NATIONAL CHILDHOOD CANCER REGISTRY (NCCR) DATA PLATFORM

国家儿童癌症登记处 (NCCR) 数据平台

• 批准号: 10723789
• 负责人: JORDAN STOWE
• 金额: $ 320.55万
• 依托单位: HEALTHVERITY, INC.
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-09-16 至 2024-09-15
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10723789
• 关键词: Area; Data; Data Commons; Data Sources; Ensure; Frequencies; Genomic Data Commons; Goals; Infrastructure; Link; Malignant Childhood Neoplasm; Methods; Modernization; Population-Based Registry; Process; Reporting; Research; Research Personnel; Secure; Standardization; Technology; anticancer research; data access; data ecosystem; data registry; neoplasm registry; population based; tumor

The purpose: This project will support the NCI in planning, acquiring, developing, documenting, implementing, updating, and supporting childhood cancer research by applying commercially available information technology (IT) solutions in an NCI-approved environment. The contract and resulting IT and applications will assist researchers and the NCI to meet data sharing and scientific objectives in surveillance and public health analysis and cancer research, with an ultimate goal of improving treatments, quality of life, and survivorship of every child with cancer.

目的：本项目将通过在NCI认可的环境中应用商业信息技术（IT）解决方案，支持NCI规划、获取、开发、记录、实施、更新和支持儿童癌症研究。该合同以及由此产生的信息技术和应用将帮助研究人员和国家癌症研究所实现监测、公共卫生分析和癌症研究方面的数据共享和科学目标，最终目标是改善治疗、改善生活质量，提高每个癌症儿童的存活率。