Parent-Child Collaborative Decision Making for the Management of Chronic Illness

描述（由申请人提供）：该职业发展奖的目的是促进米勒博士过渡到独立调查员，重点是发展研究，将告知有关儿童健康相关的决策和儿童同意的问题。这一长期目标的实现需要整合儿科心理学，儿科伦理学和发展心理学领域的知识，以及定性分析和高级统计学方面的额外培训。米勒博士是研究诚信中心儿科心理学博士后研究员，他将通过课程、研讨会和指导研究来满足这些培训需求。米勒博士选择了一个高素质的导师和合作者团队，代表与她的培训需求和研究计划相关的学科。米勒博士的研究计划旨在告知有关儿童如何实现独立管理慢性疾病的问题，这往往需要一系列复杂的决定，必须每天作出。感兴趣的主要结构是亲子合作治疗决策，这是概念化的一个重要的先驱，独立和有效的管理慢性疾病的治疗方案。研究1将利用焦点小组探讨从慢性病儿童及其父母的角度构建协作治疗决策，并创建一个评估协作决策相关领域的项目库。研究2将构建一个可靠的工具，测量协作治疗决策，并将建立初步的结构效度的工具。研究3将探讨协作治疗决策与选定的发展，心理社会和社会生态变量之间的关联。这三项研究将为未来的纵向研究奠定基础，研究与协作治疗决策相关的发展轨迹和机制，以及与健康相关的结果。相关性：慢性疾病影响7%至18%的儿童，并可能持续到成年或导致继发性疾病。在儿童和青少年时期向更大程度上独立作出健康相关决定的过渡与健康结果有关，并可能为成年期有效的疾病管理提供基础，使其成为经验调查的一个关键领域。

DESCRIPTION (provided by applicant): The objective of this Career Development Award is to facilitate Dr. Miller's transition to independent investigator, with an emphasis on developmental research that will inform questions related to children's health-related decision making and child assent. The achievement of this long-term goal requires integration of knowledge in the areas of pediatric psychology, pediatric ethics, and developmental psychology and additional training in qualitative analysis and advanced statistics. Dr. Miller, a postdoctoral fellow in pediatric psychology at The Center for Research Integrity, will address these training needs through coursework, seminars, and mentored research. Dr. Miller has selected a highly qualified team of mentors and collaborators, representing disciplines that are relevant to her training needs and research plan. Dr. Miller's research plan is designed to inform questions related to how children achieve independence for the management of a chronic illness, which often requires a series of complex decisions that must be made on a daily basis. The primary construct of interest is parent-child collaborative treatment decision making, which is conceptualized as an important precursor to independent and effective management of the treatment regimen for a chronic illness. Study 1 will utilize focus groups to explore the construct of collaborative treatment decision making from the perspective of children with a chronic illness and their parents and create an item pool that assesses relevant domains of collaborative decision making. Study 2 will construct a reliable instrument that measures collaborative treatment decision making and will establish the preliminary construct validity of the instrument. Study 3 will examine the associations among collaborative treatment decision making and selected developmental, psychosocial, and social-ecological variables. These three studies will lay the groundwork for future longitudinal research that examines developmental trajectories and mechanisms related to collaborative treatment decision making, as well as health-related outcomes. Relevance: Chronic illnesses affect 7% to 18% of children and may persist into adulthood or lead to secondary conditions. The transition to greater independence for health-related decisions during childhood and adolescence is relevant to health outcomes and may provide the foundation for effective disease management during adulthood, making it a critical area of empirical investigation.