Adaptation of a Digital Health Intervention for Chronic Condition Related fatigue to the Latino population

针对拉丁裔人群慢性病相关疲劳的数字健康干预措施的适应

• 批准号: 10697435
• 负责人: Luis Fernandez Luque
• 金额: $ 28.62万
• 依托单位: ADHERA HEALTH, INC.
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-08-07 至 2024-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10697435
• 关键词: Address; Adoption; Affect; Alternative Health; Anxiety; Arthritis; Artificial Intelligence; Caregivers; Child; Chronic; Clinical; Cognitive; Cognitive Therapy; Communities; Diabetes Mellitus; Diagnostic; Dimensions; Disease; Distress; Education; Educational workshop; Elements; Emotional; Ensure; Equity; Ethnic Population; Fatigue; Feedback; Foundations; Future; Goals; Health; Health Care Costs; Health Disparities Research; Health Expenditures; Health Personnel; Healthcare; Hospitals; Inequality; Insulin-Dependent Diabetes Mellitus; Intervention; Latino; Latino Population; Long COVID; Malignant Neoplasms; Marketing; Measures; Mental Health; Methods; Minority Groups; Modeling; Multiple Sclerosis; National Institute on Minority Health and Health Disparities; Nurses; Pain; Parents; Participant; Patients; Persons; Phase; Physicians; Population; Population Heterogeneity; Quality of life; Quantitative Evaluations; Research; Research Methodology; Rheumatoid Arthritis; Risk Reduction; Self Management; Service delivery model; Site; Somatotropin; Stress; Symptoms; System; Techniques; Underrepresented Minority; Underserved Population; United States; Validation; Work; addiction; anticancer treatment; aspirate; bilingualism; biopsychosocial; chronic pain; commercialization; coping; cost; design; digital; digital health; disabling symptom; empowerment; evidence base; health disparity; health disparity populations; health equity; health inequalities; health literacy; implementation design; implementation strategy; insight; minority health; minority health disparity; mobile application; physical conditioning; preservation; programs; psychosocial; racial population; risk minimization; social factors; software as a service; tool; treatment adherence; uptake; usability

Chronic Condition-related Fatigue (CCrF) is a distressing sense of physical, emotional and/or cognitive tiredness that negatively impacts the quality of life (reduced workability, poor anti-cancer treatment adherence) and healthcare expenditure (e.g., over $9,322 annually) of those affected. CCrF is a persistent problem across chronic conditions such as cancer, multiple sclerosis, rheumatoid arthritis, and diabetes, which also affects their caregivers. An estimated 5 million people in the United Stated (US) are living with fatigue associated with chronic conditions. Moreover, Latinos are disproportionally affected by fatigue or its contributing factors (e.g., pain and stress) in many of those conditions. Studies suggest the potential of trans-diagnostics interventions (energy preservation, psycho- social education, cognitive behavioral therapy, etc.) for coping with CCrF. However, despite the substantial burden of fatigue, there are no digital health solutions in the market that address the fatigue support needs by applying such trans-diagnostics interventions. Furthermore, often studies of digital health solutions underrepresent minorities, potentially producing health disparities, such as lower adoption by US Latinos. The Adhera® Fatigue Digital Program (AFDP) builds on the principles of transdiagnostics interventions for providing fatigue self-management empowerment to people across different conditions with advanced artificial intelligence-based personalization techniques. The AFDP is part of the Adhera Health’s evidence-based Precision Digital CompanionTM platform, which is already being used in dozens of hospitals for various conditions. The objectives of this Phase I project are: Aim 1) Assess the acceptability of the Adhera® Fatigue Digital Program by the US Latino population. Milestone: the AFDP accepted by Latino populations, measured with uMARS (average of 4 out of 5 stars) and SUS (average usability score of more than 75). Aim 2) Design the implementation strategy for AFDP in the urban Latino community. Milestone: Completed implementation strategy and accepted by 3 healthcare providers for initial pilots. The key aspiration for Phase I, combined with further clinical validation in Phase II, is to obtain scientific validation that will set the foundation for the future commercialization of Adhera® Fatigue in a Software-as-a-Service model that will target the healthcare providers and payors that cover the underserved population of US Latinos living with CCrF, which represents a substantial and growing part of healthcare costs in the US.

慢性疲劳（Chronic condition related Fatigue, CCrF）是一种身体、情绪和/或生理上的痛苦感觉