Mental Health in Autistic Adults: An RDoC Approach

成人自闭症患者的心理健康：RDoC 方法

• 批准号: 10698088
• 负责人: Kelly Battle Beck
• 金额: $ 31.94万
• 依托单位: UNIVERSITY OF PITTSBURGH AT PITTSBURGH
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-09-06 至 2027-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10698088
• 关键词: Advocate; Ally; Attention; Awareness; Chronic; Clinic; Clinical; Color; Communication; Communities; Continuing Education; Dedications; Diagnosis; Environment; Event; Family; Fellowship Program; Female; Festival; Financial Support; Generations; Inequity; Intellectual functioning disability; International; Manuscripts; Mental Health; Methods; Minority-Serving Institution; Photography; Primary Care; Procedures; Production; Provider; Psychiatric Hospitals; Publishing Peer Reviews; Research; Research Domain Criteria; Research Personnel; Research Priority; Resources; Role; Rural; Sampling; Scholarship; Science; Scientist; Secondary Schools; Series; Services; Speed; Students; Training; Training Activity; Translational Research; Twitter; Universities; Visit; Vocational rehabilitation; Voice; Work; Writing; adult with autism spectrum disorder; autism spectrum disorder; autistic; career; career development; community center; community engagement; community partnership; cost; disadvantaged background; ethnic identity; experience; graduate student; health disparity; health inequalities; individuals with autism spectrum disorder; innovation; interest; intersectionality; marginalization; member; minority investigator; novel; primary care provider; racial identity; racial population; recruit; research in practice; research to practice; sex; social; social media; success; suicidal risk; symposium; undergraduate student; web site

ABSTRACT– Dissemination and Partnership Core The Dissemination and Partnership Core uses novel participatory methods to engage the autistic community while simultaneously developing the careers of researchers from diverse backgrounds and lived experiences. In these efforts, the primary aims of the Dissemination and Partnership Core are to: (1) Establish and convene the Autistic Partners Group to enhance all Center community engagement, dissemination, and training activities. We will use participatory methods to establish the Autistic Partners Group, a team of diverse autistic community members that will partner with investigators for all community engagement, dissemination, and training efforts. Convening of the Autistic Partners Group will be co-facilitated by a researcher and autistic community leader ten times annually; (2) Create an inclusive and supportive research environment that attends to intersectionality and prioritizes engaging diverse autistic adults and their allies. Using messaging co- developed in our Autistic Partners Group (Specific Aim 1), we will engage with community partners to prioritize participation by autistic adults from groups that have been marginalized (e.g. racial and ethnic identities, female sex, LGBTQIA+ community, intellectual disability, and rural and under-resourced communities). Using established partnerships, we will engage in community activities, such as ‘pop-up’ events and registering a booth at the local Pride festival, to increase visibility and enhance recruitment efforts in intersectional communities; (3) Partner with autistic adults to co-develop materials for disseminating research to autistic and neurodiverse communities. We will partner with local autistic adults to co-develop dissemination materials (e.g. infographics; photographic representation; videography; social stories; the Center website) to distribute in the community; (4) Speed the translation of research to practice by disseminating findings to community-based providers serving autistic adults. Each year, we will host a continuing education seminar series on mental health and suicide risk of autistic adults across 4 different practitioner settings (i.e. psychiatric hospitals, primary care providers, post-secondary education and vocational rehabilitation, and community mental health clinics); (5) Enhance the scientific community by disseminating our research of impact broadly; and (6) Enhance diversity in the autism scientific community by developing careers of students and early career investigators. We will facilitate monthly Center-wide career development seminars and writing clubs for all Center trainees, with an emphasis on supporting new investigators from diverse and disadvantaged backgrounds. The Dissemination and Partnership core will work together with the Clinical Core to prioritize research participation by autistic adults from groups that have been marginalized. This will simultaneously expand and strengthen our community partnerships while enhancing recruitment of diverse autistic adults. This participatory approach will address existing structural inequities in autism research, by centering the voices of the autistic community and increasing diversity in sampling pools and among scientific researchers.

摘要--传播与伙伴关系核心 传播和伙伴关系核心使用新的参与性方法来吸引自闭症社区 同时发展来自不同背景和生活经验的研究人员的职业生涯。 在这些努力中，传播和伙伴关系核心的主要目标是：(1)建立和召集 自闭症合作伙伴小组，以加强所有中心社区的参与、传播和培训 活动。我们将使用参与性方法建立自闭症伙伴小组，这是一个由不同自闭症患者组成的团队 社区成员将与调查人员合作，进行所有社区参与、传播和 培训方面的努力。自闭症伙伴小组的召开将由一名研究人员和自闭症患者共同主持 社区领袖每年十次；(2)创造包容和支持性的研究环境 以交叉性和优先接触不同的自闭症成年人和他们的盟友。使用消息传递协作- 在我们的自闭症合作伙伴小组(特定目标1)中开发，我们将与社区合作伙伴接触，以确定优先事项 来自被边缘化群体的自闭症成年人的参与(例如，种族和民族认同， 女性、LGBTQIA+社区、智力残疾、农村和资源不足社区)。vbl.使用 建立伙伴关系后，我们将参与社区活动，例如弹出窗口活动和注册 在当地的Pride节日上设立展位，以提高知名度并加强跨部门的招聘工作 社区；(3)与自闭症成年人合作，共同编写材料，向自闭症患者和 神经多样化的社区。我们将与本地自闭症成年人合作，共同开发宣传材料(例如 信息图表；摄影表现；录像；社会故事；中心网站)在 社区；(4)通过将研究成果传播到社区，加快将研究转化为实践 为自闭症成年人提供服务的提供者。每年，我们都会举办一系列有关精神健康的持续教育研讨会。 4个不同从业者环境中自闭症成人的健康和自杀风险(即精神病院， 初级保健提供者、中学后教育和职业康复以及社区精神卫生 诊所)；(5)通过广泛传播我们对影响的研究来加强科学界；以及(6) 通过发展学生的职业生涯和早期职业生涯，增强自闭症科学界的多样性 调查人员。我们将每月为所有人举办中心范围内的职业发展研讨会和写作俱乐部 中心受训人员，重点是支持来自不同群体和弱势群体的新调查人员 背景。传播和伙伴关系核心将与临床核心合作，以确定优先事项 来自被边缘化群体的自闭症成年人参与研究。这将同时 扩大和加强我们的社区伙伴关系，同时促进招募不同的自闭症成年人。这 参与式方法将解决自闭症研究中现有的结构性不平等问题，通过以下方式 自闭症社区以及采样池和科学研究人员之间日益增加的多样性。