The development of a tailored symptom assessment tool to enhance patient-centere

开发定制的症状评估工具以增强以患者为中心的能力

• 批准号: 8293907
• 负责人: Jennifer L Barton
• 金额: $ 8.26万
• 依托单位: UNIVERSITY OF CALIFORNIA, SAN FRANCISCO
• 依托单位国家: 美国
• 财政年份: 2006
• 资助国家: 美国
• 起止时间: 2006-04-20 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/8293907
• 关键词: Address; Affect; Caring; Clinic; Clinic Visits; Clinical; Clinical Research; Clinical Trials; Communication; Data; Data Analyses; Data Collection; Decision Making; Development; Disease; Educational Status; Effectiveness; English Language; Environment; Ethnic Origin; Focus Groups; Goals; Health; Health Services Accessibility; Healthcare; Immigrant; Improve Access; Intervention; Investigation; Language; Low Income Population; Methodology; Methods; Minority; Minority Groups; National Institute of Arthritis and Musculoskeletal and Skin Diseases; Outcome; Outcome Study; Patient Care; Patients; Perception; Persons; Physicians; Provider; Reporting; Research Personnel; Respondent; Review Literature; Rheumatoid Arthritis; Selection for Treatments; Support System; Surveys; Symptoms; System; Testing; Treatment outcome; Vulnerable Populations; Work; cancer rehabilitation; care preference; cohort; computerized; computerized tools; design; experience; functional status; health literacy; improved; low socioeconomic status; member; multidisciplinary; pilot trial; preference; racial difference; randomized trial; satisfaction; tool

The proposal addresses the observed disparities in treatments and outcomes experienced by persons with RA who are members of racial and ethnic minorities, have low levels of English language proficiency, and are of lower socioeconomic status. The proposal also addresses the observation that persons with RA with a primary language other than English and those born outside the U.S. experience a greater discordance between their assessments of disease activity and those of their providers. The overarching aim of the proposed project is to improve communication between patients with RA and their providers about disease activity and treatment choices. It is hypothesized that improved communication may provide a method of improving access to treatments of proven effectiveness for RA and in so doing reduce differences in outcomes. The specific aims of the proposed D&F are to: 1) assess the quality of information exchange between patients and providers regarding disease activity and treatment choices in RA in a cohort of diverse patients; 2) develop a computerized tool to improve communication about patient-reported symptoms and treatment preferences; and, 3) provide a preliminary assessment of the utility of the tool in terms of its feasibility in a clinical environment and the congruence between patients and providers in the symptoms addressed in an encounter by conducting a small pilot randomized trial. The specific aims will be achieved by analysis of data from the RA Outcomes Study (RA-OS). The RA-OS includes a uniquely diverse set of 450 respondents. The first annual survey of the RA-OS will include items to obtain the data for Aim 1. The information from the analysis of the survey data will be combined with information from focus groups among members of the RA-OS and physicians and that from conscientious literature reviews to develop the computerized tool in Aim 2. In Aim 3, 50 members of the RA-OS will participate in the pilot trial of the tool administered in a clinic visit. The overall goal of the project is to improve the quality of communication between patients with RA and providers and, therefore, reduce disparities in RA outcomes by improving patients' understanding of the disease and its treatments.

该提案解决了少数种族和少数民族成员RA患者所经历的治疗和结果方面的差异，英语水平低，社会经济地位较低。该提案还解决了以下观察结果，即主要语言为英语以外的RA患者和在美国以外出生的人对疾病活动的评估与其提供者的评估之间存在更大的不一致性。拟议项目的总体目标是改善RA患者与其提供者之间关于疾病活动和治疗选择的沟通。据推测，改善沟通可能提供一种方法，改善获得治疗的证明有效的类风湿关节炎，并在这样做减少结果的差异。拟议D&F的具体目标是：1）评估患者和提供者之间关于不同患者队列中RA疾病活动和治疗选择的信息交换质量; 2）开发计算机化工具，以改善患者报告症状和治疗偏好的沟通;并且，在本发明中，第三条提供一个初步的评估工具的效用，在其可行性方面，在临床环境和一致性之间的病人和供应商之间的症状解决在一个遭遇进行了一个小的试点随机试验。 具体目标将通过分析RA结局研究（RA-OS）的数据来实现。RA-OS包括450名受访者的独特多样性。区域业务系统的第一次年度调查将包括为目标1获取数据的项目。调查数据分析所得的信息将与RA-OS成员和医生焦点小组的信息以及认真文献综述的信息相结合，以开发目标2中的计算机化工具。在目标3中，RA-OS的50名成员将参加在诊所访问中使用该工具的试点试验。 该项目的总体目标是提高RA患者和提供者之间的沟通质量，从而通过提高患者对疾病及其治疗的理解来减少RA结局的差异。