A Surviorship Planning Tool for Head and Neck Cancer Patients and Caregivers

头颈癌患者和护理人员的生存规划工具

• 批准号: 8509854
• 负责人: Katherine Regan Sterba
• 金额: $ 19.49万
• 依托单位: MEDICAL UNIVERSITY OF SOUTH CAROLINA
• 依托单位国家: 美国
• 财政年份: 2013
• 资助国家: 美国
• 起止时间: 2013-04-01 至 2015-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8509854
• 关键词: Address; Aftercare; Alcohol abuse; Attention; Breathing; Cancer Patient; Cancer Survivor; Cancer Survivorship; Caregivers; Caring; Clinic; Clinical; Communication; Communication Barriers; Complex; Computers; Consensus; Control Groups; Coping Behavior; Data; Data Collection; Deglutition; Development; Equipment; Face; Family; Focus Groups; Frequencies; Generations; Goals; Guidelines; Head and Neck Cancer; Health Personnel; Healthcare; Individual; Institute of Medicine (U.S.); Intervention; Intervention Trial; Interview; Life Experience; Life Style; Link; Malignant Neoplasms; Medical; Methods; Modeling; Needs Assessment; Operative Surgical Procedures; Outcome; Patients; Phase; Physical Function; Preparation; Process; Protocols documentation; Provider; Quality of life; Readiness; Recommendation; Reporting; Research; Research Design; Resources; Smoking; Social Functioning; South Carolina; Specialist; Survivors; Symptoms; Tablets; Technology; Testing; Time; Work; clinical practice; experience; follow-up; head and neck cancer patient; improved; informant; innovation; member; multi-site trial; multidisciplinary; novel; oncology; outcome forecast; patient population; preference; psychosocial; public health relevance; survivorship; tool; tool development; touchscreen; treatment duration

DESCRIPTION (provided by applicant): The field of survivorship research is rapidly expanding but more research is needed to address the long-term clinical and psychosocial outcomes in individuals with understudied cancers. Head and neck cancer has significant effects on patient functioning and quality of life, but the experiences of patients and their caregivers after treatment remain understudied. Building on our interdisciplinary team's preliminary studies, the overall goal of the proposed research is to improve psychosocial and clinical outcomes in head and neck cancer patient-caregiver dyads by implementing a multi-level clinic intervention to prepare dyads for the post- treatment period. In preparation for a large-scale dyadic intervention trial, we will develop and pilot-test an innovative survivorship needs assessment planning (SNAP) tool. The SNAP tool will use touch-screen tablet technology to address communication barriers faced by patients and will systematically assess and address the specialized needs of head and neck cancer patients and their caregivers after treatment with the generation of a personalized care plan. The specific aims of this R21 are to 1) develop and pretest a specialized touch screen tablet computer survivorship needs assessment planning tool for head and neck cancer patients and their primary caregivers after treatment and 2) pilot-test the implementation of the SNAP tool in real time in the oncology clinic (N=30 dyads). In phase one of this research, we will conduct focus groups (n=4) with patients and caregivers and key informant interviews (n=15) with multi-disciplinary health care providers to characterize optimal domains for inclusion in the SNAP tool and examine views on implementing the SNAP tool in the clinic. An expert panel will evaluate the content validity of the SNAP tool domains and match key local support resources for the SNAP tool care plan template. In the second phase of this research, we will pilot-test the acceptability, feasibility ad short-term impact of the SNAP tool in real time. The proposed research will result in a finalized SNAP tool and care plan template for use in research and clinical practice. This research is significant because it focuses on an understudied patient population and extends a survivorship care planning model to caregivers. Results from this research will inform the development of a survivorship care intervention targeting multiple levels (individual, interpersonal and organizational factors). Ultimately, this research aims to improve the quality of survivorship care for head and neck cancer patients and their caregivers at the transition from multidisciplinary specialist care to the follow-up care period.

生存研究领域正在迅速扩大，但需要更多的研究来解决未充分研究癌症患者的长期临床和心理社会结局。头颈部癌症对患者的功能和生活质量有显着影响，但患者及其护理人员在治疗后的经历仍未得到充分研究。在我们跨学科团队的初步研究的基础上，拟议研究的总体目标是通过实施多层次的临床干预来改善头颈癌患者-护理者二人组的心理社会和临床结果，为治疗后阶段做好准备。为了准备大规模的二元干预试验，我们将开发和试点测试一种创新的生存需求评估计划（SNAP）工具。SNAP工具将使用触摸屏平板电脑技术来解决患者面临的沟通障碍，并将系统地评估和解决头颈癌患者及其护理人员在治疗后的特殊需求，并生成个性化护理计划。该R21的具体目标是：1）开发和预测试一种专门的触摸屏平板电脑生存需求评估计划工具，用于头颈部癌症患者及其治疗后的主要护理人员; 2）在肿瘤诊所中对SNAP工具的实施进行真实的试点测试 （N=30对）。在本研究的第一阶段，我们将与患者和护理人员进行焦点小组（n=4），并与多学科医疗保健提供者进行关键信息访谈（n=15），以确定纳入SNAP工具的最佳领域，并研究在临床中实施SNAP工具的意见。专家小组将评估内容的有效性， SNAP工具域，并为SNAP工具保养计划模板匹配关键的本地支持资源。在本研究的第二阶段，我们将在真实的时间内对SNAP工具的可接受性、可行性和短期影响进行试点测试。拟议的研究将产生一个最终的SNAP工具和护理计划模板，用于研究和临床实践。这项研究是重要的，因为它集中在一个研究不足的病人群体，并扩展了生存护理规划模型的照顾者。这项研究的结果将为针对多个层面（个人，人际和组织因素）的生存护理干预的发展提供信息。最终，这项研究旨在提高生存护理的质量 为头颈部癌症患者及其护理人员从多学科专科护理过渡到后续护理阶段提供的服务。