Psychosocial Adjustment in Adolescents with Spina Bifida

脊柱裂青少年的心理社会调整

• 批准号: 7684250
• 负责人: Grayson Neil Holmbeck
• 金额: $ 34.07万
• 依托单位: LOYOLA UNIVERSITY OF CHICAGO
• 依托单位国家: 美国
• 财政年份: 2005
• 资助国家: 美国
• 起止时间: 2005-09-15 至 2011-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7684250
• 关键词: 13 year old; 15 year old; Accounting; Adherence; Adolescent; Adopted; Aggressive behavior; Attention; Biological; Biological Factors; Child; Code; Congenital Abnormality; Data; Data Reporting; Development; Emotions; Exhibits; Family; Family Relationship; Friends; Funding; Health Professional; Health Status; Hispanics; Home visitation; House Call; Hydrocephalus; Interview; Investigation; Language; Latino; Longitudinal Studies; Medical; Meningomyelocele; Methods; Modeling; Neuropsychological Tests; Outcome; Parents; Participant; Performance; Population; Prevalence; Preventive Intervention; Psychological adjustment; Quality of life; Questionnaires; Recruitment Activity; Relative (related person); Research; Sampling; Schools; Severities; Social Adjustment; Social Behavior; Social Problems; Source; Spinal Dysraphism; Staging; Students; Symptoms; Testing; Time; Training; Videotape; depression; disability; executive function; experience; functional status; neuropsychological; offspring; peer; programs; psychologic; psychosocial; psychosocial adjustment; skills; social; teacher

DESCRIPTION (provided by applicant): The purpose of this longitudinal study is to evaluate a developmentally-oriented bio-neuropsychosocial model of psychological adjustment in young adolescents with spina bifida (10-13 years old at Time 1 and 12-15 years old at Time 2). Extensive multi-source and multi-method data will be collected across several predictor variable domains: (1) biological, (2) neuropsychological, and (3) social. A multidimensional perspective on adolescent adjustment will also be adopted, with a rigorous focus on the adolescents' social adjustment. The proposed study will be the first to collect observed peer, interaction data (target child with close friend) in adolescents with spina bifida. The degree to which neuropsychological limitations experienced by children with spina bifida contribute to their social difficulties and other psychological problems will also be examined. Participants will include a sample of 140 children and young adolescents with spina bifida (with meningomyelocele and shunted hydrocephalus) along with their parents, a close friend, teachers, and health professionals. Spanish-speaking Hispanic/Latino families will also be recruited. Questionnaire, interview, neuropsychological testing, and observational methods will be employed during two home visits at Time 1 and two home visits at Time 2. In addition to evaluating the utility of the bioneuropsychosocial model, several mediational and moderational models will also be tested within the context of the more general model. Such models will facilitate identification of underlying mechanisms for associations between variables (i.e., mediational models) and will attempt to isolate variables within one domain that compensate for deficits in another domain (i.e., moderational models). Findings of this study will provide information on the differential relevance of family relationships, peer relationships, neuropsychological factors, and biological factors for adjustment in adolescents with spina bifida. Moreover, the results will have implications for prevention and intervention efforts with families who have offspring with disabling birth defects.

描述（由申请人提供）：这项纵向研究的目的是评估患有Spina bifida的年轻青少年的心理调整的面向发展的生物神经心理社会社会模型（在时间2时为10-13岁，时间1和12-15岁）。将在几个预测变量域中收集广泛的多源和多方法数据：（1）生物学，（2）神经心理学和（3）社会。还将采用有关青少年调整的多维视角，并严格着重于青少年的社会调整。拟议的研究将是第一个在患有脊柱裂的青少年中收集观察到的同伴相互作用数据（与亲密朋友的目标儿童）的研究。脊柱裂儿童遇到的神经心理学局限性对他们的社会困难和其他心理问题的影响也将受到研究。参与者将与他们的父母，密友，老师和卫生专业人员一起，包括140名儿童和年轻青少年（带有脊柱裂（带有脑膜瘤和分流的脑积水）的儿童和年轻青少年。讲西班牙语的西班牙裔/拉丁裔家庭也将被招募。在时间2的两次家庭访问和两次家庭访问期间，还将采用问卷，访谈，神经心理学测试和观察方法。除了评估Bioneuropsyceosocial模型的实用性外，还将在更广泛的模型的背景下进行几种中介和中等程度的模型。这样的模型将促进识别变量之间关联（即中介模型）之间关联的基本机制，并将尝试在一个域内隔离变量，以补偿另一个域中的缺陷（即中等模型）。这项研究的结果将提供有关家庭关系，同伴关系，神经心理学因素和生物学因素的不同相关性的信息，以调整脊柱裂的青少年。此外，结果将对预防和干预工作有影响，与患有遗迹缺陷的后代的家庭。

项目成果

Milestone achievement in emerging adulthood in spina bifida: a longitudinal investigation of parental expectations.

• DOI: 10.1111/dmcn.13279
• 发表时间: 2017-03
• 期刊: Developmental medicine and child neurology
• 影响因子: 3.8
• 作者: Holbein CE;Zebracki K;Bechtel CF;Lennon Papadakis J;Franks Bruno E;Holmbeck GN
• 通讯作者: Holmbeck GN

A longitudinal assessment of early pubertal timing as a predictor of psychosocial changes in adolescent girls with and without spina bifida.

对青春期早期时间的纵向评估作为患有和不患有脊柱裂的青春期女孩心理社会变化的预测因素。

• DOI: 10.1093/jpepsy/jsr121
• 发表时间: 2012
• 期刊: Journal of pediatric psychology
• 影响因子: 3.6
• 作者: Wasserman,RachelM;Holmbeck,GraysonN;Lennon,JaclynM;Amaro,ChristinaM
• 通讯作者: Amaro,ChristinaM

Psychosocial Adjustment in Emerging Adults With and Without Spina Bifida: A 14-Year Follow-up Study.

• DOI: 10.1097/dbp.0000000000000956
• 发表时间: 2022-01-01
• 期刊: Journal of developmental and behavioral pediatrics : JDBP
• 作者: Holmbeck GN;Kritikos TK
• 通讯作者: Kritikos TK

Trajectories of Marital Satisfaction among Parents of Youth with Spina Bifida.

脊柱裂青少年父母的婚姻满意度轨迹。

• DOI: 10.1093/jpepsy/jsac059
• 发表时间: 2022
• 期刊: Journal of pediatric psychology
• 影响因子: 3.6
• 作者: Kritikos,TessaK;Winning,AdrienM;Smith,ZoeR;Holmbeck,GraysonN
• 通讯作者: Holmbeck,GraysonN

A family perspective: how this product can inform and empower families of youth with spina bifida.

• DOI: 10.1016/j.pcl.2010.07.012
• 发表时间: 2010-08
• 期刊: PEDIATRIC CLINICS OF NORTH AMERICA
• 影响因子: 2.6
• 作者: Holmbeck, Grayson N.;Alriksson-Schmidt, Ann I.;Bellin, Melissa H.;Betz, Cecily;Devine, Katie A.
• 通讯作者: Devine, Katie A.