Disparities in Quality Healthcare Among Childhood Cancer Survivors: Role of Medicaid
儿童癌症幸存者的医疗质量差异:医疗补助的作用
基本信息
- 批准号:10722895
- 负责人:
- 金额:$ 13.11万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2023
- 资助国家:美国
- 起止时间:2023-07-21 至 2028-01-31
- 项目状态:未结题
- 来源:
- 关键词:AddressAdultAdverse effectsAffectAffordable Care ActAgeAutomobile DrivingAwardCOVID-19 pandemicCancer CenterCancer SurvivorCancer SurvivorshipCaringCensusesCharacteristicsChildhoodChildhood Cancer Survivor StudyChronicChronic DiseaseClinical DataCommunitiesCost SharingCross-Sectional StudiesDataDetectionDiscriminationDiseaseDisparityDropsEarly treatmentEnrollmentEnsureEquityEthnic OriginFaceFinancial HardshipFoundationsFutureGoalsHealthHealthcareImpaired cognitionImprove AccessIndividualInstitutionInsuranceInsurance CoverageInternationalInterventionInterviewKnowledgeLate EffectsLeadLeadershipLinkLow incomeMalignant Childhood NeoplasmMalignant NeoplasmsMeasurableMeasuresMedicaidMentorshipMethodsModelingNational Institute on Minority Health and Health DisparitiesOutcomeParticipantPatient CarePatientsPediatric OncologyPoliciesPopulationQualitative MethodsQuality of CareQuality of lifeRaceRare DiseasesRecording of previous eventsReduce health disparitiesResearchResearch MethodologyResearch PersonnelResearch PriorityRoleScientistServicesSocietiesSocioeconomic StatusSourceStructureSurvey MethodologySurveysSurvivorsSystemTrainingUnderserved PopulationUnited StatesValidationWorkbeneficiarycancer therapycare coordinationcare deliverycare providerscareerchildhood cancer survivorclinical carecohortdesignethnic minorityexperiencefollow-uphands-on learninghealth care disparityhealth care qualityhealth disparityhealth literacyhigh riskimplementation scienceimprovedlearning strategylow socioeconomic statusmedical specialtiesminority healthmultidisciplinarypost-pandemicpre-pandemicprogramspublic health insuranceracial health disparityracial minorityrecruitrural disparitiesrural dwellersruralitysatisfactionsexsex disparityskillssociodemographic groupsocioeconomicstoolurban disparityvoltage
项目摘要
PROJECT SUMMARY/ABSTRACT
Survivors of childhood cancer require life-long healthcare to improve quality of life and health. However, the
majority of adult survivors of childhood cancer, including those with public health insurance (primarily
Medicaid), lack long-term healthcare. There are crucial gaps in our current understanding of disparities in
patient care and the modifiable factors that create and perpetuate disparities in care among childhood cancer
survivors in the Medicaid system. This study will use qualitative and survey research methods to systematically
assess survivor experience of care in the Medicaid system and determine sources of disparities affecting care
experience among adult survivors of childhood cancer. We anticipate contacting for potential recruitment a
total of 2,700 adult survivors insured with Medicaid from the Childhood Cancer Survivor Study (CCSS),
including: 20 survivors for qualitative survivor interviews (Aim 1), among whom 8 survivors will participate in a
Delphi panel (Aim 2); 144 survivors for a pilot survey (Aim 2); and 2,536 survivors for an expanded survey (Aim
3). For Aim 1, we will also include 10 stakeholder participants (care providers and financial navigators) from
CCSS participating institutions for qualitative stakeholder interviews. The specific aims are as follows. Aim 1:
Use qualitative methods to explore multi-level barriers to quality healthcare for adult survivors of childhood
cancer in the Medicaid system. Aim 2: Develop and validate a survey to quantify survivor experiences with the
Medicaid system. Aim 3: Assess racial/ethnic, socioeconomic, rural-urban, and sex disparities in survivor
experiences with insurance and healthcare in Medicaid, and how disparities are related to survivor-,
community-, and state-level characteristics. The focus of this study aligns with the NIMHD’s research priority to
understand and reduce health disparities by race/ethnicity, socioeconomic status, rurality, and sex. Data
gained from this study will form the foundation for an R01 proposal to survey state-specific cancer survivor
cohorts, with the goal of informing interventions that promote equitable, high-quality care based on state
Medicaid program rules. The candidate’s long-term career goal is to become an independent scientist with a
research program focused on addressing disparities in health and healthcare after childhood cancer. Under the
mentorship of international experts in health disparities/minority health and cancer survivorship, the candidate
will accomplish her short-term goals to 1) develop expertise in health disparities and implementation science,
2) acquire qualitative and survey research skills, 3) understand patient experience in pediatric oncology and
cancer survivorship, and 4) improve research leadership and management skills to complete transition to
independence. The integrated training plan includes a mix of didactic courses, hands-on learning activities, and
focused multidisciplinary mentorship that will advance the candidate’s research skills and ensure her transition
to a fully independent investigator.
项目总结/文摘
项目成果
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{{ truncateString('Xu Ji', 18)}}的其他基金
Understanding the impact of the Affordable Care Act on healthcare coverage, utilization, and outcomes for childhood cancer survivors
了解《平价医疗法案》对儿童癌症幸存者的医疗保健覆盖范围、利用和结果的影响
- 批准号:
10359441 - 财政年份:2021
- 资助金额:
$ 13.11万 - 项目类别:
Understanding the impact of the Affordable Care Act on healthcare coverage, utilization, and outcomes for childhood cancer survivors
了解《平价医疗法案》对儿童癌症幸存者的医疗保健覆盖范围、利用和结果的影响
- 批准号:
10533828 - 财政年份:2021
- 资助金额:
$ 13.11万 - 项目类别:
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