Developing Partnerships to Advance Precision Medicine with AI/AN Tribal Nations
与 AI/AN 部落国家发展伙伴关系以推进精准医疗
基本信息
- 批准号:10831184
- 负责人:
- 金额:$ 30万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2023
- 资助国家:美国
- 起止时间:2023-07-01 至 2028-06-30
- 项目状态:未结题
- 来源:
- 关键词:AccelerationAdoptedAgreementAlaska NativeAll of Us Research ProgramAmerican IndiansBiomedical ResearchCardiovascular DiseasesClinical TrialsCollaborationsCommunitiesConsultationsCustomDiabetes MellitusEconomic DevelopmentFailureFederal GovernmentFeedbackGeographyGoalsGovernmentHealthIndigenousLawsLeftLongitudinal StudiesMalignant NeoplasmsMedicalMental HealthMissionParticipantPilot ProjectsPopulationPopulation SizesProcessReadinessResearchResearch InfrastructureResourcesRuralScienceStrategic PlanningStructureSuicideSurveysTribal CouncilTribesTrustUnited StatesUnited States National Institutes of HealthUrban CommunityWorkanticancer researchcohortdisparities in morbidityexperiencegenetic testinghealth equityinformation gatheringinterestmembermortalityphysical conditioningpilot testprecision medicinepreventprogramsracial populationresearch studyscale upsuccesstooltribal Nationtribal communitytribal healthtribal leaderurban Native American
项目摘要
ABSTRACT
American Indians and Alaska Natives (AIAN) are less likely to participate in longitudinal
studies, in clinical trials, and in genetic testing and are a hard-to-reach population due to small
overall population size and a general mistrust of science, research, and the Federal government.
To meet their inclusion goals, the All of Us program (AOU) must continue to build trust with
Tribal Nations. Our proposed project is developed specifically to build trust through strategies
that honor key values identified by community members and Tribal leaders.
One of the commitments NIH/AOU made following the Tribal consultation process is to “first
engage with tribal communities through smaller pilot projects with Tribal Nations and urban
and rural tribal communities and will use the information gathered to evaluate the successes and
failures before scaling up any collaborations with tribes.”
To help AOU meet this promise the community readiness assessment (CRA) will identify
nations that are interested in pilot projects and which need greater support in capacity building to
do so. A community readiness survey will be developed and pilot tested. We will work with
Tribal/Community Advisors to develop and implement the survey(s), and tools and guidance in
supporting capacity building efforts for Tribes/communities at lower levels of readiness. We aim
to:
• Establish an Advisory Council of Tribal and urban AIAN community leaders to develop
and implement a Community Readiness Assessment (CRA) survey;
• Provide feedback to support Tribal partners and the AOU research program to prioritize
appropriate strategies for building partnerships;
• Document best practices in building such partnerships;
• In collaboration with the AOU Tribal Engagement Office, develop a strategic plan for
long-term Tribal engagement for the program; and
• Present the products/materials to the NIH Tribal Advisory Council for endorsement.
摘要
美国印第安人和阿拉斯加原住民(AIAN)不太可能参与纵向
研究、临床试验和基因测试,由于数量少,很难接触到
总体人口规模和对科学、研究和联邦政府的普遍不信任。
为了实现他们的纳入目标,我们所有人计划(AOU)必须继续与
部落国家。我们提议的项目是专门为通过战略建立信任而开发的
这是对社区成员和部落首领确定的关键价值观的尊重。
NIH/AOU在部落协商进程之后作出的承诺之一是“首先
通过与部落国家和城市社区开展较小规模的试点项目,与部落社区接触
和农村部落社区,并将利用收集到的信息来评估成功和
在扩大与部落的任何合作之前都会失败。
为了帮助AOU实现这一承诺,社区就绪评估(CRA)将确定
对试点项目感兴趣并需要在能力建设方面提供更大支持的国家
就这么做吧。将制定一项社区准备情况调查并进行试点测试。我们将与
制定和实施调查的部落/社区顾问(S),以及工具和指导
支持处于较低戒备水平的部落/社区的能力建设努力。我们的目标是
致:
·建立部落和城市AIAN社区领袖咨询委员会,以发展
并实施社区准备情况评估(CRA)调查;
·提供反馈,支持部落合作伙伴和AOU研究方案确定优先顺序
建立伙伴关系的适当战略;
·记录建立这种伙伴关系的最佳做法;
·与阿拉伯联盟部落接触办公室合作,制定战略计划
该方案的长期部落参与;以及
·将产品/材料提交给NIH部落咨询委员会批准。
项目成果
期刊论文数量(0)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
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Teshia G. Arambula Solomon其他文献
Geographic Variation in Trends and Characteristics of Teen Childbearing among American Indians and Alaska Natives, 1990–2007
1990 年至 2007 年美洲印第安人和阿拉斯加原住民青少年生育趋势和特征的地理变化
- DOI:
- 发表时间:
2012 - 期刊:
- 影响因子:2.3
- 作者:
P. Wingo;Catherine A Lesesne;Ruben A. Smith;L. de Ravello;David K. Espey;Teshia G. Arambula Solomon;Myra J. Tucker;Judith Thierry - 通讯作者:
Judith Thierry
Alcohol Use Disorder Visits and Suicide Ideation Diagnosis: Racial/Ethnic Differences at Emergency Departments
- DOI:
10.1016/j.amepre.2023.06.011 - 发表时间:
2023-12-01 - 期刊:
- 影响因子:
- 作者:
James K. Cunningham;Teshia G. Arambula Solomon;Jamie Ritchey;Barry D. Weiss - 通讯作者:
Barry D. Weiss
Teshia G. Arambula Solomon的其他文献
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{{ truncateString('Teshia G. Arambula Solomon', 18)}}的其他基金
UA Student Dev: Rising Stars Program for AI/AN Students at UArizona
UA 学生开发:亚利桑那大学 AI/AN 学生新星计划
- 批准号:
10438232 - 财政年份:2022
- 资助金额:
$ 30万 - 项目类别:
UA Student Dev: Rising Stars Program for AI/AN Students at UArizona
UA 学生开发:亚利桑那大学 AI/AN 学生新星计划
- 批准号:
10701680 - 财政年份:2022
- 资助金额:
$ 30万 - 项目类别:
UA Student Development: Data Warriors Fellowship Program
UA 学生发展:数据战士奖学金计划
- 批准号:
10700055 - 财政年份:2021
- 资助金额:
$ 30万 - 项目类别:
UA Student Development: Data Warriors Fellowship Program
UA 学生发展:数据战士奖学金计划
- 批准号:
10223676 - 财政年份:2021
- 资助金额:
$ 30万 - 项目类别:
UA Student Development: Data Warriors Fellowship Program
UA 学生发展:数据战士奖学金计划
- 批准号:
10493138 - 财政年份:2021
- 资助金额:
$ 30万 - 项目类别:
NARCH Undergraduate Student Career Enhancement Project
NARCH 本科生职业提升项目
- 批准号:
10244908 - 财政年份:2018
- 资助金额:
$ 30万 - 项目类别:
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