NIAAA - Improving the Lives of Children with FASD: An e-Learning Resource for Car

NIAAA - 改善 FASD 儿童的生活：汽车电子学习资源

• 批准号: 7671027
• 负责人: Catherine Bruss
• 金额: $ 12.01万
• 依托单位: TERRA NOVA LEARNING SYSTEMS
• 依托单位国家: 美国
• 财政年份: 2009
• 资助国家: 美国
• 起止时间: 2009-09-30 至 2011-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7671027
• 关键词: Address; Adoption; Advocacy; Advocate; Affect; Alcohol abuse; Alcoholism; Applications Grants; Area; Attention; Awareness; Behavior; Behavioral; Biological; Brain; Businesses; Caregivers; Caring; Characteristics; Child; Child Abuse and Neglect; Child Care; Child Welfare; Cognitive; Collaborations; Communication; Communities; Comprehension; Computers; Counseling; Data; Day Care; Development; Developmental Disabilities; Directories; Disease; Doctor of Medicine; Education; Ensure; Environment; Evaluation; Exercise; Family; Family Caregiver; Family member; Feedback; Fetal Alcohol Exposure; Fetal Alcohol Spectrum Disorder; Fetal Alcohol Syndrome; Focus Groups; Fostering; Foundations; Friends; Funding; Goals; Health; Human Resources; Individual; Institutes; Internet; Journals; Knowledge; Lead; Learning; Licensing; Life; Marketing; Mental Health; Multimedia; National Institute on Alcohol Abuse and Alcoholism; Nature; Neurologic; Parents; Personal Satisfaction; Phase; Principal Investigator; Printing; Provider; Psychiatrist; Public Sector; Published Comment; Published Directory; Publishing; Reaction; Recommendation; Research; Resources; School Teachers; Schools; Self Care; Services; Small Business Innovation Research Grant; Solid; Staging; Stigmata; Structure; Students; Substance abuse problem; Support Groups; Surveys; System; Testing; Touch sensation; Training; Woman; Work; Writing; alcohol effect; alcohol exposure; animation; base; caregiver education; caregiving; child protective service; commercialization; design; disability; fetal; foster care; improved; improved functioning; innovation; meetings; middle school; outreach; peer; programs; prototype; public health relevance; research and development; respite care; response; self help; skills; social stigma; success; teacher; tool

DESCRIPTION (provided by applicant): Terra Nova Learning Systems enthusiastically anticipates developing, producing, testing, and marketing the Improving the Lives of Children with FASD: An e-Learning Resource for Caregivers program outlined in this proposal. This practical caregiver resource will address NIAAA's priority of "improving the skills of caregivers and individuals living with FASD" and responds to an important and growing need in the public sector where fetal alcohol spectrum disorder is an ongoing concern. Terra Nova believes that education of caregivers is a critical first step in improving the lives of families affected by FASD, and that it must be supported by pragmatic caregiving and self-care tools. The proposed end-product will consist of content and resources designed to meet the needs, comprehension levels, and learning styles of a variety of users. First, an online course for primary caregivers of children living with FASD will be developed. This course will offer a comprehensive overview of the neurological basis, characteristics, and protective factors of FASD. Animation will be used to enhance learning of critical topics. Second, resource materials will be created to promote improved caregiving skills, and to support caregiver and family overall health and functioning. Using a variety of media formats, these resources will cover a broad scope of topics, and will include: exercises and strategies to promote the child's improved functioning; caregiver self-care training; and a DVD overview of FASD that can be used for varied purposes (e.g. to relay information about FASD to others who may interact with the child, as a tool for caregivers during communication with school personnel, or to introduce the disorder to potential short-term respite providers). Third, an important online community of support will put caregivers in touch with a global community of their peers. Caregivers will be able to create their own discussion threads, comment on discussions initiated by others, and interact in an open journal to share their personal stories. This course will be unique in its attention to the broad scope of caregiver needs, making it a one-of-a-kind resource. Phase I work will include developing, in collaboration with expert consultants, outlines for all materials plus: 1) a single-topic prototype educational module containing animated depictions of the effects of alcohol on the developing brain; 2) a professional storyboard depicting the look and feel of the proposed FASD overview DVD; and 3) an online community of support for caregivers. Primary purchasers of the end-product include foster care and adoption agencies, family support, disability services, child protective agencies, and others whose focus is on FASD or disability services. Terra Nova expects to find a robust market for this innovative program in FASD caregiver support settings. PUBLIC HEALTH RELEVANCE: An e-Learning Resource for Caregivers is an innovative program that addresses key issues of caregivers of children with fetal alcohol spectrum disorder and fills a void in the educational opportunities currently available to this group. The course will provide content to enhance understanding of this spectrum of disorders, while offering a variety of e-media tools to support the daily work of caregivers, along with information and strategies to address important self-care topics. By meeting this broad scope of needs, Terra Nova is confident that this course will be unique in the marketplace, and that it will meet the critical needs identified by caregivers of children with FASD. .

描述（由申请人提供）：Terra Nova学习系统热情地期待开发，生产，测试和营销改善FASD儿童的生活：本提案中概述的护理人员电子学习资源计划。这一实用的护理人员资源将解决NIAAA的优先事项“提高护理人员和FASD患者的技能”，并应对公共部门日益增长的重要需求，其中胎儿酒精谱系障碍是一个持续关注的问题。Terra Nova认为，对护理人员的教育是改善受FASD影响的家庭生活的关键第一步，必须得到务实的自我护理和自我护理工具的支持。拟议的最终产品将包括内容和资源，旨在满足各种用户的需求，理解水平和学习风格。首先，将为患有FASD的儿童的主要照顾者开发在线课程。本课程将全面概述FASD的神经学基础，特征和保护因素。动画将用于加强关键主题的学习。第二，将编制资源材料，以促进提高照料技能，并支持照料者和家庭的整体健康和功能。这些资源将利用各种媒体形式，涵盖广泛的主题，包括：促进儿童功能改善的练习和战略;照顾者自我照顾培训;以及可用于各种目的的FASD DVD概述（例如，将有关FASD的信息传递给可能与儿童互动的其他人，作为照顾者与学校人员沟通的工具，或将该障碍引入潜在的短期缓解提供者）。第三，一个重要的在线支持社区将使护理人员与全球同行社区保持联系。护理人员将能够创建自己的讨论线程，对其他人发起的讨论发表评论，并在开放的日志中进行互动，分享他们的个人故事。本课程将是独特的，它关注照顾者的需求范围广泛，使其成为一个独一无二的资源。第一阶段的工作将包括与专家顾问合作开发所有材料的大纲，以及：1）一个单一主题的原型教育模块，其中包含酒精对发育中大脑影响的动画说明; 2）一个描述拟议的FASD概述DVD的外观和感觉的专业故事板;以及3）一个支持照顾者的在线社区。最终产品的主要购买者包括寄养和收养机构、家庭支持、残疾服务、儿童保护机构以及其他专注于FASD或残疾服务的机构。Terra Nova希望在FASD护理人员支持环境中为这一创新计划找到一个强大的市场。公共卫生相关性：照顾者的电子学习资源是一个创新的计划，解决了胎儿酒精谱系障碍儿童的照顾者的关键问题，并填补了目前这一群体可用的教育机会的空白。该课程将提供内容，以提高对这一系列疾病的理解，同时提供各种电子媒体工具，以支持护理人员的日常工作，沿着信息和策略，以解决重要的自我护理主题。通过满足这一广泛的需求，Terra Nova相信，这门课程将在市场上独一无二，它将满足FASD儿童的照顾者所确定的关键需求。.