NCCU RCMI Practice Based Equity Research Network (PBERN)

摘要 北卡罗来纳州（NC）拥有五个基于实践的研究网络（PBRN），由以下机构支持和维护： 大型学术研究中心和医疗保健系统，没有或非常有限地参与免费 社区诊所和医生照顾没有保险的病人。NC在美国健康排名第32位 结果，并被列为第五个最差的国家的医疗保健与惊人的种族健康差距，婴儿 死亡率、糖尿病、肾病以及许多慢性和急性疾病。北卡罗来纳州中央酒店 大学（NCCU）研究中心在少数民族机构（RCMI）已成功和有效地参与 服务不足的社区。该提案旨在建立一个由RCMI领导的健康临床研究网络 公平（CRNHE），以解决在临床为基础的研究和改善医疗保健为无保险的病人的差距。这 创新的CRNHE称为NCCU RCMI基于实践的股权研究网络（PBERN）将汇集 大学生健康诊所，联邦合格的健康中心（CDHCs），免费和慈善诊所，以及当地 公共卫生部门，所有这些部门都广泛地为没有保险的弱势群体服务。三 UG 3规划阶段的具体目标需要构建PBERN。管理核心（Admin Core） 将监督和管理PBERN，包括成立一个病人/社区咨询委员会和一个外部 供应商咨询委员会，为联合体起草章程，并为合作伙伴起草谅解备忘录 实践（SA 1）。社区参与核心（CEC）旨在整合社区，患者， 通过联盟活动和发展社区推荐的健康意识， 利用国家儿童保育股的移动的卫生单位开展预防方案（SA 2）。临床研究实施核心 （CRIC）将提供临床和卫生服务研究方法方面的培训，并支持联合体成员 在生物统计学、数据科学和调查设计等领域（SA 3）。审评委还将与商业机构合作， 人口健康管理平台，设计和规划电子健康记录（EHR）集成（在 UH 3阶段）。在第二阶段（UH 3），审评委将执行一项严格和 具有竞争力的试点项目计划（2个试点项目，为期2-3年），并提供快速循环券（RCV）（3-6个月）， 质量改进和实施科学项目（SA 4），并执行EHR集成，数据 为联盟成员提供存储和分析功能，以加速集成医疗服务研究， 并报告人口健康指标（SA 5）。评价和传播股将继续 评估并与两个核心（审评委、CEC）和RCMI协调中心密切合作， 衡量标准，并向公共机构提出成功调查结果的建议（SA 6）。总而言之，拟议的 PBERN将大大增加以实践为基础的研究，以实现北卡罗来纳州之间的医疗保健公平。 卡罗莱纳最脆弱的人遭受着健康的不平等。

ABSTRACT North Carolina (NC) is home to five Practice-Based Research Networks (PBRN) supported and maintained by large academic research centers and healthcare systems with no to very limited engagement with free community clinics and practitioners that care for uninsured patients. NC ranks #32 in the United States for health outcomes and is ranked the fifth-worst state for health care with alarming racial health disparities in infant mortality, diabetes, kidney disease, and many chronic and acute conditions. The North Carolina Central University (NCCU) Research Centers at Minority Institutions (RCMI) has successfully and effectively engaged underserved communities. This proposal aims to establish an RCMI-led Clinical Research Network for Health Equity (CRNHE) to address gaps in clinic-based research and improve health care for uninsured patients. This innovative CRNHE called as NCCU RCMI Practice-Based Equity Research Network (PBERN) will bring together college student health clinic, Federally Qualified Health Centers (FQHCs), free and charitable clinics, and local public health departments, all of which extensively serve uninsured and vulnerable populations. The three specific aims for the UG3 planning phase entail constructing the PBERN. The Administrative core (Admin Core) will oversee and manage the PBERN including formation of a patient/community advisory board and an external advisory committee of providers, craft a charter for the consortium, and memoranda of understanding for partner practices (SA1). The Community Engagement Core (CEC) will aim to integrate voices of the community, patients, and providers through consortium activities and develop community-recommended health awareness and prevention programs using the NCCU mobile health units (SA2). The Clinical Research Implementation Core (CRIC) will provide training in clinical and health services research methods and support consortium members in areas such as biostatistics, data science and survey design (SA3). The CRIC will also partner with commercial population health management platform, to design and plan for electronic health record (EHR) integration (during UH3 phase) across network clinics. During the second (UH3) phase, the CRIC will implement a rigorous and competitive pilot project program (2 pilots for 2-3 years) and offer rapid cycle vouchers (RCV) (3-6 months) for quality improvement and implementation science projects (SA4) and execute plans for EHR integration, data storage and analytics for consortium members to accelerate integrated health services research, and measure and report population health metrics (SA5). The Evaluation and Dissemination Unit (EDU) will continuously assess and work closely with the 2 cores (CRIC, CEC) and RCMI Coordinating Center to develop common metrics and make recommendations to public agencies for successful findings (SA6). In sum, the proposed PBERN will dramatically increase practice-based research that seeks to achieve health care equity among North Carolina’s most vulnerable suffering health disparities.