2023 Pediatric Dermatology Research Alliance (PeDRA) Annual Conference

2023年小儿皮肤病学研究联盟（PeDRA）年会

• 批准号: 10827095
• 负责人: Lisa Arkin
• 金额: $ 7.22万
• 依托单位: PEDIATRIC DERMATOLOGY RESEARCH ALLIANCE, INC
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-09-18 至 2024-09-21
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10827095
• 关键词: Acceleration; Address; Advocate; Area; Attention; Automobile Driving; Caregivers; Caring; Child; Child Welfare; Childhood; Clinical; Collaborations; Data; Dermatologic; Dermatology; Discipline; Disease; Disease Management; Education; Educational workshop; Exposure to; FDA approved; Family; Foundations; Future; Goals; Growth; Health; Industry; Institution; Journals; Longevity; Mentors; Mission; Natural History; Oral; Outcome; Patients; Persons; Physicians; Productivity; Publications; Research; Research Personnel; Research Priority; Research Project Grants; Role; Science; Scientist; Standardization; Strategic Planning; Subgroup; Therapeutic; Time; Training; Treatment Protocols; United States National Institutes of Health; Update; Vision; Well in self; Work; career; comorbidity; empowerment; equity, diversity, and inclusion; evidence based guidelines; healing; improved; infancy; innovation; interest; knowledge base; lectures; medical specialties; meetings; mobile application; posters; prevent; research and development; skills; skin disorder; social; success; symposium; therapeutic development; training opportunity

PROJECT SUMMARY Pediatric dermatology is a relatively young specialty that has lacked robust data about the natural history and long-term outcomes of skin disorders that begin in infancy and childhood. In addition, evidence-based guidelines of care, standardized treatment protocols, and FDA-approved therapies for the majority of pediatric dermatologic disorders are sparse. The Pediatric Dermatology Research Alliance (PeDRA) was founded in 2012 to address these crucial yet unmet needs. PeDRA's primary mission is to create, inspire, and sustain research to prevent, treat, and cure childhood skin disease. The long-term goal of PeDRA is to leverage such research to improve the health outcomes of children with skin disorders. Annual conferences have been integral to the success of PeDRA, providing a forum for educating investigators, identifying and prioritizing research needs and opportunities, and developing and initiating innovative projects. A combination of didactic lectures and panels, expert-led small group discussions, poster sessions, and unique training opportunities are the foundation of every PeDRA Annual Conference. This proposal is for the 11th PeDRA Annual Conference, set to take place in November of 2023 with the following aims: 1) Provide education and engagement opportunities with a focus on patient-centricity, innovation, and cross-cutting collaboration to advance science, while integrating equity, diversity, and inclusion across pediatric dermatology research; 2) Advance existing research projects and develop new research priorities and initiatives in disease-areas and high-priority topics spanning the field of pediatric dermatology; and 3) Provide a forum for the dissemination of final and ongoing research results from a broad group of investigators to a diverse audience that includes patient stakeholders, industry representatives, and researchers from multiple fields including potential NIH collaborators. The expected outcomes of this conferrencer are a more developed set of research skills for current and future physician-scientists, enhanced productivity, strengthened multi-stakeholder networks, and the conduct of high- quality research. These activities will accelerate the pace of pediatric dermatology research, allowing clinicians to better understand, prevent and treat skin disease in children, and giving patients and families options to manage diseases and make informed treatment decisions in the future.

项目摘要 儿科皮肤病学是一个相对年轻的专业，缺乏关于自然史的可靠数据， 开始于婴儿期和儿童期的皮肤病的长期结果。此外，循证 护理指南，标准化的治疗方案，以及FDA批准的大多数儿科 皮肤病很少。儿科皮肤病学研究联盟（Pediatric Dermatology Research Alliance）成立于 2012年，我们将努力满足这些尚未满足的关键需求。佩德拉的主要使命是创造、激励和维持 预防、治疗和治愈儿童皮肤病的研究。佩德拉的长期目标是利用 研究以改善患有皮肤病的儿童的健康状况。年度会议已 必不可少的成功佩德拉，提供了一个论坛，教育调查人员，确定和优先考虑 研究需求和机会，以及开发和启动创新项目。一种教学方法的结合 讲座和小组讨论、专家领导的小组讨论、海报会议和独特的培训机会， 每届佩德拉年会的基础。本提案是为第11届佩德拉年会提出的， 将于2023年11月举行，目标如下：1）提供教育和参与 机会，重点是以患者为中心，创新和跨领域合作，以推动科学， 同时在儿科皮肤病学研究中整合公平性，多样性和包容性; 2）推进现有的 研究项目，并在疾病领域和高优先主题中制定新的研究优先事项和倡议 跨越儿科皮肤病学领域;和3）提供一个论坛， 研究结果来自广泛的研究人员群体，面向包括患者利益相关者在内的各种受众， 行业代表和来自多个领域的研究人员，包括潜在的NIH合作者。的 这次会议的预期成果是一个更发达的研究技能，为当前和未来 医生-科学家，提高生产力，加强多方利益攸关方网络，以及开展高级别的 质量研究。这些活动将加快儿科皮肤病学研究的步伐，使临床医生 更好地了解，预防和治疗儿童皮肤病，并为患者和家庭提供选择， 管理疾病，并在未来做出明智的治疗决定。