treatment; Education; General Population; Health Professional; Hispanics; Hyperparathyroidism; Individual; Information Dissemination; Knowledge; Language; Link; Low Literacy Population; Metabolic Bone Diseases; Osteitis Deformans; Osteogenesis Imperfecta; Osteoporosis; Pamphlets; Patients; Physicians; Populations at Risk; Prevention; Resources; Underserved Population; United States Dept. of Health and Human Services; United States National Institutes of Health; Visual impairment; Woman; bone health; men; outreach; patient population; young man

The NIH Osteoporosis and Related Bone Diseases, The National Resource Center, a part of the U.S. Department of Health and Human Services' National Institutes of Health (NIH), provides patients, health professionals, and the public with an important link to resources and information on metabolic bone diseases, including osteoporosis, Paget's disease of the bone, osteogenesis imperfecta, and hyperparathyroidism. The National Resource Center is dedicated to increasing the awareness, knowledge and understanding of physicians, health professionals, patients, underserved and at-risk populations (such as Hispanic and Asian women, adolescents, and men) and the general public about the prevention, early detection and treatment of osteoporosis and related bone diseases. The National Resource Center provides a link between current resources and the individuals (e.g., health professionals, patients, and the public) who are trying to locate these resources. It develops new materials to fill important gaps in information, such as osteoporosis in men and patient information on other rare bone diseases. Materials in Spanish and Asian languages, for low literacy populations, and for individuals with visual impairment are also available or planned. It distributes information packets, pamphlets, fact sheets, and other materials related to metabolic bone diseases.

NIH骨质疏松症和相关骨病，国家资源中心，美国卫生与公众服务部的国立卫生研究院（NIH）的一部分，为患者，卫生专业人员和公众提供了一个重要的链接，以获得有关代谢性骨病的资源和信息，包括骨质疏松症，骨佩吉特病，骨生成障碍和甲状旁腺功能亢进。国家资源中心致力于提高医生，卫生专业人员，患者，服务不足和高危人群（如西班牙裔和亚洲女性，青少年和男性）以及公众对骨质疏松症和相关骨骼疾病的预防，早期发现和治疗的认识，知识和理解。国家资源中心提供了当前资源和个人之间的链接（例如，卫生专业人员、患者和公众），他们正试图找到这些资源。它开发新的材料，以填补信息的重要空白，如男性骨质疏松症和其他罕见骨骼疾病的患者信息。还提供或计划提供西班牙语和亚洲语言的材料，供识字率低的人口和视力障碍者使用。它分发信息包，小册子，事实说明书，和其他材料有关的代谢性骨病。