Internet Peer Support for Breast Cancer

乳腺癌的互联网同伴支持

• 批准号: 6728621
• 负责人: Mark S. Salzer
• 金额: $ 14.27万
• 依托单位: UNIVERSITY OF PENNSYLVANIA
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-04-01 至 2006-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6728621
• 关键词: Internet; breast neoplasms; clinical research; computer assisted patient care; computer human interaction; computer system design /evaluation; education evaluation /planning; educational resource design /development; emotional adjustment; female; functional ability; human subject; neoplasm /cancer education; patient oriented research; peer group; psychological aspect of cancer; social support network; women' s health

DESCRIPTION (provided by applicant): Peer support is consistently and unambiguously recognized as benefiting women with breast cancer in their emotional adjustment and functional status. In the face of these findings it is disconcerting that face-to-face peer support interventions remain underutilized as recent surveys indicate that only 12 percent of breast cancer patients have participated in such groups. Travel distance, time investment, fatigue, among other factors can limit the extent to which women with breast cancer obtain face-to-face psychosocial support. The Internet has emerged as an exciting and potentially valuable tool in delivering psychosocial and educational interventions to persons with cancer, including being used as a conduit for peer support. Internet peer support is accessible from ones own home 24 hours a day, seven days a week, features that plausibly increase the accessibility and utilization of peer support for those who do not attend face-to-face support. This R21 application responds to PA 02-001 from the National Cancer Institute that invites research grant applications to conduct exploratory behavioral research in cancer control, specifically around issues related to improving quality of life. The primary aim of this study is to obtain preliminary data on impact of Internet peer support on the well-being, adjustment, and functioning of women recently diagnosed with breast cancer. The proposed randomized study will provide data on the potential effectiveness of Internet peer support that if promising, will serve as the basis for a future R01 proposal. Internet peer support will be offered as an adjunct to Internet education provided through ONCOLINK, an Internet site devoted to cancer education and outreach that is administratively operated and controlled by the University of Pennsylvania Cancer Center. The control group will consist of those who receive Internet education alone. A secondary aim of this pilot study is to assess the feasibility of various methods for understanding the Internet peer support process. The proposed process study will examine a number of key issues, including: 1) Level of participation in the online peer support intervention; 2) analysis of the online peer support communications; and 3) assessment of participant perceptions of the online support process. The products from this effort will serve as a basis for planning future behavioral and cancer control intervention research project grant applications (R01) based on the information.

描述（由申请人提供）：同伴支持被一致和明确地认为对乳腺癌妇女的情绪调节和功能状态有益。面对这些发现，令人不安的是，面对面的同伴支持干预仍然没有得到充分利用，因为最近的调查表明，只有12%的乳腺癌患者参加了这样的小组。路途距离、时间投入、疲劳等因素会限制乳腺癌妇女获得面对面的社会心理支持的程度。在向癌症患者提供心理社会和教育干预方面，互联网已经成为一种令人兴奋和潜在有价值的工具，包括被用作同伴支持的渠道。互联网同伴支持每周7天，每天24小时都可以从自己家里获得，这些特征似乎增加了那些不参加面对面支持的人获得和利用同伴支持的可能性。这份R21申请响应了美国国家癌症研究所的PA 02-001，该研究所邀请研究资助申请在癌症控制方面进行探索性行为研究，特别是围绕改善生活质量相关的问题。本研究的主要目的是获得网络同伴支持对新近诊断为乳腺癌的妇女的幸福、适应和功能的影响的初步数据。拟议的随机研究将提供有关互联网同伴支持的潜在有效性的数据，如果有希望，将作为未来R01提案的基础。网络同伴支持将作为网络教育的一项辅助服务提供给肿瘤网络。肿瘤网络是一个致力于癌症教育和推广的网站，由宾夕法尼亚大学癌症中心管理和管理。对照组由单独接受网络教育的学生组成。本初步研究的第二个目的是评估各种方法的可行性，以了解互联网同伴支持过程。拟议的过程研究将审查一些关键问题，包括：1)参与在线同伴支持干预的水平；2)在线同伴支持通信分析；3)评估参与者对在线支持过程的看法。这项工作的成果将作为规划未来行为和癌症控制干预研究项目拨款申请（R01）的基础。