Extending Digital Survivorship Needs Assessment Planning Tools to Enhance Communication in the Head and Neck Cancer Survivor-Caregiver-Provider Triad

扩展数字化生存者需求评估规划工具，以加强头颈癌生存者-护理者-提供者三人组中的沟通

• 批准号: 10831265
• 负责人: Katherine Regan Sterba
• 金额: $ 9.68万
• 依托单位: MEDICAL UNIVERSITY OF SOUTH CAROLINA
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-01-01 至 2026-12-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10831265
• 关键词: Activities of Daily Living; Address; Administrative Supplement; Administrator; Aftercare; Appearance; Cancer Survivor; Caregiver Burden; Caregivers; Caring; Clinic; Clinical; Communication; Communities; Data; Data Analyses; Deglutition; Development; Dimensions; Educational Materials; Electronic Health Record; Emotional; Ensure; Enteral Feeding; Face; Future; Generations; Head and Neck Cancer; Head and neck structure; Health Personnel; Healthcare; Home; Information Technology; Infrastructure; Intervention; Interview; Left; Link; Maps; Mental Depression; Methods; Monitor; Needs Assessment; Oncology; Parents; Patient-Centered Care; Patients; Personal Satisfaction; Protocols documentation; Provider; Randomized, Controlled Trials; Recommendation; Reporting; Research; Resources; Schedule; Science; Self Care; Self Management; Severities; Specialist; Speech; Summary Reports; Supportive care; Surveys; Survivors; Symptoms; System; Tablets; Taxes; Technology; Testing; Training; Treatment-related toxicity; addiction; cancer care; caregiving; digital; digital health; disability; experience; follow-up; health care service utilization; implementation strategy; improved; interest; medical specialties; multidisciplinary; parent grant; patient oriented; patient portal; primary care provider; primary outcome; provider communication; response; skills; social; survivorship; symptom management; theories; time use; tool; wound care

PROJECT SUMMARY This application is being submitted in response to the Notice of Special Interest (NOSI) identified as NOT-CA- 23-041. Head and neck cancer (HNC) survivors and their caregivers experience devastating physical, emotional and social challenges at the end of treatment. Dyadic interventions are needed to address dyads’ unique needs and link them to timely healthcare and supportive care resources. The survivorship needs assessment planning (SNAP) digital health tool includes a comprehensive needs assessment for survivors and caregivers, tailored care plans and a supportive App. To prepare SNAP for wide dissemination, in the proposed research we will improve understanding of how to share SNAP care plan and App data across survivors, caregivers and multi- disciplinary healthcare providers to ultimately improve care experiences. We will examine SNAP’s effects on communication and patient-centered care and characterize best practices to promote SNAP information-sharing within the survivor-caregiver-provider triad. Using a participatory approach and mixed methods with survivors, caregivers, multi-disciplinary oncology and community providers and clinic and information technology administrators, the specific aims of this administrative supplement are to 1) evaluate the capacity of SNAP and mechanisms to improve survivor-caregiver-provider communication guided by the Unified Theory of Acceptance and Use of Technology and 2) characterize optimal implementation strategies for integrating SNAP care plan and App data into clinical workflows (e.g., patient portals, electronic health record prompts, alerts and reports for oncology specialists and primary care providers) to enhance survivor-caregiver-provider communication. SNAP seeks to enhance patient-centered car by assessing and addressing survivor and caregiver needs and values. This supplement will enhance the parent study by extending our research to take the critical next steps in evaluating the potential and mechanisms underlying SNAP’s impact on communication and receipt of patient- centered care. The study will improve the delivery of SNAP and result in products (e.g., protocols, prompts, App alerts and summary reports) to ensure the timely use of SNAP data in practice.

项目总结