2022 Pediatric Dermatology Research Alliance (PeDRA) Annual Conference

2022年小儿皮肤病学研究联盟（PeDRA）年会

• 批准号: 10607730
• 负责人: Lisa Arkin
• 金额: $ 7.25万
• 依托单位: PEDIATRIC DERMATOLOGY RESEARCH ALLIANCE, INC
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-09-20 至 2023-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10607730
• 关键词: Address; Affect; Area; Automobile Driving; Caring; Child; Child Welfare; Childhood; Clinical; Collaborations; Communities; Data; Dermatologic; Dermatology; Disease; Disease Management; Education; Educational workshop; Exposure to; FDA approved; Family; Foundations; Future; Goals; Growth; Health; Industry; Institution; Mentors; Mission; Natural History; Oral; Outcome; Patient Representative; Patient advocacy; Patients; Physicians; Productivity; Research; Research Personnel; Research Priority; Research Project Grants; Science; Scientist; Standardization; Therapeutic; Time; Treatment Protocols; United States National Institutes of Health; Update; Vision; Well in self; Work; burden of illness; care providers; career; equity diversity and inclusion; evidence based guidelines; healing; improved; infancy; innovation; interest; knowledge base; lectures; medical specialties; meetings; posters; prevent; research and development; skills; skin disorder; social; success; symposium; therapeutic development

PROJECT SUMMARY Pediatric dermatology is a relatively young specialty that has lacked robust data about the natural history and long-term outcomes of skin disorders that begin in infancy and childhood. In addition, evidence-based guidelines of care, standardized treatment protocols, and FDA-approved therapies for the majority of pediatric dermatologic disorders are sparse. The Pediatric Dermatology Research Alliance (PeDRA) was founded in 2012 to address these crucial yet unmet needs. PeDRA's primary mission is to create, inspire, and sustain research to prevent, treat, and cure childhood skin disease. The long-term goal of PeDRA is to leverage such research to improve the health outcomes of children with skin disorders. Annual conferences have been integral to the success of PeDRA, providing a forum for educating investigators, identifying and prioritizing research needs and opportunities, and developing and initiating innovative projects. A combination of didactic lectures, expert-led interactive discussions, skill-building workshops, panel and poster sessions, and disease- focused small-group sessions are the foundation of PeDRA's meetings. This proposal is for the 10th PeDRA Annual Conference, set to take place in November of 2022 with the following aims: 1) Provide education and engagement opportunities related to relevant research skills, building and leveraging community to advance science, and integrating equity, diversity, and inclusion across pediatric dermatology research; 2) Advance existing research projects and develop new research priorities within PeDRA's focus areas; and 3) Provide a forum for the dissemination of final and ongoing research results from a broad group of investigators to a diverse audience that includes patient stakeholders, industry representatives, and researchers from multiple fields including potential NIH collaborators. The expected outcomes of this meeting are a more developed set of research skills for current and future physician-scientists, enhanced productivity, strengthened networks, and the conduct of high-quality research. These activities will accelerate the pace of pediatric dermatology research, allowing clinicians to better understand, prevent and treat skin disease in children, and giving patients and families options to manage diseases and make informed treatment decisions.

项目摘要 儿科皮肤病学是一个相对年轻的专业，缺乏关于自然史的可靠数据， 开始于婴儿期和儿童期的皮肤病的长期结果。此外，循证 护理指南，标准化的治疗方案，以及FDA批准的大多数儿科 皮肤病很少。儿科皮肤病学研究联盟（Pediatric Dermatology Research Alliance）成立于 2012年，我们将努力满足这些尚未满足的关键需求。佩德拉的主要使命是创造、激励和维持 预防、治疗和治愈儿童皮肤病的研究。佩德拉的长期目标是利用 研究以改善患有皮肤病的儿童的健康状况。年度会议已 必不可少的成功佩德拉，提供了一个论坛，教育调查人员，确定和优先考虑 研究需求和机会，以及开发和启动创新项目。一种教学方法的结合 讲座、专家主导的互动讨论、技能建设讲习班、小组讨论和海报讨论会，以及疾病- 有重点的小组会议是佩德拉会议的基础。本提案是为第10届佩德拉会议提出的。 年度会议，定于2022年11月举行，目标如下：1）提供教育和 与相关研究技能相关的参与机会，建立和利用社区， 科学，并在儿科皮肤病学研究中整合公平，多样性和包容性; 2）推进 现有的研究项目，并制定新的研究优先事项在佩德拉的重点领域;和3）提供 一个论坛，用于将一大批研究人员的最终和正在进行的研究结果传播给 多样化的受众，包括患者利益相关者、行业代表和来自多个领域的研究人员 包括潜在的NIH合作者。本次会议的预期成果是一套更完善的 为当前和未来的医生-科学家提供研究技能，提高生产力，加强网络， 以及高质量研究的开展。这些活动将加快儿科皮肤科的步伐 研究，使临床医生能够更好地了解，预防和治疗儿童皮肤病，并给予 患者和家庭的选择，以管理疾病，并作出知情的治疗决定。