Mental Health in Autistic Adults: An RDoC Approach

成人自闭症患者的心理健康：RDoC 方法

• 批准号: 10523165
• 负责人: Kelly Battle Beck
• 金额: $ 32.58万
• 依托单位: UNIVERSITY OF PITTSBURGH AT PITTSBURGH
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-09-06 至 2027-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10523165
• 关键词: Address; Advocate; Ally; Attention; Awareness; Chronic; Clinic; Clinical; Color; Communication; Communities; Continuing Education; Diagnostic Services; Environment; Event; Family; Fellowship Program; Female; Festival; Financial Support; Generations; Intellectual functioning disability; International; Manuscripts; Mental Health; Methods; Minority-Serving Institution; Primary Health Care; Procedures; Production; Provider; Psychiatric Hospitals; Publishing Peer Reviews; Race; Research; Research Domain Criteria; Research Personnel; Resources; Role; Rural; Sampling; Scholarship; Science; Scientist; Secondary Schools; Series; Services; Speed; Students; Time; Training; Training Activity; Translational Research; Twitter; Universities; Visit; Vocational rehabilitation; Voice; Work; Writing; adult with autism spectrum disorder; autism spectrum disorder; autistic; base; care providers; career; career development; community center; community engagement; community partnership; cost; disadvantaged background; ethnic identity; experience; graduate student; health disparity; health inequalities; individuals with autism spectrum disorder; innovation; interest; intersectionality; member; minority investigator; novel; racial identity; recruit; research in practice; research to practice; sex; social; social media; success; suicidal risk; symposium; undergraduate student; web site

ABSTRACT– Dissemination and Partnership Core The Dissemination and Partnership Core uses novel participatory methods to engage the autistic community while simultaneously developing the careers of researchers from diverse backgrounds and lived experiences. In these efforts, the primary aims of the Dissemination and Partnership Core are to: (1) Establish and convene the Autistic Partners Group to enhance all Center community engagement, dissemination, and training activities. We will use participatory methods to establish the Autistic Partners Group, a team of diverse autistic community members that will partner with investigators for all community engagement, dissemination, and training efforts. Convening of the Autistic Partners Group will be co-facilitated by a researcher and autistic community leader ten times annually; (2) Create an inclusive and supportive research environment that attends to intersectionality and prioritizes engaging diverse autistic adults and their allies. Using messaging co- developed in our Autistic Partners Group (Specific Aim 1), we will engage with community partners to prioritize participation by autistic adults from groups that have been marginalized (e.g. racial and ethnic identities, female sex, LGBTQIA+ community, intellectual disability, and rural and under-resourced communities). Using established partnerships, we will engage in community activities, such as ‘pop-up’ events and registering a booth at the local Pride festival, to increase visibility and enhance recruitment efforts in intersectional communities; (3) Partner with autistic adults to co-develop materials for disseminating research to autistic and neurodiverse communities. We will partner with local autistic adults to co-develop dissemination materials (e.g. infographics; photographic representation; videography; social stories; the Center website) to distribute in the community; (4) Speed the translation of research to practice by disseminating findings to community-based providers serving autistic adults. Each year, we will host a continuing education seminar series on mental health and suicide risk of autistic adults across 4 different practitioner settings (i.e. psychiatric hospitals, primary care providers, post-secondary education and vocational rehabilitation, and community mental health clinics); (5) Enhance the scientific community by disseminating our research of impact broadly; and (6) Enhance diversity in the autism scientific community by developing careers of students and early career investigators. We will facilitate monthly Center-wide career development seminars and writing clubs for all Center trainees, with an emphasis on supporting new investigators from diverse and disadvantaged backgrounds. The Dissemination and Partnership core will work together with the Clinical Core to prioritize research participation by autistic adults from groups that have been marginalized. This will simultaneously expand and strengthen our community partnerships while enhancing recruitment of diverse autistic adults. This participatory approach will address existing structural inequities in autism research, by centering the voices of the autistic community and increasing diversity in sampling pools and among scientific researchers.

摘要-传播和伙伴关系核心 传播和伙伴关系核心使用新颖的参与式方法来吸引自闭症社区 同时发展来自不同背景和生活经历的研究人员的职业生涯。 在这些努力中，传播和伙伴关系核心的主要目标是： 自闭症合作伙伴小组，以加强所有中心社区的参与，传播和培训 活动我们将采用参与式的方法建立自闭症伙伴小组，一个由不同自闭症患者组成的团队， 社区成员将与调查人员合作，进行所有社区参与、传播和 培训工作。自闭症伙伴小组的召集将由一名研究人员和自闭症患者共同主持。 社区领袖每年十次;（2）创造一个包容和支持的研究环境， 交叉性和优先事项参与不同的自闭症成年人和他们的盟友。使用消息传递合作- 在我们的自闭症合作伙伴小组（具体目标1）中开发，我们将与社区合作伙伴合作， 来自被边缘化群体（例如种族和民族身份， 女性，LGBTQIA+社区，智力残疾，农村和资源不足的社区）。使用 建立了合作伙伴关系，我们将参与社群活动，如“弹出式”活动和注册一个 在当地的骄傲节摊位，以提高知名度，并加强招聘工作，在交叉 （3）与自闭症成年人合作，共同开发向自闭症患者传播研究的材料， 神经多样性社区。我们会与本地的自闭症成年人合作，共同制作宣传材料（例如： 信息图表;摄影表现;录像;社会故事;中心网站）， （4）通过向社区传播研究成果，加快研究成果转化为实践 为自闭症成年人提供服务。每年，我们都会举办一系列关于心理健康的持续教育研讨会。 在4个不同的医生环境中（即精神病医院， 初级保健提供者、中学后教育和职业康复以及社区精神卫生 （5）通过广泛传播我们的影响研究来加强科学界;以及（6） 通过发展学生的职业生涯和早期职业生涯，增强自闭症科学界的多样性 investigators.我们将促进每月中心范围内的职业发展研讨会和写作俱乐部的所有 中心学员，重点是支持来自不同和弱势群体的新研究人员 背景传播和伙伴关系核心将与临床核心合作， 来自边缘化群体的自闭症成年人参与研究。这将同时 扩大和加强我们的社区伙伴关系，同时加强对不同自闭症成年人的招募。这 参与式方法将解决自闭症研究中现有的结构性不平等， 自闭症群体和越来越多的多样性，在抽样池和科学研究人员。