ASSESSMENT CORE

评估核心

• 批准号: 7718761
• 负责人: BENNETT L LEVENTHAL
• 金额: $ 37.71万
• 依托单位: UNIVERSITY OF ILLINOIS AT CHICAGO
• 依托单位国家: 美国
• 财政年份: 2008
• 资助国家: 美国
• 起止时间: 2008-08-01 至 2012-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7718761
• 关键词: Adolescent; Adult; Area; Arts; Asperger Syndrome; Autistic Disorder; Caregivers; Chicago; Child; Clinic; Clinical; Communities; Consent; DSM-IV; Data; Databases; Development; Diagnosis; Diagnostic; Diagnostics Research; Disease; Equipment and supply inventories; Evaluation; Family; Family history of; Feedback; Goals; Human; Illinois; Individual; Informed Consent; Interview; Maintenance; Not Otherwise Specified; Numbers; Nursing Faculty; Operative Surgical Procedures; Parents; Participant; Pervasive Development Disorder; Procedures; Process; Recruitment Activity; Reporting; Research; Research Project Grants; Resources; Sampling; Schedule; Screening procedure; Staging; Standards of Weights and Measures; Structure; Training; Work; autism spectrum disorder; cohort; developmental disease; experience; instrument; neuropsychiatry; proband; programs; success

C. ASSESSMENT CORE A. OBJECTIVE The Assessment Core is responsible for recruiting, assessing and maintaining the cohort of individuals with Autism Spectrum Disorders (ASD is defined in the UIC ACE as DSM-IV Autistic Disorder, Asperger's disorder, or Pervasive Developmental Disorder not otherwise specified) who will participate in the UIC ACE Projects l-lll. The coordination of participant recruitment, assessment tracking, and subject retention is vital for the success of UIC ACE, since all three human projects will draw their participants from the commonly established cohort developed by the Assessment Core. The Assessment Core is a team of experienced research clinicians who will use a variety of resources to recruit 1,000 individuals (children, adolescents, and adults) to be screened for ASD and then evaluated to form an appropriate sub-sample for further assessment, consent procedures, and assignment to the relevant studies being conducted by the UIC ACE. This effort will involve recruitment of a large number of families for a two-stage screening process. Families will participate in a comprehensive, state-of-the-art assessment to provide appropriate samples of consenting participants for UIC ACE Projects l-lll. This will be accomplished using established clinical operations that not only have expertise in evaluation, but a long tradition of research and maintenance of reliability on clinical instruments. In addition, the Assessment Core will actively utilize existing, well-established relationships with families and community agencies/organizations to maximize both the recruitment and the retention of research participants.

C.评估核心 A.目标 评估核心负责招聘、评估和维护符合以下条件的人员 自闭症谱系障碍(ASD在UIC ACE中定义为DSM-IV自闭症、阿斯伯格障碍、 或未特别说明的普及性发育障碍)谁将参与UIC ACE项目L-11。 参与者招募、评估跟踪和受试者保留的协调对成功至关重要 因为所有三个人类项目都将从共同建立的队列中吸引参与者 由评估核心开发。 评估核心是一个由经验丰富的研究临床医生组成的团队，他们将使用各种资源来 招募1,000人(儿童、青少年和成人)进行ASD筛查，然后进行评估以形成 适当的子样本用于进一步评估、同意程序和分配给相关 UIC ACE正在进行的研究。这一努力将涉及招募大量家庭参加 两段筛分工艺。家庭将参与一项全面的、最先进的评估 提供适当的同意参加UIC ACE项目的样本，L-11。这将会实现的 使用已建立的临床手术，这些手术不仅在评估方面具有专业知识，而且在研究方面具有悠久的传统 以及维护临床仪器的可靠性。此外，评估核心将积极利用 与家庭和社区机构/组织建立良好的现有关系，以实现两者的最大化 研究参与者的招聘和留用。