Engaging the Community in Clinical Research

让社区参与临床研究

• 批准号: 7689239
• 负责人: Dorene S. Markel
• 金额: $ 3.91万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2008
• 资助国家: 美国
• 起止时间: 2008-09-30 至 2010-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7689239
• 关键词: Address; Attitude; Awareness; Behavioral; Clinical; Clinical Research; Communication; Communities; Community Health; Data; Ensure; Equilibrium; Funding; Goals; Health; Health Benefit; Health Science Library; Institutes; Internet; Knowledge; Lateral; Lead; Libraries; Michigan; Online Systems; Physicians; Process; Public Participation; Research; Research Personnel; Rest; Science; Site; Social Network; Speed; Technology; Trust; Universities; design; health literacy; innovation; interest; literacy; member; public trust; social; willingness

DESCRIPTION (provided by applicant): Public trust in clinical research rests on the transparency of research practice and on good communication with stakeholders. Data suggests that the public is increasingly seeking health information and support outside of their physicians via the internet (1), thus clinical researchers must also move towards a proactive stance, and more directly respond in new ways to inform and engage the public. Likewise, though the public responds favorably to community forums that provide health information, it is not established what conditions are optimal for ensuring long-term health literacy, nor do general forums relay how the public correlates the information received with clinical research, or their attitudes towards clinical research in general. Building public participation in the clinical research process is key to maintaining relevancy to the communities it seeks to serve. Lack of responsiveness to community needs will inevitably be reflected by withdraw of publicly funded support, resulting in less innovative research that could measurably benefit the health of the local community. By establishing more opportunities to exchange information, community members and researchers will mutually benefit. The Michigan Institute for Clinical and Health Research (MICHR), the University of Michigan Health Sciences Libraries (HSL), and the Ann Arbor District Library (AADL) have combined their strengths in a project that addresses this need for community engagement in clinical research. This purpose of this partnership is to incorporate the local community's expertise and knowledge in several innovative strategies designed to raise the level of literacy, awareness, and participation in clinical health research. The strategies proposed will address the following specific aims: 1) Determine if the addition of social features to a web-based clinical research recruitment site increases public interest in clinical research, and 2) Identify whether community health forums in a public setting are an effective strategy for: a) increasing public clinical and health research literacy, b) increasing public trust in health research, and c) transforming community members into community research leaders. Responding to recent changes in how the public obtains health information, this project will use interactive clinical health forums and the addition of social networking and information relay features (utilizing the most recent version of the Internet, Web 2.0) to the University of Michigan's current clinical research web portal Engage (www.umengage.org) to speed the exchange of health information. We anticipate this increase in information exchange will lead to greater transparency and benefit community-researcher relationships. Through the balance of technology, science, and community, we aim to establish a strong public interest and trust in clinical research as a result of this project.

描述（由申请人提供）：公众对临床研究的信任取决于研究实践的透明度以及与利益相关者的良好沟通。数据表明，公众越来越多地通过互联网寻求医生之外的健康信息和支持 (1)，因此临床研究人员也必须采取积极主动的立场，并以新的方式更直接地做出反应，以告知公众并让公众参与其中。同样，尽管公众对提供健康信息的社区论坛反应良好，但尚不清楚确保长期健康素养的最佳条件，一般论坛也没有传达公众如何将收到的信息与临床研究相关联，或者他们对临床研究的总体态度。建立公众对临床研究过程的参与是保持其所服务社区相关性的关键。对社区需求缺乏响应将不可避免地表现为公共资助支持的撤回，从而导致本来可以显着造福当地社区健康的创新性研究减少。通过建立更多的信息交流机会，社区成员和研究人员将互惠互利。密歇根临床与健康研究所 (MICHR)、密歇根大学健康科学图书馆 (HSL) 和安娜堡区图书馆 (AADL) 在一个项目中结合了各自的优势，以满足社区参与临床研究的需求。这种伙伴关系的目的是将当地社区的专业知识和知识纳入多项创新战略中，旨在提高临床健康研究的素养、意识和参与水平。所提出的策略将实现以下具体目标：1) 确定在基于网络的临床研究招募网站中添加社交功能是否会增加公众对临床研究的兴趣，以及 2) 确定公共环境中的社区健康论坛是否是以下方面的有效策略：a) 提高公众临床和健康研究素养，b) 提高​​公众对健康研究的信任，c) 将社区成员转变为社区研究领导者。针对最近公众获取健康信息方式的变化，该项目将利用交互式临床健康论坛，并在密歇根大学现有的临床研究门户网站Engage (www.umengage.org)上添加社交网络和信息转发功能（利用最新版本的互联网Web 2.0），以加快健康信息的交流。我们预计信息交流的增加将带来更大的透明度并有利于社区与研究人员的关系。通过技术、科学和社区的平衡，我们的目标是通过该项目建立公众对临床研究的强烈兴趣和信任。