QUALITY OF LIFE IN TEEN AND ADULT WOMEN WITH PHENYLKETONURIA (PKU)

患有苯丙酮尿症 (PKU) 的青少年和成年女性的生活质量

• 批准号: 7603605
• 负责人: RANI SINGH
• 金额: $ 0.81万
• 依托单位: EMORY UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2006
• 资助国家: 美国
• 起止时间: 2006-12-01 至 2007-09-16
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7603605
• 关键词: Adult; Camping; Computer Retrieval of Information on Scientific Projects Database; Disease; Educational process of instructing; Effectiveness; Environment; Funding; Grant; Institution; Maple Syrup Urine Disease; Metabolic; Pregnancy Outcome; Quality of life; Research; Research Personnel; Resources; Source; Teenagers; United States National Institutes of Health; Woman; nutrition

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. This study will determine the effectiveness of teaching teens and young women with Phenylketonuria (PKU) or Maple Syrup Urine Disease (MSUD) about their disease and nutrition related issues in a camp environment. It will also look at pregnancy outcome results in women with PKU who attend Metabolic Camp and compare their results to other women with PKU who have not attended the Metabolic Camp.

这个子项目是许多研究子项目中的一个 由NIH/NCRR资助的中心赠款提供的资源。子项目和 研究者（PI）可能从另一个NIH来源获得了主要资金， 因此可以在其他CRISP条目中表示。所列机构为 研究中心，而研究中心不一定是研究者所在的机构。 本研究将确定在营地环境中教授患有苯丙酮尿症（PKU）或枫糖浆尿症（MSUD）的青少年和年轻女性有关疾病和营养相关问题的有效性。 它还将研究参加代谢营的PKU女性的妊娠结果，并将其结果与未参加代谢营的PKU女性进行比较。