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Cancer Registry for Understanding and Improving Survivorship Experiences (CRUISE)

用于了解和改善生存体验的癌症登记处 (CRUISE)

基本信息

批准号：
9802764
负责人：
Scarlett L Gomez
金额：
$ 64.98万
依托单位：
UNIVERSITY OF CALIFORNIA, SAN FRANCISCO
依托单位国家：
美国
项目类别：
财政年份：
2019
资助国家：
美国
起止时间：
2019-06-10 至 2024-05-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/9802764
关键词：
Address Administrator Area California Cancer Patient Cancer Survivor Cancer Survivorship Caring Clinic Colorectal Cancer Comorbidity Cultural Sensitivity Early Diagnosis Education Effectiveness Elements Emotional Environment Ethnic Origin Ethnic group Evaluation Face Financial Hardship Fostering Future Goals Health Health behavior Health system Healthcare Healthcare Systems Hospitals Human Resources Infrastructure Institute of Medicine (U.S.)Intervention Interview Knowledge Linguistics Medical Minority Nature Outcome Patient Outcomes Assessments Patient Recruitments Patients Policy Maker Population Heterogeneity Population Study Primary Health Care Process Provider Quality of life Race Recommendation Research Resources Risk San Francisco Second Primary Cancers Socioeconomic Status Surveys Survival Rate Survivors Testing Time Underserved Population Use Effectiveness Variant Work active method aging population cancer site cancer therapy care providers clinical care ethnic diversity experience health care delivery health care service utilization health equity implementation science improved innovation literacy malignant breast neoplasm multilevel analysis neoplasm registry oncology patient oriented patient population population based racial and ethnic racial diversity sex social socioeconomics survivorship virtual

项目摘要

Project Summary There are currently an estimated 15.5 million cancer survivors in the U.S., which is expected to increase in number and racial/ethnic diversity. Cancer survivors face many unique challenges, including late and long-term health effects, emotional and financial hardships, and a greater risk for developing second cancers and other serious health conditions. These challenges may be even more prevalent among underserved populations. In 2006, the Institute of Medicine (IOM) recommended the widespread implementation of survivorship care plans (SCPs) to facilitate the transition from active treatment to cancer survivorship, from oncology care to primary care. SCPs are intended to encompass the details of cancer treatment, which can be shared with current and future medical providers; anticipatory education for survivors; and provision of information about available resources relating to survivorship needs. The recommendations call for oncology treatment teams to review SCPs with patients at the conclusion of their cancer treatment. Early research in the years since the IOM recommendations has shown that implementation of SCPs is not widespread, evidence of improved survivor outcomes is limited, and there is considerable variation in the content of SCPs, with many plans failing to adhere to all of the IOM recommendations. Moreover, there is virtually no research on whether existing SCPs are culturally- or linguistically-tailored to patients and whether they address key social determinant barriers among underserved patients. More research is needed to thoroughly explore the efficacy and viability of SCPs in real-world settings. Specifically, while previous research has uncovered key cultural differences in survivorship experiences, we still know little about the appropriateness, effectiveness, and implementation of SCPs among cancer survivors from diverse racial/ethnic, cultural, and socioeconomic backgrounds. The overarching goal of this proposal is to investigate the extent to which SCPs are implemented in clinical care and used among diverse and underserved populations of breast and colorectal cancer survivors in California. Leveraging population-based cancer registries, we therefore propose the Cancer Registry for Understanding and Improving Survivorship Experiences (CRUISE) project, which takes a comprehensive, multi-level approach to examine the implementation of, and patient experiences with, SCPs, with focus on underserved populations. Our aims are as follows: 1) to examine the use and effectiveness of SCPs on patient-reported outcomes in breast and colorectal cancer survivors in the Greater San Francisco Bay Area; 2) to investigate the implementation and content of survivorship strategies and support including SCPs in use in California health systems serving diverse cancer patient populations; and 3) to convene a Delphi panel of stakeholders to develop best practices for delivering SCPs to meet the needs of diverse patient populations. The current proposal will advance our understanding of the implementation and effectiveness of SCPs from both the perspective of survivors and healthcare systems, focusing in particular on underserved patient populations.

项目总结