2023 Pediatric Dermatology Research Alliance (PeDRA) Annual Conference

项目总结 儿科皮肤科是一个相对年轻的专业，缺乏关于自然历史和 从婴儿期和儿童期开始的皮肤病的长期后果。此外，以证据为基础 大多数儿科疾病的护理指南、标准化治疗方案和FDA批准的疗法 皮肤病是少见的。儿科皮肤病研究联盟(PEDRA)成立于#年 2012年，以满足这些关键但尚未得到满足的需求。佩德拉的主要使命是创造、激励和维持 预防、治疗和治愈儿童皮肤病的研究。佩德拉的长期目标是利用这样的 旨在改善皮肤病儿童健康状况的研究。年度会议一直是 Pedra的成功不可或缺，为教育调查人员、确定和确定优先事项提供了一个论坛 研究需求和机会，以及开发和发起创新项目。一种说教的结合 讲座和小组讨论、专家主导的小组讨论、海报会议和独特的培训机会 每一届佩德拉年会的基础。这项提案是为第11届佩德拉年会提出的， 计划于2023年11月举行，目标如下：1)提供教育和参与 关注以患者为中心、创新和跨领域协作以推动科学发展的机遇， 同时整合儿科皮肤病研究的公平性、多样性和包容性；2)推动现有 研究项目并在疾病领域和高优先主题中制定新的研究优先事项和倡议 横跨儿科皮肤科领域；以及3)为传播最终和正在进行的 研究结果来自一大批调查人员，面向包括患者利益相关者在内的不同受众， 行业代表和来自多个领域的研究人员，包括潜在的NIH合作者。这个 本次会议的预期成果是一套针对当前和未来的更成熟的研究技能 医生-科学家，提高工作效率，加强多方利益相关者网络，并进行高 高质量的研究。这些活动将加快儿科皮肤病研究的步伐，使临床医生 为了更好地了解、预防和治疗儿童皮肤病，并为患者和家属提供选择 管理疾病，并在未来做出知情的治疗决定。

PROJECT SUMMARY Pediatric dermatology is a relatively young specialty that has lacked robust data about the natural history and long-term outcomes of skin disorders that begin in infancy and childhood. In addition, evidence-based guidelines of care, standardized treatment protocols, and FDA-approved therapies for the majority of pediatric dermatologic disorders are sparse. The Pediatric Dermatology Research Alliance (PeDRA) was founded in 2012 to address these crucial yet unmet needs. PeDRA's primary mission is to create, inspire, and sustain research to prevent, treat, and cure childhood skin disease. The long-term goal of PeDRA is to leverage such research to improve the health outcomes of children with skin disorders. Annual conferences have been integral to the success of PeDRA, providing a forum for educating investigators, identifying and prioritizing research needs and opportunities, and developing and initiating innovative projects. A combination of didactic lectures and panels, expert-led small group discussions, poster sessions, and unique training opportunities are the foundation of every PeDRA Annual Conference. This proposal is for the 11th PeDRA Annual Conference, set to take place in November of 2023 with the following aims: 1) Provide education and engagement opportunities with a focus on patient-centricity, innovation, and cross-cutting collaboration to advance science, while integrating equity, diversity, and inclusion across pediatric dermatology research; 2) Advance existing research projects and develop new research priorities and initiatives in disease-areas and high-priority topics spanning the field of pediatric dermatology; and 3) Provide a forum for the dissemination of final and ongoing research results from a broad group of investigators to a diverse audience that includes patient stakeholders, industry representatives, and researchers from multiple fields including potential NIH collaborators. The expected outcomes of this conferrencer are a more developed set of research skills for current and future physician-scientists, enhanced productivity, strengthened multi-stakeholder networks, and the conduct of high- quality research. These activities will accelerate the pace of pediatric dermatology research, allowing clinicians to better understand, prevent and treat skin disease in children, and giving patients and families options to manage diseases and make informed treatment decisions in the future.