Mindfulness Based Stress Reduction App for African American Caregivers

针对非裔美国护理人员的基于正念的减压应用程序

• 批准号: 10760980
• 负责人: Karen Alexander
• 金额: $ 99.24万
• 依托单位: COG ANALYTICS, LLC
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-08-01 至 2025-08-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10760980
• 关键词: African American; African American population; Asian Americans; Attitude; Awareness; Caregiver Burden; Caregivers; Caring; Collaborations; Communities; Compassion; Critical Care; Dementia; Development; Disabled Children; Discrimination; Effectiveness; Emotional; Evaluation; Exercise; Family; Feedback; Financial Support; Friends; HIV/AIDS; Health; Health Personnel; Individual; Intervention; Learning; Meditation; Mental Depression; Mental Health; Outcome; Participant; Patient-Focused Outcomes; Patients; Personal Satisfaction; Persons; Phase; Play; Population; Public Health; Quality of life; Race; Randomized; Randomized, Controlled Trials; Reporting; Research; Resources; Role; Sampling; Services; Small Business Innovation Research Grant; Social Network; Source; Stress; Testing; Time; Universities; Yoga; anxiety symptoms; burden of illness; burnout; care giving burden; care recipients; care systems; caregiver stress; caregiving; caucasian American; community based research; compare effectiveness; depressive symptoms; design; effectiveness evaluation; experience; feasibility trial; health disparity; high risk; improved; informal care; informal caregiver; informal caregiving; innovation; member; mindfulness; mindfulness-based stress reduction; mobile application; online delivery; phase 1 study; physical conditioning; pilot test; prevent; primary outcome; promote resilience; prototype; psychoeducation; psychoeducational; randomized, clinical trials; satisfaction; secondary outcome; social stigma; stress management; stress reduction; stressor; support tools

Abstract There are approximately 43.5 million informal (unpaid) caregivers in the U.S., of which 5.6 million are African American.1 Almost one third of people living with HIV/AIDS (PLWHA) report receiving care from informal caregivers, typically friends and family.2 Informal caregivers often provide a variety of support to PLWHA, including emotional and instrumental, financial assistance, and health advice.3-5 African American caregivers of PLWHA have unique needs because they are more likely to experience stressors related to intersecting sources of stigma and discrimination related to HIV/AIDS and race18,19 and a lack of access to culturally sensitive health care providers and services,20-22 placing them at higher risk for burnout and adverse health outcomes for themselves and their care recipients.23 Thus, while informal caregivers play a critical role in supporting PLWHA, such caregiving can take a tremendous toll. Preventing or reducing caregiver stress is especially important in order to sustain informal caregiving and its myriad benefits for patients’ quality of life and health outcomes. Mindfulness-Based Stress Reduction (MBSR) is one type of intervention that has shown promise in helping caregivers manage stress while subsequently enhancing their mental health and well-being.9 MBSR consists of psychoeducation focused on stress reduction and the development of an accepting and non-judgmental attitude toward daily stressors of living.11 MBSR interventions can include activities such as guided meditations and yoga exercises designed to help individuals build awareness of the present moment, and decrease reactivity to stress.10-12,40 Building upon prior research regarding MBSR interventions, during Phase I, we successfully developed a prototype mobile application (app) for caregivers entitled Mindfulness Based Stress Reduction for African American Caregivers (MBSR-AAC). Based on the Health Stigma and Discrimination Framework,24 components of the app focus on decreasing stress associated with intersecting sources of stigma, discrimination, and caregiving burdens specifically associated with caregiving for PLWHA. In the present Phase II SBIR study, we will build on Phase I findings to incorporate research-driven enhancements to the app, conduct a feasibility trial of the enhanced app, and conduct a randomized clinical trial to examine the effectiveness of the app in reducing caregiver stress. If proven to be effective, the MBSR-AAC app could have a positive impact on the well-being of African American caregivers that serve as a critical pillar of support for many PLWHA.

摘要 在美国，大约有4350万非正式（无薪）照顾者，其中560万人 1几乎三分之一的艾滋病毒/艾滋病感染者（PLWHA）报告说， 非正式的照顾者，通常是朋友和家人。2非正式的照顾者往往提供各种支持， 艾滋病毒/艾滋病感染者，包括情感和工具，财政援助和健康咨询。 艾滋病毒/艾滋病感染者的照顾者有独特的需求，因为他们更有可能经历与艾滋病毒/艾滋病有关的压力源。 与艾滋病毒/艾滋病和种族有关的耻辱和歧视的交叉根源18、19以及缺乏获得 文化上敏感的卫生保健提供者和服务，20-22使他们面临更高的倦怠和不良反应风险， 23因此，虽然非正规照料者在儿童健康方面发挥着关键作用， 在支持艾滋病毒/艾滋病感染者方面，这种支持可能造成巨大的损失。预防或减少照顾者的压力是 尤其重要的是，为了维持非正式的医疗服务及其对患者生活质量的无数好处， 和健康结果。 基于正念的减压（MBSR）是一种干预措施，已显示出帮助的希望 照顾者在管理压力的同时，也能增强他们的心理健康和幸福感。9正念减压疗法包括 心理教育的重点是减轻压力和培养接受和不评判的态度 对日常生活压力源的态度。11正念减压疗法干预可以包括指导冥想等活动 瑜伽练习旨在帮助个人建立对当下的意识， 对压力的反应10 - 12，40 基于之前关于正念减压疗法干预的研究，在第一阶段，我们成功地开发了一种 为照顾者开发的原型移动的应用程序（app），名为“非洲人基于正念的减压” 美国护理人员（MBSR-AAC）。根据《健康耻辱和歧视框架》， 该应用程序的重点是减少与耻辱，歧视和 与艾滋病毒/艾滋病感染者艾滋病疫苗接种有关的负担。在目前的第二阶段SBIR研究中，我们 将在第一阶段研究结果的基础上，将研究驱动的增强功能纳入应用程序，进行可行性试验， 的增强版应用程序，并进行随机临床试验，以检查应用程序在 减轻照顾者的压力。如果被证明是有效的，MBSR-AAC应用程序可能会产生积极的影响， 非裔美国人照顾者的福祉，这是支持许多艾滋病毒/艾滋病感染者的关键支柱。