Caregiving networks of older women living with HIV.
感染艾滋病毒的老年妇女的护理网络。
基本信息
- 批准号:10761894
- 负责人:
- 金额:$ 13.24万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2023
- 资助国家:美国
- 起止时间:2023-09-01 至 2028-05-31
- 项目状态:未结题
- 来源:
- 关键词:Active LearningAddressAffectAgeAgingAreaBasic ScienceBehavioralBlack raceCaregiversCaringClassificationCommunity DevelopmentsComplementComplexDataData ReportingData SourcesDevelopmentDevelopment PlansDimensionsEffectivenessElderlyEvolutionFamilyFriendsFutureHIVHIV SeropositivityHIV/AIDSHealthHealth PolicyHealth behaviorIndividualInterventionInterviewKnowledgeLatinaLife Cycle StagesLinkLiteratureLonelinessManaged CareMeasuresMedicaidMental HealthMental health promotionMentorsMethodologyMethodsModelingNew York CityOlder PopulationParticipantPatient Self-ReportPatternPersonal SatisfactionPersonsPopulationPublic HealthReduce health disparitiesReportingResearchResearch MethodologyResearch Project GrantsResourcesRoleSamplingShapesSocial NetworkSocial supportSourceStructureSupport SystemSurveysTargeted ResearchTestingTimeTrainingTranslational ResearchUnited StatesUnited States National Institutes of HealthWomanage relatedbehavioral healthcare burdencareer developmentcaregivingclinical practicecommunity partnershipcomorbiditydepressive symptomsexperiencehealthy aginginformal careinformal caregivinglife historymarginalizationmedication compliancemeetingsmenmultiple chronic conditionsnovelolder womenpreferencepsychosocialpublic health relevancerecruitresearch studyskillssocialsociocultural determinanttherapy developmenttranslational impactwomen of color
项目摘要
Over half of the HIV-population in the United States is age 50 or older. Despite successful long-term
management of HIV/AIDS, older people with HIV (PLWH) often live with multiple age-related comorbidities, 4+
non-HIV conditions on average. Black and Latina women, in addition to being disproportionately affected by
HIV, typically have higher rates of multimorbidity. As a result, many women living with HIV (WLWH) require
informal caregiving or can anticipate needing care in the future to support complex care needs. Older WLWH
are an understudied group, as most HIV research targets men and younger people. Because older women of
color living with HIV have intersectional marginalized identities, they often experience difficulty in meeting their
needs for caregiving and support. The configuration of older WLWH's care networks, their effectiveness in
meeting older WLWH's care needs, and links to mental and behavioral health are major gaps in the HIV/AIDS
literature. Similarly, there is limited understanding of the evolution of care needs and informal care networks in
tandem over time, as well as the factors that shaped both in this population.
This mixed-methods research seeks to use survey and interview data to investigate the adequacy of
older WLWH's care networks. Aim 1 will identify inadequate care networks among Black and Latina-identifying
women age 50 and older living with HIV and their association with mental and behavioral health using data
from a psychosocial and egocentric network survey. Aim 2 will probe participant perspectives on their own care
needs and resources, including informal and formal sources of support, and how these have changed over
time through a semi-structured life history interview. Aim 3 will corroborate care network patterns and the
factors associated with inadequate care networks across survey data and qualitative interviews.
This research study is complemented by the career development plan which combines didactic and
experiential learning through interactions with a committee of experienced mentors who are leaders in HIV and
aging research to achieve four training aims: 1) acquire subject-matter expertise on WLWH; 2) expand skills in
survey research and mixed methods analysis; 3) obtain content knowledge about public health scientific
methods, namely causal inference; and 4) understand the translational research pipeline. The proposed
research and training plan will provide the candidate with the subject-matter expertise, community
partnerships, and methodological skills to conduct translational research in the HIV and aging field. This
research also lays the groundwork for a long-term research agenda aimed at better understanding of the
mechanisms whereby informal care networks operate across different populations of PLWH, and how to better
support these individuals, reduce health disparities, and promote healthy aging through the development of
targeted interventions.
美国超过一半的艾滋病毒携带者年龄在50岁或以上。尽管长期取得了成功
艾滋病毒/艾滋病的管理,老年艾滋病毒携带者(PLWH)经常患有多种与年龄相关的合并症,4+
平均而言,非艾滋病毒感染的情况。黑人和拉丁裔女性,除了受到不成比例的
艾滋病毒,通常有较高的多发病比率。因此,许多感染艾滋病毒(WLWH)的妇女需要
非正式护理或预期未来需要护理,以支持复杂的护理需求。较老的WLWH
是一个研究不足的群体,因为大多数艾滋病毒研究针对的是男性和年轻人。因为年长的女性
有色人种艾滋病毒携带者有交叉的边缘化身份,他们经常遇到困难,满足他们的
需要照顾和支持。老年WLWH护理网络的配置,它们在
满足老年WLWH的护理需求,以及与精神和行为健康的联系是艾滋病毒/艾滋病的主要差距
文学。同样,人们对#年护理需求和非正式护理网络的演变了解有限。
随着时间的推移,以及影响这两个群体的因素。
这项混合方法的研究试图使用调查和访谈数据来调查
老年妇幼保健院的护理网络。目标1将确定黑人和拉丁裔中不充分的护理网络-确定
50岁及以上女性艾滋病毒携带者及其与心理和行为健康关系的数据
来自心理社会和以自我为中心的网络调查。目标2将探讨参与者对自己护理的看法
需求和资源,包括非正式和正式的支助来源,以及这些资源是如何转变的
时间通过半结构化的人生史访谈。目标3将证实护理网络模式和
调查数据和定性访谈中与护理网络不足相关的因素。
这项研究性研究得到了职业发展计划的补充,该计划结合了教学和
通过与经验丰富的导师委员会的互动进行体验式学习,这些导师是艾滋病毒和艾滋病领域的领导者
老龄化研究以实现四个培训目标:1)获得WLWH的主题专业知识;2)在以下方面扩展技能
调查研究和混合方法分析;3)获取公共卫生科学内容知识
方法,即因果推理;4)理解翻译研究的流程。建议数
研究和培训计划将为应聘者提供主题专业知识、社区
在艾滋病毒和老龄化领域进行翻译研究的伙伴关系和方法技能。这
研究也为长期研究议程奠定了基础,旨在更好地了解
非正式护理网络在不同人口中运作的机制,以及如何更好地
支持这些人,减少健康差距,通过发展
有针对性的干预。
项目成果
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