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Mindfulness Based Stress Reduction App for African American Caregivers

针对非裔美国护理人员的基于正念的减压应用程序

基本信息

批准号：
10760980
负责人：
Karen Alexander
金额：
$ 99.24万
依托单位：
COG ANALYTICS, LLC
依托单位国家：
美国
项目类别：
财政年份：
2021
资助国家：
美国
起止时间：
2021-08-01 至 2025-08-31
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10760980
关键词：
African American African American population Asian Americans Attitude Awareness Caregiver Burden Caregivers Caring Collaborations Communities Compassion Critical Care Dementia Development Disabled Children Discrimination Effectiveness Emotional Evaluation Exercise Family Feedback Financial Support Friends HIV/AIDS Health Health Personnel Individual Intervention Learning Meditation Mental Depression Mental Health Outcome Participant Patient-Focused Outcomes Patients Personal Satisfaction Persons Phase Play Population Public Health Quality of life Race Randomized Randomized, Controlled Trials Reporting Research Resources Role Sampling Services Small Business Innovation Research Grant Social Network Source Stress Testing Time Universities Yoga anxiety symptoms burden of illness burnout care giving burden care recipients care systems caregiver stress caregiving caucasian American community based research compare effectiveness depressive symptoms design effectiveness evaluation experience feasibility trial health disparity high risk improved informal care informal caregiver informal caregiving innovation member mindfulness mindfulness-based stress reduction mobile application online delivery phase 1 study physical conditioning pilot test prevent primary outcome promote resilience prototype psychoeducation psychoeducational randomized, clinical trials satisfaction secondary outcome social stigma stress management stress reduction stressor support tools

项目摘要

Abstract There are approximately 43.5 million informal (unpaid) caregivers in the U.S., of which 5.6 million are African American.1 Almost one third of people living with HIV/AIDS (PLWHA) report receiving care from informal caregivers, typically friends and family.2 Informal caregivers often provide a variety of support to PLWHA, including emotional and instrumental, financial assistance, and health advice.3-5 African American caregivers of PLWHA have unique needs because they are more likely to experience stressors related to intersecting sources of stigma and discrimination related to HIV/AIDS and race18,19 and a lack of access to culturally sensitive health care providers and services,20-22 placing them at higher risk for burnout and adverse health outcomes for themselves and their care recipients.23 Thus, while informal caregivers play a critical role in supporting PLWHA, such caregiving can take a tremendous toll. Preventing or reducing caregiver stress is especially important in order to sustain informal caregiving and its myriad benefits for patients’ quality of life and health outcomes. Mindfulness-Based Stress Reduction (MBSR) is one type of intervention that has shown promise in helping caregivers manage stress while subsequently enhancing their mental health and well-being.9 MBSR consists of psychoeducation focused on stress reduction and the development of an accepting and non-judgmental attitude toward daily stressors of living.11 MBSR interventions can include activities such as guided meditations and yoga exercises designed to help individuals build awareness of the present moment, and decrease reactivity to stress.10-12,40 Building upon prior research regarding MBSR interventions, during Phase I, we successfully developed a prototype mobile application (app) for caregivers entitled Mindfulness Based Stress Reduction for African American Caregivers (MBSR-AAC). Based on the Health Stigma and Discrimination Framework,24 components of the app focus on decreasing stress associated with intersecting sources of stigma, discrimination, and caregiving burdens specifically associated with caregiving for PLWHA. In the present Phase II SBIR study, we will build on Phase I findings to incorporate research-driven enhancements to the app, conduct a feasibility trial of the enhanced app, and conduct a randomized clinical trial to examine the effectiveness of the app in reducing caregiver stress. If proven to be effective, the MBSR-AAC app could have a positive impact on the well-being of African American caregivers that serve as a critical pillar of support for many PLWHA.

摘要