Web-Based Support for Informal Caregivers in Cancer

为癌症非正式护理人员提供基于网络的支持

• 批准号: 7096661
• 负责人: DAVID H GUSTAFSON
• 金额: $ 45.43万
• 依托单位: UNIVERSITY OF WISCONSIN-MADISON
• 依托单位国家: 美国
• 财政年份: 2002
• 资助国家: 美国
• 起止时间: 2002-09-30 至 2009-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7096661
• 关键词: Internet; behavioral /social science research tag; breast neoplasms; cancer information system; caregivers; chronic disease /disorder; clinical research; computer assisted instruction; computer human interaction; coping; data collection methodology /evaluation; human subject; interactive multimedia; neoplasm /cancer education; neoplasm /cancer palliative treatment; prostate neoplasms; quality of life

DESCRIPTION (provided by applicant): Informal caregivers need information, skills and emotional support to address physical, spiritual, and emotional needs associated with chronic illnesses including late stage cancer. Unfortunately, current conditions force clinicians to reduce interaction time with patients and informal caregivers. Complimentary methods must be developed to provide needed information and support to caregivers. The proposed research will measure and explain the impact of two computer-based support systems that meet caregiver needs and facilitate information exchange with clinicians. The system, CHESS (Comprehensive Health Enhancement Support System), is a non- commercial computer system that provides patients with disease specific information, emotional support and skills building tools. In the expanded form to be tested here, CHESS with Caregiver Support (CGCHESS) will also provide the caregiver with more information, support and skills training related to palliative care. CGCHESS will be further enhanced to communicate essential patient and caregiver information to clinicians prior to a scheduled clinic visit and when patient symptoms exceed a threshold. Using as recruitment sites the University of Wisconsin Comprehensive Cancer Centers in Madison and Milwaukee, 300 caregivers (33% minorities) of advanced breast and prostate cancer patients will be randomly assigned to: 1) Control group given usual care, 2) Caregiver CHESS (CGCHESS) designed to support both patients and caregivers and 3) Caregiver CHESS with Clinician Report (CGCHESS+CR). Inclusion of breast and prostate cancer patients will provide caregivers of both genders. Our primary hypothesis is that CGCHESS will significantly improve caregiver burden, affect, coping self-efficacy and information competence because of the information, skills building and emotional support CHESS offers to caregivers. We also hypothesize that CGCHESS+CR will improve the outcomes more and that minority caregivers will benefit more than Caucasians. Our process analyses will study the mechanisms of CHESS effect.

项目成果

Caregivers' differing needs across key experiences of the advanced cancer disease trajectory.

• DOI: 10.1017/s1478951508000400
• 发表时间: 2008-09-01
• 期刊: Palliative & supportive care
• 影响因子: 2.2
• 作者: DuBenske, Lori L;Wen, Kuang-Yi;McTavish, Fiona M
• 通讯作者: McTavish, Fiona M

Web-based cancer communication and decision making systems: connecting patients, caregivers, and clinicians for improved health outcomes.

• DOI: 10.1177/0272989x10386382
• 发表时间: 2010-11
• 期刊: Medical decision making : an international journal of the Society for Medical Decision Making
• 作者: DuBenske LL;Gustafson DH;Shaw BR;Cleary JF
• 通讯作者: Cleary JF

Communicating advanced cancer patients' symptoms via the Internet: a pooled analysis of two randomized trials examining caregiver preparedness, physical burden, and negative mood.

• DOI: 10.1177/0269216312457213
• 发表时间: 2013-06
• 期刊: Palliative medicine
• 影响因子: 4.4
• 作者: Chih MY;DuBenske LL;Hawkins RP;Brown RL;Dinauer SK;Cleary JF;Gustafson DH
• 通讯作者: Gustafson DH

Patient/Caregiver influences for declining participation in supportive oncology trials.

患者/护理人员对支持性肿瘤试验参与率下降的影响。

• 发表时间: 2008
• 期刊: The journal of supportive oncology
• 作者: Buss,MaryK;DuBenske,LoriL;Dinauer,Susan;Gustafson,DavidH;McTavish,Fiona;Cleary,JamesF
• 通讯作者: Cleary,JamesF

Psychometric evaluation of the Health Information Orientation Scale: a brief measure for assessing health information engagement and apprehension.

• DOI: 10.1177/1359105309338892
• 发表时间: 2009-09
• 期刊: Journal of health psychology
• 影响因子: 3.2
• 作者: DuBenske LL;Burke Beckjord E;Hawkins RP;Gustafson DH
• 通讯作者: Gustafson DH